Virus linked to CF

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

jacketch
Regular Member


Date Joined Apr 2009
Total Posts : 179
   Posted 10/11/2009 12:08 PM (GMT -7)   
www.nytimes.com/2009/10/09/health/research/09virus.html?em

Link between Chronic Fatigue and virus found.
62yo
V10.46 Dx Feb-09
RRP 5-5-09
No adverse SE
PSA 6-19-09 -0-
PSA 9-21-09 -0-
 
Thriving, not just surviving!
 


bee33
Regular Member


Date Joined Nov 2006
Total Posts : 51
   Posted 10/12/2009 9:10 PM (GMT -7)   
I think this is huge news. Not to get anyone's hopes up, but it's very promising, it seems to me. Thanks for posting (and to ruggedtoast for posting in the other thread). There are about 300 articles on this listed on Google news.

bee33
Regular Member


Date Joined Nov 2006
Total Posts : 51
   Posted 10/24/2009 12:20 AM (GMT -7)   
I am absolutely amazed that there has been no response at all on this forum regarding this stunning news.

It has generated dozens and dozens of comments from CFS sufferers in the NY Times, where two specialists have answered questions from readers. And it has been in dozens of newspapers.

valia
New Member


Date Joined May 2009
Total Posts : 2
   Posted 12/13/2009 5:31 AM (GMT -7)   
Now I know why the psychiatric lobby say we maintain false illness beliefs and don’t want to get well.


The people in this group are not remotely interested in the possible cause XMRV nor I must presume a possible cure.

Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 12/15/2009 4:29 AM (GMT -7)   
Hi there, I usually post on the Fibromyalgia forum, but wanted to say thanks for the article; I just saw this tonight and it's completely fascinating. I have really severe fatigue in a fibromyalgia flare right now, and have been looking for ways to manage so drop by this forum now and again.

Shiffs
Regular Member


Date Joined Jul 2007
Total Posts : 43
   Posted 12/24/2009 11:11 PM (GMT -7)   
Wow Valia.. that is judging A LOT of people!
The people on this forum have heard of a lot of reasons over the years of why we have CFS. Do you not think we might be holding off cheering until more comes out about it? There could be tons of different reasons. Please do not judge others.

Myself, I have not posted on it for tons of reasons.. I do not want to give myself false hope. Am I watching everything I can about it, OF COURSE!!! Am I hoping like crazy that they can find a cure, OF COURSE! Do I have to chat about it, NO, I don't.

So please, If you have something negative to say, keep it to yourself!

Have a great day everyone!
Love & Soft Hugs,
Stacy

Dx with: CFS '09...Fibro '02... Chronic Myofascial Pain '02... Gerd '03...Migraine Headaches...
Restless Leg Syndrome '08...IBS '99...Depression '99...
Early Menopause from Hysterectomy '00..removal of gallbladder '00 and appendix '08

Meds: Fentanyl Patch 75mg, Lidocaine Patch 5mg, Wellbutrin, Zoloft 50mg, Aciphix 40mg, Syntest, Darvoct as needed to help with RLS, Aleve & Tylenol as needed, B-12/5000mg &
Folic Acid/400mg


JHart
New Member


Date Joined Dec 2009
Total Posts : 1
   Posted 12/29/2009 1:04 PM (GMT -7)   
I agree shiffs... I have been suffering from this disorder since I've been fifteen years old. I've been hospitalized more than 8 times for my immune system being compromised because of this disease. It is real and it affects millions of people... Including me, on a daily basis. You should read and understand the causes and effects of this illness before you start talking about it.

merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 1/4/2010 10:45 AM (GMT -7)   
I will be getting tested for this virus as soon as the kit arrives. my doc says this is going to be huge for us!

the lab said medicare should cover the cost.

i will keep you posted.

by the way I usually post in chronic pain and lyme forums, but have CFS/FM as well.


hope you all have a good day.
melissa
Chronic Lyme Disease
Fibromyalgia

Chronic fatigue syndrome

Polycystic Ovarian Syndrome

Sleep Apnea

Hypothyroidism

Adrenal Fatigue

Type 2 Diabetes


FMsaddenedspirit
Regular Member


Date Joined Jul 2009
Total Posts : 236
   Posted 1/5/2010 1:00 PM (GMT -7)   
Hi all.. I normally post on the CP or Fibro board and come here every so often to see whats up and look for answers to my questions...

I to have been following this and am waiting for more info to come out before I get excited. .. its a big start for CFS finaly ..

now if we can just keep moving forward.

I read some Doc's are talking about using HIV meds... this I am not ecited about. they where made specially for HIV not CFS.. so I wait to see what happens next.. and pray .

Take care all..
Spirit ~
 
Fibro, Chronic Fatigue ,Anxiety ,( arthritis,, hands, feet, knees, back , neck )  , disk disease in neck with bulging disk , adhesions , Migraines, High blood pressure ,Gerd, IBS , Sever sleep apnea
Med's ,,,  fentanyl patch, Perc, Soma, anxiety meds, Ect.

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 09, 2016 2:47 AM (GMT -7)
There are a total of 2,735,214 posts in 301,284 threads.
View Active Threads


Who's Online
This forum has 151388 registered members. Please welcome our newest member, ebinease.
183 Guest(s), 3 Registered Member(s) are currently online.  Details
tidalmouse, magoo2, NiceCupOfTea


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer