Have i possibly got chronic fatique syndrome?

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Charlie 2
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Date Joined Oct 2004
Total Posts : 138
   Posted 3/8/2005 3:26 PM (GMT -7)   
I'm probably just fussing but i thought i could ask you lot if i might have this.

I have recently become very tired most of the time. I always fall asleep on the bus. I find it extremely hard to get up in the mornings. I feel vv.tired in my college lessons. I use to swim twice a week and go to the gym, i use to do about 100 lengths in an hour. Now i hardly ever go, when i do i struggle to do more than 30 lengths.
Once i'm home i do a paper round, i use to run round it, now i can only walk. If i sit down at home at any time i normally fall asleep and have difficulty getting up and motivating myself at anytime. This includes college work, i haven't been able to do any homework about a month, i just can't motivate myself.
I'm sure i'm just fussing, but it would be good to have an opinion.
Thanks

cfsintennessee
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Date Joined Mar 2005
Total Posts : 3
   Posted 3/9/2005 11:08 AM (GMT -7)   
of course...this is just my opinion...but when I am really having trouble with my CFS...I can not sleep...I am tired and sore and can hardly go...but I also...can barely sleep eyes

Brynn
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Date Joined Mar 2003
Total Posts : 1663
   Posted 3/10/2005 1:45 AM (GMT -7)   
Charlie 2 and cfsinTN,
Welcome to HealingWell and the CFS message board!
Well, if you do a bit of research on CFS, Charlie, you will soon learn the typical symptoms. One of the most important factors in getting diagnosed, is to have symptoms for longer than 6 months. If your symptoms have only been occuring for less than 6 months, you might want to see your Dr. There ARE some treatable things that can cause this.

Glad to meet you both, and please feel free to post as often as you like.
All best.


Brynn
 
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*Temporary Co-Moderator for Fibromyalgia forums

Post Edited (brynn) : 3/21/2005 1:25:02 PM (GMT-7)


snohare
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Date Joined Oct 2004
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   Posted 3/11/2005 6:49 PM (GMT -7)   

Well, both you guys sound just like I've been in the past ! yeah

At the moment I'm sleeping virtually all the time. I have difficulty summoning enough energy to stand upright - even when I do get on my feet I tend to have peroiodic "droops" where all my back muscles seem to just lose energy and my shoulders sag. (I usually look for something to lean on.) Things are looking up though - yesterday I managed to stay on my feet for about three hours, and the same again today.

Oh for the days when I used to bemoan the fact that "I only managed to dig thirty yards of ditch today" or fell forty trees, or build not-quite-two cross drains. sad

nono  But as I was snoozing to the sound of my downstairs neighbours thumping bass music this afternoon, I was sleepily reflecting how much nicer it was to be able to sleep too much and at least wake up with a little bit of energy for a little while, than the "good old days" when I was too tired to even sit in a chair but had horrendous problems trying to sleep...and would even wake up more tired than when I went to sleep ! eyes Eternity itself spent sleeping does not seem to have enough hours to overcome such fatigue. I'd guess this is your situation, Tennessee. In which case you may be glad to know that I know a fair number of people who have been through this, and come out the other side. It can go away. yeah

When I first started suffering from chronic fatigue, I was extremely active with cycling, ski-ing, backpacking, running etc. The first symptoms I noted were a tendency for my body to over or under heat during exercise - I sweated and chilled more drastically. The other tell-tale sign was that I started to take much longer to recover my energy after any activity. But in between these bouts of severe fatigue where I had no energy at all, I had whiles of almost normal energy levels.   eyes During which I tried to get as much done as possible, to make up for lost time...boy, that was a mistake. yeah

Eventually as time went on and I kept on trying to ignore my fatigue, it encroached more and more on my life, I became very depressed, and eventually the fatigue was more or less constant and severe, as opposed to episodic.

Nowadays, in retrospect, I would say that my food intolerances had a huge amount to do with the severe "can't move, can't sleep" fatigue. In fact I call this sort of scenario "instant starvation" and usually try to overcome it by resting in bed if neccessary - not trying to sleep, just lying listening to music is as good - then eating a cooked, protein based meal afterwards.

Generally, I find that I will then have a relatively high level of energy for a few hours, until the nutrition wears off.

So why don't I have any energy just now, if I have it sussed, I hear you ask ? ( tongue   Good question. yeah )

Because I have Crohn's Disease - which is probably the root cause of my Chronic Fatigue - and when my gut is particularly badly inflamed, it does not absorb nutrients well. Eating makes me ill, and I have to balance the trade-off between improving fatigue and worsening other symptoms.

  nono But that's just me. Lupus, Fibro, MS, and a whole host of other auto-immune disorders can cause severe fatigue, not to mention viruses, infections of almost any sort, thyroid problems etc.

So as Brynn pointed out Charlie, it would be a good idea to see a doctor. IMHO, preferably a rheumatologist (specialist in inflammatory diseases) as they tend to be much better at diagnosing fatigue related disorders. The road to diagnosis I'm afraid is generally long and full of educated idiots. eyes Most doctors are not inclined to consider fatigue a "serious" problem - right, Tennessee ?

Hope this helps....


Ralph
Regular Member


Date Joined Aug 2004
Total Posts : 139
   Posted 3/12/2005 7:22 AM (GMT -7)   
I know someone who suffered from Crohn's. I remember him being off work for months at a time. He was in his 30s at the time and he had a very active and stressful job in marketing.

This was about 20 years ago, and I know he recovered and is still living a very active and busy work life. I know he eats and drinks anything he wants, and seems to be completely cured. What could have happened.?

He now lives in Toronto, which is a long way from me and I have lost touch. I havbe always wondered what cured him.

Snohare, Is there a cure for Crohn's ?

Brynn
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Date Joined Mar 2003
Total Posts : 1663
   Posted 3/12/2005 9:08 AM (GMT -7)   
Hi Ralph,
Well, I'm sure snohare will be glad to reply when she wakes up! LOL!!

But meanwhile, I'll have a go at answering. I don't know that much about it, but I do know that autoimmune diseases frequently behave as relapses and remissions. (Remission means the disease goes away for some time, sometimes mysteriously, sometimes resulting from successful treatment; and when it recurs, it's called a relapse.) So it could be that he's been in a long period of remission. And also the severity of the disease may vary, so that maybe he had severe symptoms many years ago, but now has more managable symptoms. And I also know that sometimes the disease damages the intestines so badly that the intestines, or portions of it, have to be surgically removed. So another explanation might be something like him having surgery which removed so much diseased tissue, that his body was able to overcome any remaining disease (which would then send him into perhaps a long remission). Or yet another explanation, perhaps some great drug has been discovered that works well for him?

Also, there's a VERY active Crohn's Disease forum here at HW. I'm sure you would be welcome to ask them as well :-)
Brynn
 
*Co-Moderator for Chronic Pain forums
*Moderator for Chronic Fatigue forums
*Temporary Co-Moderator for Fibromyalgia forums


Ralph
Regular Member


Date Joined Aug 2004
Total Posts : 139
   Posted 3/12/2005 2:01 PM (GMT -7)   
Brynn

Snohare should be awake by now or HE has slept the day away. I guess if you are tired or fatigued, that is what happens, I assume.

I must have come accross as ignorant in my above contribution. However I do know what remissions and relapses are, as I am of a certain age that has made me aware of many subjects. Chron's Desease is not one of them.

Since I suffer from depressions, ( periodic episodes ) relapsing is what I call my "tumbling into the depths of despair" only to recover months or weeks later to live a normal life. I guess I am in a period of remission.

Thanks Brynn for your help.

Brynn
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Date Joined Mar 2003
Total Posts : 1663
   Posted 3/13/2005 1:46 PM (GMT -7)   
You're welcome, Ralph.
No disrespect intended. I have a tendency towards details, and sometimes, not knowing the knowledge and experience of a member, I present too many!

Yes, snohare did mention that she is going through a "sleeping for days on end" phase. Winters often tend to trigger such, in suceptible individuals. (No offense if you already knew that.)
Brynn
 
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Ralph
Regular Member


Date Joined Aug 2004
Total Posts : 139
   Posted 3/13/2005 9:10 PM (GMT -7)   
Brynn

I'm starting to worry about snohare. I was sure he would come on this thread by now. It is Sunday 23:10 here in Montreal.

confused

snohare
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Date Joined Oct 2004
Total Posts : 2088
   Posted 3/14/2005 4:56 PM (GMT -7)   

:-)  Aw shucks Ralph ! Thanks ! You know you've got a new friend when you are humbled by someone's concern for you... yeah

I'm not managing to get online everyday at the moment, not least because of brain fog. Saturday morning I felled and dug out a cypress in someone's garden, just to see if I was fit.

nono Judging by the way I felt later that day, probably not. eyes  But my energy levels are rising,   v   e   r   y    slowly.

BTW, 'fess up. You're calling me "he" because you're always wondering what's happening with the lassie across the street that I said I was interested in, aren't you ? yeah (Of course Brynn wouldn't have read that post.)

devil  Before your jaw drops too far and hits the floor, don't worry, you were right. yeah Sadly, a Valentine's Day planter tub full of flowering crocuses, irises, hyacinths, daffodils etc, were not enough to do the job. Or maybe the  accompanying 28 verses of doggerel were overdoing it ?  confused  (You could say she was "a verse" to me. sad )

Ah well, all part of life's rich tapestry. You don't get light without shadows. cool


Ralph
Regular Member


Date Joined Aug 2004
Total Posts : 139
   Posted 3/15/2005 5:28 AM (GMT -7)   
I was hoping you would return from the sleepy.

Subconciously, I was "rooting" for you. (Puns are not my thing) If you look back I was asking about the typical manifestations of Chrohn's as I have an aquaintance who seems to be over it.

I guess I should be asking you this on the other board. yeah

Paulad
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Date Joined Jul 2003
Total Posts : 1122
   Posted 3/16/2005 2:35 PM (GMT -7)   
Hi Ralph,

I am from the Crohns board and was checking out this site for info on Chronic Fatigue.

Hey Snohare, wassssup!

Brynn actually answered you very well. We have what we call flares and remissions. When the bowels are inflamed or have fistulas (ulcer like sores) we are in a flare. We are treated with meds such as steroids and immunosuppresants and can achieve remission with these meds. When remission cannot be achieved then surgery is the next step. The stats are 75% of people with CD will have surgery in there lifetime. Surgery can also put us into remission. The biggest problem with Crohns is everyone is different. I for instance have only had problems with inflammation and never fistulas. I have had to have surgery to remove 12" of diseased bowel while others have had many surgeries or none at all. It is a very individualistic disease which I think is also why it is so hard to diagnose and treat. I am what is termed surgically induced remission and the docs estimate I will get 3-5 years with relatively mild symptoms. I am on year 3 now and hoping for more.

This is very generic but I hope it helps and I hope your friend is enjoying a long remission.


 
 


linc
Regular Member


Date Joined Mar 2005
Total Posts : 47
   Posted 3/20/2005 1:32 PM (GMT -7)   
Hello Charlie 2.

If you have not had a complete physical in awhile, I would reccomend that you start there.
You are in college i take it? If you're living on campus in a dorm, there are a number of ills that can befall students in an enclosed
environment. If you are off-campus and living on your own, or getting out alot into the fresh air each day, then that's a different thing.

CFS will knock you plum out and off your feet. You won't feel like 30 laps let alone 3.
But, if you are just in the beginning throes of this illness, you would do well to commit to the multiple physical tests that need to be
ruled out first, to obtain a proper diagnosis.

Also, ask questions of the physician/s with whom you are dealing, to see what, if anything they know about CFS... and or, if they have any or
are treating any CFS patients. It helps to educate yourself as extensively as you possibly can. HealingWell has a CFS Resource Center here, and that's a good start.

I have had CFS, FMS, CMPD, for 27 years. I also have Arthritis, Herniated Disk Pain, and Asthma. Each of these disorders/illnesses was diagnosed individually over a period of
time,including five separate trips to the Mayo Clinic. My CFS was a direct result of a flu vaccine years ago that the government was pushing. I am in the viral sub-set of CFS patients, and as such... suffer on-going viral flares that are really tough on the system.
I just got through viral pneumonia and the subsequent mycoplasma infection that followed.


You need a good physical first.
Then, if nothing is found, ask them to dig a little deeper. See what tests they will run for you based on your suspicions of possible CFS.
They may be a pain in the rear to schedule in, and actually complete ... but they're necessary if you actually believe that you have this disorder.

sincerely,
linc

Brynn
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Date Joined Mar 2003
Total Posts : 1663
   Posted 3/21/2005 1:44 PM (GMT -7)   
Thanks linc.
Good advice!
I sure hope Charlie is ok (and not seriously ill), and eventually returns to read it :-)

All best.
Brynn
 
*Co-Moderator for Chronic Pain forums
*Moderator for Chronic Fatigue forums
*Temporary Co-Moderator for Fibromyalgia forums


Brynn
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Date Joined Mar 2003
Total Posts : 1663
   Posted 3/21/2005 7:55 PM (GMT -7)   
OK!
Snohare, since your last post in this thread, I have re-read every last message I have ever read of yours (those on this board), to try and figure out how I had the impression you're female (which you're apparently not). And just to be clear, I did not read the message you referred to about the woman across the street. I didn't find any clues in the posts. And there's no way to search out ALL your messages, so if the discussion occurred on another board, I can't find it. But I also seem to recall a brief exchange of emails, way back when you first joined, regarding "female problems", however my computer crashed on Dec 1st 2004, and I lost all my old email. So I couldn't confirm whether we actually had such a discussion, or whether the discussin was with someone else.

BUT! I did find a message where you had mistaken me as male (which I'm not). So I guess one good turn deserves another! LOL!! And such is life on the old bb!! Just glad to be friends, one way or the other :-)
Brynn
 
*Co-Moderator for Chronic Pain forums
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*Temporary Co-Moderator for Fibromyalgia forums


Charlie 2
Regular Member


Date Joined Oct 2004
Total Posts : 138
   Posted 3/22/2005 12:03 PM (GMT -7)   
Thank you for all your advice everyone!!!!!
I have been thinking about it alot lately and i have come to the decision that it is probably my anxiety and depression that has made me soooo tired. It's been good to have all this support though, thanks!!
:-)

Brynn
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Date Joined Mar 2003
Total Posts : 1663
   Posted 3/22/2005 12:15 PM (GMT -7)   
Well, not sure if that's good news or not! LOL!!
But I do wish you all the best, and hope you can find treatments that work, and that you get better, one way or another! Take care :-)
Brynn
 
*Co-Moderator for Chronic Pain forums
*Moderator for Chronic Fatigue forums
*Temporary Co-Moderator for Fibromyalgia forums


linc
Regular Member


Date Joined Mar 2005
Total Posts : 47
   Posted 3/23/2005 2:32 PM (GMT -7)   
Well, I'm with Brynn here... not sure if that's good or bad news... BUT... ongoing depression and anxiety are nothing to
fool around with either so, if symptoms persist longer than say... six weeks or so, go see a doc about it, ok?

And we're here for ya regardless. :) Hang in there!!

and P.S.
guys are notorius for NOT going to seek out medical help/physicals... at least all the ones immediately surrounding me anyway,
so if it's been awhile since you've actually HAD a physical, they don't take that long to do & maybe consider one???? Ok, I'll quit now.
Don't want to nag. tongue
Courage is not having the strength to go on ... it is going on, when you no longer have the strength. - source unknown -HeartSpaces
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Charlie 2
Regular Member


Date Joined Oct 2004
Total Posts : 138
   Posted 3/23/2005 3:13 PM (GMT -7)   
My names actually charlotte, but that name was already taken, so had to use Charlie!!!! Haha. LOL
But thank you for your advice. I've been suffering from anxiety for about 5 months now. I have been to the doctors, but they weren't much help. I'll go back again if things get worse.
Thanks for all the support.
tongue

linc
Regular Member


Date Joined Mar 2005
Total Posts : 47
   Posted 3/23/2005 3:25 PM (GMT -7)   
Oh geeeze...
Imagine my red face... tsk...tsk...tsk... I guess between Brynn & myself, we really are putting
ya'll through some real gender crises' of late! :lol: :lol:

Sometimes I'm a little slow on the uptake Charlotte :)
Hope you'll forgive my assumption.

Glad to hear that you'll consider going back if it continues though.
Sometimes we don't take our emotional symptoms seriously enough & I know that
the right dr. can help sort things out and maybe help.

tongue
and keep hopeful that things will improve!!
Courage is not having the strength to go on ... it is going on, when you no longer have the strength. - source unknown -HeartSpaces
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snohare
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Date Joined Oct 2004
Total Posts : 2088
   Posted 3/23/2005 5:16 PM (GMT -7)   
tongue  Well I like to think that it's my caring, sharing, touchy-feely, happy-huggy, warm, fuzzy sensitive New Age Man side that makes people think I'm female....not the fact that I'm chronically low in testosterone.    
eyes  And I actually prefer that people not realise I am a typical bachelor slob who does not hoover his floor until it crunches beneath his feet, and thinks of dusting as something done to weevil-prone crops by light aeroplanes.
So it's pity I've been found out Brynn, but as you say it is poetic justice.
I don't know if you guys are familiar with the term in America,  to make "a right proper Charlie" of someone....this mix-up brings a whole new dimension to that phrase. yeah
  nono   I'm not even going to ask linc if that name is short for "Lincoln" or "Linnette C..."
devil  Sufficient unto the day, the evil thereof...!

Brynn
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Date Joined Mar 2003
Total Posts : 1663
   Posted 3/24/2005 1:38 AM (GMT -7)   

     ROTFL!!!       LOL!!       LOL!!      LOL!!!

ROTFL!!!      LOL!!!          ROTF LOL!!

Hahahaha!     aaaaaaaahhhhaaahhaaahaaa!!!!

Splitting a gut laughing out loud!!!    (SAGLOL?????!!)

HHAAAA-HA-HA-HAHAHAHAHA..........

(wish I knew how to put those really goofy kind of smilies in a message, but oh well, just know that I'm getting the biggest laugh I've ever had at HW!)

Sorry snohare, if I revealed a secret.  It wasn't really meant to be all that humorous.  It's just the tone of the messages which followed crack me right up!!  Hahaha-aaaaahahaaahaha

To be honest, I originally guessed you might be male.  But then there was some reference to female issues, to which you replied in such a comfortable manner, and I just seem to recall that you initiated it.  So I then concluded you must be female, and like me, obsessed with science (which is stereotypically not a female interest).

Well, well, well....  Whew, that laugh exhausted me!  LOL!
Take care everyone  :-)


Brynn
 
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* Moderator for Chronic Fatigue forums

Post Edited (brynn) : 4/8/2005 6:57:55 AM (GMT-6)


Akram
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Date Joined Feb 2005
Total Posts : 616
   Posted 4/7/2005 12:13 PM (GMT -7)   
You guys are really funny and i like this thread a lot. to add to the confusion i always thought snohare is female as well , so we have something in-common brynn. and the second thing from your name and vast knowledge brynn i also thought your male ( no disrespect for female knowledge here lol ) .

Well i feel also like charlie here, i seem to lack something as well , not sure if its energy or related to CFS or not but its certainly not normal. i have great problems convincing myself to wake up from bed every single day, i sleep between 10 to 14 hours a day and sometimes upto 18-20 hours when i feel really down, and when the time comes for me to sleep i am tiered but can't sleep without wasting few hours at bed just trying to sleep.

for some reason i feel i can relate to What snohare said about getting energy gradualy and slowly durring the day , i don't know if i suffer from CFS or not, but please describe to me what you have to deal with everyday, i used to like playing sports now i push myself to do something every 1 or 2 weeks and i generarly feel my fitness is very low when i compare it to other people, often older than me or even the overwieght put my fitness me to shame sometimes. I can't beleive this i am 31 years old and i feel fatige when running in the bycle class before a lady 55 years of age does. she says she's bin a few weeks before me in the gym but i still feel something is wrong i considered myself to be an athletic person at one poin in my life, i used to play soccer 3 times a week , and aerobics 3 times and some wieght lifting. sometimes i feel i am getting older age symptus earlyer than i am supposed to.

I might go see a doctor but i'm already seeing a psyciatrist right now to work on my past addictions ( Internet games addiction ) now i still have to work on my deppresion as well and i am confused how many types of doctors i need to see to fix myself lol , i decided to come here and read about CFS because a number of people seem to visit our deppresion forum who have CFS as well with insomnia and i thought it's good to read and get some feed back here it might help me you never know right.

thanks for any help :)
                                                     To be or not to Be


j c s
New Member


Date Joined Apr 2005
Total Posts : 1
   Posted 4/7/2005 11:30 PM (GMT -7)   
i dont think you have cronic fatige syndrom i think you are just laying around to much get up and start with a slow walk and time yourself each day till you can inprove to better your time any questions let me know

Brynn
Veteran Member


Date Joined Mar 2003
Total Posts : 1663
   Posted 4/8/2005 5:38 AM (GMT -7)   
Hi Akram,
Welcome to the CFS forum!
Well, rather than recite the many signs and symptoms of what is recognized as Chronic Fatigue Syndrome, aka Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS) in the US, and Myaglic Encelphal-something (ME) in the UK and much of Europe, which could take quite some time, I will refer you to a handful of websites which can do a much better job explaining it than me. Please see the links below.  Anyway, in general, one must have fatigue which interferes with one's typical routine, fatigue following exercise which is completely disproportionate to the amount of exercise, for longer than 6 months, to receive the CFS diagnosis. There are many, many more other symptoms, though, so do refer to this other info:
 
 
 
 
 
 
Your confusion is typical, so please don't feel badly. In the early days of the recognition of CFS, there was a rather burning controversy, that is was really Depression. But research has shown that it is absolutely not depression, but a distinct illness, in which depression is either a symptoms, or secondary result of the drastic change in lifestyle which ensues(sp?).

J C S, welcome to you as well!
What makes you think Akram does not have CFS? I really don't think he/she (omg, let's not start this again! LOL!!)--I don't think Akram has really revealed enough info to make a guess about diagnosis one way or the other. Akram's inability to get out of bed may be a symptom of depression OR a symptom of CFS. In any case, the info I posted should help him/her decide what to do next.

Glad to meet you both, and welcome aboard!

Brynn
 
* Co-Moderator for Chronic Pain forums
* Moderator for Chronic Fatigue forums

Post Edited (brynn) : 4/8/2005 6:53:14 AM (GMT-6)

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