are there any meds out there?!

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justme_05
New Member


Date Joined Feb 2005
Total Posts : 1
   Posted 2/19/2005 5:42 PM (GMT -7)   
   Hi, I was just wondering if anyone had any information about medications or herbs that would be helpful in coping with CFS.  I personally have tried a couple of sleeping pills including Ambien, but I don't like the feeling I get before I pass out from taking it.  Also i've tried drinking a tea to help me sleep, though that doesn't help at all.  I'm at a loss of what to do to try and sleep and to just feel better. 
   I have only been diagnosed with CFS for about a year now and I have not found anything or anyone that can help me.  If anyone has any info or silly little quarks that seems to help them with the symptoms of cfs, it would be so great to hear from you. 
   Thanks for your time! :-)

lymegirl
Regular Member


Date Joined Feb 2005
Total Posts : 34
   Posted 2/19/2005 8:37 PM (GMT -7)   
I would be really interested in that info. too. Are there any diet changes I can make....Anything I can do?
Lymegirl


Brynn
Veteran Member


Date Joined Mar 2003
Total Posts : 1663
   Posted 2/20/2005 6:54 PM (GMT -7)   
Hi lymegirl and justme,
Welcome to HealingWell and the CFS message board!
 
Unfortunately there just isn't anything that helps everyone.  The best way to treat CFS and it's related illness, Fibromyalgia Syndrome, is to treat your symptoms, as best you can, any way you can.  This means paying close attention to each of your unique symptoms, what makes them worse or better, how they interact with each other, and one at a time trying different treatments for each one until you find one that works.  Start with the symptom that either bothers you most, or is the most disabling (not always the same thing ;-)).
 
And let me stress:  One At A Time!  Because if you go and take something to help you sleep, say, and something for depression, and maybe something for aches and pains, all at once for the first time, and then you get this weird and disturbing side effect--how do you know which treatment caused it.  And this goes for alternative treatments as well as OTC and Rx medication, as well as physical therapy, exercise class, therapeutic massage--everything that can be considered a treatment.  So for example, try a treatment for sleep, and if it doesn't work or has undesirable side effects, try something else, and keep trying one thing at a time, until you find something that works for sleep. THEN work on finding a treatment for depression (for example).  Depression is one of the most frustrating symptoms to try to treat, because antidepressant medication is notoriously intolerable by the majority of people who try them, any of them.  And it takes anywhere from 3 weeks to 2 months for them to start to work.  So if you can tolerate the medication, you still have to take it long enough to know if it's going to help your depression, before moving on to try another one, if it doesn't.  Many people with CFS/FMS have tried many different antidepr--however, many have eventually found one they can tolerate and that works!  And THEN (for example) once you feel stablized on those 2 treatments, move on to treat your aches and pains.  Once you know what to expect from each treatment, you can take them all at the same time.
 
So please keep in mind that all of the above are just examples.  YOU might actually find fatigue is your most disabling symptoms, and want to work on it first.  And/or you may have other symptoms I did not mention.  So treating CFS is all a very individualized effort.  That's why it's so important to find a Dr with whom you have, or may potentially build a good working relationship or rapport.  In my opinion, this is more important than the Dr's training, knowledge or understanding (or "belief") of CFS.  I have found most Drs are quite willing to read legitimate info I bring them to read, and if they are in agreement with it, even to prescribe meds or other treatment based on the info, even if it's something that is news to them.  And I've often found that Drs who are completely knowledgeable and up to date with current researach, are often inflexible--they have personally adopted a treatment standard and aren't willing to try something else, even if I have brought them valid info about it!
 
Please feel free to read through this message board.  There is a wealth of info here.  If you're just starting on your CFS journey, you might plan to run a search on each symptom, worst and most immediate concern first.  If you're scientifically inclined at all, there are plenty of medical journals which you can search through via your local medical library (if there's a medical school in your community).  But if not, you can still find a lot of info in newstand magazines, which can be searched at a regular library.  Then after you get through your first search for info, read all your articles, if you still have questions, or just need clarification on something you read, feel free to go ahead and post your questions here, and we'll try to answer them.  Also, try your local bookstore or library, there are all kinds of books written on CFS now!  [And in a shameless plug -- Try the HealingWell bookstore, called Wellness Books, click on anything that says "Bookstore" and you'll be taken there.  A small portion of proceeds goes to maintain HealingWell!]
 
Hope some of this info helps.  Please feel free to let me know if you have any questions :-)

Brynn
 
*Co-Moderator for Chronic Pain forums
*Moderator for Chronic Fatigue forums
*Temporary Co-Moderator for Fibromyalgia forums


lymegirl
Regular Member


Date Joined Feb 2005
Total Posts : 34
   Posted 2/23/2005 2:48 PM (GMT -7)   
Wow, thank you. I'll work on that! Would anyone be interested in trying to organize a CFS chat?
Lymegirl


Brynn
Veteran Member


Date Joined Mar 2003
Total Posts : 1663
   Posted 2/24/2005 6:41 AM (GMT -7)   
Hi Lymegirl,
I can't even get members to stick around long enough on this board to have a decent thread. And it takes a good base of regular members for enough to make a decent chat. However, I moderate on 3 boards, and am asking around other moderators of some of the other smaller boards, if they want to go on together on a scheduled chat. (They all have pain and fatigue as symptoms.) Among several small boards, we could probably get up a good chat!

I'll be sure and post an announcement here, as soon as I get one scheduled. Thanks for asking :-)
Brynn
 
*Co-Moderator for Chronic Pain forums
*Moderator for Chronic Fatigue forums
*Temporary Co-Moderator for Fibromyalgia forums


lymegirl
Regular Member


Date Joined Feb 2005
Total Posts : 34
   Posted 2/26/2005 4:26 PM (GMT -7)   
Sounds great, thanks
Lymegirl


snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 2/27/2005 9:37 PM (GMT -7)   

I would certainly be interested in a CFS chat Brynn - I am always still lurking, I usually check here when I log on to the Crohnies - eyes  the only problem for me would be... yes, you've guessed....will I manage to stay awake for the scheduled chat time ? ! tongue

One idea I was playing with, was getting the "ailment histories" of various friends and relatives I know who have suffered from CFS, and posting them here individually. The stories I know of are all unique, but seem to have many common threads, and would I'm sure be of interest to anybody seeking info on what they may have. Unfortunately I've  been concentrating what energy I have on the CDers, and have been neglecting everything else.

eyes  I'm sure you know the problem Brynn...too much world, not enough "me"....!  yeah    


Brynn
Veteran Member


Date Joined Mar 2003
Total Posts : 1663
   Posted 3/1/2005 11:24 AM (GMT -7)   
LOL!!
ROFLOL!!!
I know you're in Scotland, snohare. What times would work best for you? Maybe we could schedule it during your awake time ;-) Just be sure to tell me what time zone you're in so I can calculate the equivalent times for other zones. Thanks.
Brynn
 
*Co-Moderator for Chronic Pain forums
*Moderator for Chronic Fatigue forums
*Temporary Co-Moderator for Fibromyalgia forums


snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 3/1/2005 5:28 PM (GMT -7)   

Well, at the top of every post I see it gives a time and then it says "(GMT -7)"; so I'm ahead of you guys. (Actually, given my life history, it is more likely that I am 17 hours behind than 7 ahead. eyes )

A further slight problem may be that I have a "Night Owl" cheapo internet access package which is only cheap between 2200 and 0800 (my time); but for evenings chats at least that's no big obstacle, I tend to be coming online as you guys get home for tea. (After midnight I turn into a pumpkin-shaped computer nerd. At dawn's first rays I give a fearsome scream and rush away to a darkened room.) 

Thursday nights are out, that's when I do voluntary work, but otherwise I'm always home.
nono   I know, I know, I need to get out more, get a life, meet people....or failing that, do some darn housework and hoover the floor to stop it crunching. eyes  What can I say ? My houseplants are thriving, and people just don't realise how much effort it takes to fight a whitefly infestation in a closed ecosystem...)
  skull   I found a (actually, the ) ladybird lying dead in my kitchen this evening.  sad Durn, I knew it was overeating. Now my only helper's deid, looks like times are about to get hard again... yeah   

cfsintennessee
New Member


Date Joined Mar 2005
Total Posts : 3
   Posted 3/7/2005 7:09 PM (GMT -7)   
Have you tried Provigil?  It is expensive unless you have insurance but it has really helped me. :-)
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