Blood Test Came back indicating Chronic Fatigue?

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pennstate71
Regular Member


Date Joined Mar 2010
Total Posts : 90
   Posted 3/30/2010 8:59 AM (GMT -7)   
So my doctor is 90% sure I have Fibromyalgia, but sent me for all kinds of bloodwork to rule everything else out.  I just got the results today from the nurse, who didn't want to discuss them with me until I met with my doctor, but all she said was that the blood tests indicated I have chronic fatigue.  Is this what they mean by Chronic Fatigue Syndrome?  Or could it just be part of the Fibro?  I didn't know that could show up on a blood test so I was wondering what your experiences were and if anyone had this test?  I just don't know what I'm in for and also wondered if many or any of you also have Fibromyalgia or if it's one or the other?
 
I'm just really confused and don't get to talk to my doctor until a week from today at my appointment, but I'm seeing a pain specialist Friday and wish I had a better understanding of things.... Thanks in advance...

pennstate71
Regular Member


Date Joined Mar 2010
Total Posts : 90
   Posted 3/30/2010 12:19 PM (GMT -7)   
Oh - also (not sure if this is related) - but I had an adrenalectomy of my right adrenal gland about 4 years ago due to a cyst about the size of a baseball "taking it over". I have had my hormone's regulated and they come back normal - but I'm not sure if they are testing for the right hormones etc....

Post Edited (pennstate71) : 3/30/2010 1:24:27 PM (GMT-6)


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 3/30/2010 10:30 PM (GMT -7)   
There is no test for chronic fatigue, tests are run to rule out other illnesses or causes. The cause of CFS is still unknown. I'm not sure shy or how this nurse can tell you the tests show chronic fatigue. I'm curious as to what the doctor is going to say. If your doc says you have chronic fatigue because you tested positive for Epstein-Barr (EBV) you may want to get a second opinion because studies have ruled that out.

It is possible to have both CFS and fibromyalgia. Many people with fibro have fatigue but the fatigue with CFS is more severe. Many of the symptoms overlap.

Good luck with this and let us know what tests the doc used that show that you have chronic fatigue.

pennstate71
Regular Member


Date Joined Mar 2010
Total Posts : 90
   Posted 4/2/2010 6:08 AM (GMT -7)   
Well I didn't get to talk to the doctor yet, but I did get a lab check list yet and it was checked positive for EBV.  I have read both sides where they think it's still possible it can lead to CFS, MS, potentially Fibro etc. but there's no definitely physical proof.  The weird thing is I have Oral Herpes (get cold sores when I'm really stressed) - but EBV didn't show up before?  I've been really sick since January - boat load of symptoms and most days can't even get through the work day without laying down and sleeping or trying sleep.  Even fall asleep at my desk.  But I have a horrible time sleeping at night...some nights I only get 2 hours.  I'm also just physically exhausted.  Even the thought of getting up and going to the bathroom makes me tired.  It's like since I got really sick in January I've turned into a whole different person.  I'm only 26 and now all Iwant to do is be in bed...all the time.
 
In any case, I see a Pain management doc. today (I have severe IC and Pelvic Floor dysfunction as well as all over pain all the time) so I'm going to talk it over with him...then I see my regular doctor next Tuesday, but from there as you said, I may go see a specialist.
 
Thanks so much  for your response!

pennstate71
Regular Member


Date Joined Mar 2010
Total Posts : 90
   Posted 4/7/2010 8:02 AM (GMT -7)   
Well I got the final results and apparently I have CFIDS and Fibromyalgia.  The Fibro was diagnosed via tender points (all 18 - yep..blah) but the CFIDS was based on exclusion and symptoms.  I had chronic tonsillitis and swollen glands when I was younger until I had my tonsils out and even then continued to get sore throats, which I usually just attributed to post nasal drip - but then realized I have dry sinus cavities that get irritated, so there's really no "dripping" to cause irritation. Then apparently in December - March when I thought I had a really bad flu and just kept getting sicker and couldn't move for about a week - they believe this was my first big flare up.  A lot of other symptoms as well as the EBV - but the diagnosis wasn't based off of that. 
 
So anyways, that's just the update.  Now I'm trying to get into a Chronic Pain Rehab program since the pain specialist said there was nothing else he could do for me.  I just really hope I don't get a flare like that again - missing so much work and either sleeping all the time, or being too tired to move but not  being able to sleep. I'm still only at about 60-70%...I guess that's how it goes?  I don't know too much yet.
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