Does this sound like CFS?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 9/8/2009 7:21 AM (GMT -7)   
Hi, I'm new to the CFS forum but not HealingWell (thanks to my ulcerative colitis). I've been feeling so fatigued for over a year. At first I thought it was because of my UC flare from last year, but I've been in remission since January and I'm still having fatigue issues. I need to sleep about 9 hours per night and still have to take naps. I never feel rested enough. I sleep very deeply, which is weird for me b/c normally I'm a light sleeper. Sometimes I only have energy to watch TV and not do anything productived. Any type of work, like painting or driving for a few hours, leaves with aches and pains, which was never a problem before. I started classes last week and my shins were killing me for a couple days, which never happened before. I can barely play the piano anymore b/c my wrists and fingers hurt so much.
 
I've seen a rheumatologist a few times, but she was only able to rule out lupus and rheumatoid arthritis. She did suggest fibromyalgia at one point, but later said my sympotms weren't severe enough to do anything. And I only have a couple of the fibromyalgia tender points and fatigue is my biggest symptom, so I don't think it's fibro. I'm just so tired of being tired. I'm 20--I shouldn't be feeling like I'm 80.
Female, Age 20
Remicade, Colazal, VSL #3 DS, Vitamin D Rx, Calcium, Prozac, Turmeric, Biotin


jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 9/8/2009 9:41 PM (GMT -7)   
Hi Bookworm, it is nice to meet you.  I hope you do not have CFS but it is possible that you do.  It is one of those illnesses that needs to have everything else ruled out & what is left is CFS.   For a long time after I received my dx for Fibro I knew some of the symptoms didn't fit.  I kept pushing & was dx'd with CFS in late 2006.  It took me awhile to really agree with that dx until I found a site that listed more then just the run of the mill vague symptoms given on most other sites.  I wanted to know is my low body temp. (96.8-97.3) CFS?  Does CFS possibly cause my double vision?   I have canker sores all the time, why?  I get this red rash/flush on my face whenever I get really sick with the fatigue & I never had it before.  What is it?  I hope this helps you as much as it did me.  Very enlightening & now I don't feel like such a hypochondriac, with all my weird symptoms.  It has laid to rest all my questions about do I have CFS.    
 
 
You take care, it sounds like you already have you share of ills.  What a life, huh?  Many soft hugs, Denise 

 I have:  Fibromyalgia-dx: 2004, ME/CFS-dx: 2006, Holt-Oram Syndrome dx'd 1975, nasal allergies, food allergies, depression, TMJ, anxiety 

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren

 As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 9/9/2009 7:14 PM (GMT -7)   
Thanks for the reply, Denise. It seems that I have 20 of the symtpoms, although everything but the fatigue fluctuates or is mild.

What kind of dr. do I see for CFS?
Female, Age 20
Remicade, Colazal, VSL #3 DS, Vitamin D Rx, Calcium, Prozac, Turmeric, Biotin


jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 9/9/2009 11:25 PM (GMT -7)   
Hi Bookworm, A GP can dx you if they are knowledgeable about CFS & Fibromyalgia.  Never be afraid to ask if they have patients with those dx's that they are treating.  If they say no then find another who does, otherwise you can end up being told it is all in your head if you do have it.  A Rheumatologist is actually the best kind of Dr to see because this is their Field, but a word of caution once again, make sure they have patients with this disorder.  I was dx'd by a Rheumy in 2006 and it turns out she knew what she was talking about.  I was referred to another Rheumy recently who only wanted to talk about my Fibro & told me there is no such thing as CFS.  I am here to tell him there is.  He made me very angry & I won't go back to him because it is easy to say there is no such thing when you don't have to deal with it every day.  Nothing feels quite like CFS, Fibro has a lot of similarities but I can tell the difference.  Well, I will get off my bandwagon & just say, make sure they know about CFS.  If you don't have it, you want to know that everything was looked at, every possible illness is check out.  That is why it is so imperative to find the right Dr.  I hope your search is a positive & you find what the problem is.  Let's hope it is a Vit D deficiency or something fixable so you can have your life back. 
 
Also, my symptoms fluctuate all the time, You never know what symptoms are going to surface at any given minute or day or week or month, & they can be mild to severe.  Just a little game it plays, LOL!!    Hugs, Denise 


 I have:  Fibromyalgia-dx: 2004, ME/CFS-dx: 2006, Holt-Oram Syndrome dx'd 1975, nasal allergies, food allergies, depression, TMJ, anxiety 

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren

 As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 9/20/2009 4:44 PM (GMT -7)   
So my rheumatologist thinks its hypersomnia, and if it's confirmed by the sleep doctor, then I'll probably need to go on Provigil. I really don't want to be on any more meds. But I'm so tired.
Female, Age 20
Remicade, Colazal, VSL #3 DS, Vitamin D Rx, Calcium, Prozac, Turmeric, Biotin

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 05, 2016 9:43 AM (GMT -7)
There are a total of 2,732,998 posts in 301,074 threads.
View Active Threads


Who's Online
This forum has 151228 registered members. Please welcome our newest member, Acro1010.
368 Guest(s), 13 Registered Member(s) are currently online.  Details
notsosicklygirl, teacher2many, PeterK, tickbite666, Wanda1225, Serenity Now, smlafleur, JEN02, Paxton, pmm73, NewDay, Mustard Seed, Meshawmama


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer