Sally, I have posted on another thread -- which I am going to read now, btw -- about chronic EBV. I have chronic Lyme disease (and Babesia -- a protozoa carried by ticks). I had believed that Lyme attacked my immune system and that is how my viruses reactivated -- I also have HHV6= Human Herpes Virus 6, another virus not related to cold sores or an STD.
I am also concerned about the possible cancer cause in HHV6.
Now, thru a lot of research, I have learned it is impossible to figure out what caused what: Did Lyme kick my immune system and cause these viruses to reactivate, or did I fall suseptible to Lyme because my immune system was already compromised by these viruses?
In my case, I really believe it is from the Lyme, as my tick bite was the beginning of all my symptoms. My Dr is currently treating the Lyme w/ heavy doses of Augmentin.
I am also scared about all that can happen because of these viruses and my Lyme Dr, who is an infectious disease DR specializing in CFS, MS, AIDS, and Lyme was not immediately concerned about the viruses. He has published papers on his research of HHV6. I could not understand it, because it was a medical paper, but Lyme, MS, and CFS were all mixed in there, altho I could not understand the relationships he was noting.
I am hoping upon hope that he believes kicking the Lyme will help my body kick the viruses. At this time, my depression and fatigue are nearly unbearable, so let's hope so. But I am very scared that I now have CFS and will never get well. I contracted Lyme over 3 yrs ago.
To others of you here w/ CFS. Maybe this has happened here before, so maybe you already know this, but a lot of folks on the Lyme board believe that all these diseases (CFS, MS, Alz, amongst others) are caused by Lyme disease. Some even believe all of these ARE Lyme disease.
I do not know about this, and I am not here to say this, but from what I do know, getting some testing for Lyme disease should be included in all diagnostic tests. Unfortunately, Lyme tests are pretty inaccurate, however, there are no false positives except in the Elisa which is only about 30% accurate.
But if anyone here suspects this could be possible, there's a lot of info on the Lyme board.
I am certainly not here to preach about Lyme -- I came here w/ questions about EBV
To those w/ OCD -- I don't think I have this, altho on and off I do latch onto a subject and obsess a little while. But I no longer have the energy to do all the cleaning and chores that I used to do. I live w/ dogs and have given up having a clean bed and clean house -- I just can't do it, plus work.
Anyone else's experiences?
Sally, (and everyone else), I am sorry about the reasons you find yourself here. I hope you find all of your answers!