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ltlgirl
Regular Member


Date Joined Apr 2005
Total Posts : 57
   Posted 4/10/2005 1:41 PM (GMT -7)   
Hey Guys I have Lyme disease but I can't help but see so many people with other diseases that have so much in common with those that have Lyme

Check this out, taken from the Lyme Foundation, " large numbers of patients are being routinely misdiagnosed as having other illnesses such as Chronic Fatigue Syndrome and Fibromyalgia. Moreover, Lyme disease can mimic numerous other maladies. It has been known to present as Multiple Sclerosis, ALS and Parkinson’s disease. Additionally, those diagnosed with Lupus, Rheumatoid Arthritis, Depression and Attention Deficit Disorder also should consider the possibility they may have Lyme disease. Leading researchers are finding strong evidence that the Lyme bacteria (Borrelia burgdorferi) is responsible for a significant amount of mental illness, including those disorders that present as Schizophrenia, Bipolar Disorder and OCD. New evidence is even pointing to a possible link between Lyme disease and Autism" this is why Lyme is being called the "Great Imitator" disease.
 
Take a look at this list for Lyme Disease/co-infections:
Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Headache
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Tremor
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol
 
If you think you have even a few of these you may actually have Lyme disease/co infections like erlichiosis, babesiosis etc. I myself had practically all of them and now I am almost symptom free. You do not need to have had a bulls eye rash or even have alot of these symptoms everyone has variations in symptoms. some have almost none. If you have any questions/comments don't hesitate
 
 

Brynn
Veteran Member


Date Joined Mar 2003
Total Posts : 1663
   Posted 4/10/2005 5:47 PM (GMT -7)   
Hi ltlgirl,
Welcome to the Chronic Fatigue forum!
Lyme Disease testing should be included in the diagnosis of both CFS and FMS. But I imagine it is often overlooked. I know I was tested for Lyme. If anyone is concerned, can't they just ask their Dr to be tested?
Brynn
 
* Co-Moderator for Chronic Pain forums
* Moderator for Chronic Fatigue forums


ltlgirl
Regular Member


Date Joined Apr 2005
Total Posts : 57
   Posted 4/11/2005 7:43 PM (GMT -7)   
Yes but I found out the hard way that Lyme Disease and other co-infection testing in a standard lab is very innacurate. I myself was tested for it twice one in a standard lab by a standard doctor (not a lyme specialist) and the other with the specialist through a specialized lab like Igenex in Palo Alto, California. The first test was negative and the second positive which is how I got a diagnosis for my illness. Unfortunately not too many 'average' doctors know too much about Lyme disease and how unreliable testing is. If someone suspects that their symptoms look like Lyme, I strongly urge them to seek a Lyme specialist or at least a Lyme literate doctor.

backwardbob
New Member


Date Joined Apr 2005
Total Posts : 1
   Posted 4/12/2005 10:09 AM (GMT -7)   
:-)  don't know about the resof you ,but i have a lot of these symptoms too.Except for the testicles,there fine and dandy.I was looking for what cf was and this lymme deisase problem fits the bill.Iam always tired stiff joints,ect.Who knows .i have a dr appointment tommrow and this is one test i surly am going to ask for.backwardbob

ltlgirl
Regular Member


Date Joined Apr 2005
Total Posts : 57
   Posted 4/12/2005 10:23 AM (GMT -7)   
you can actually request a kit for testing from the Igenex website (a kit will be sent to your home and you will need to go to wherever you get blood drawn but you have to do it through your doctor. if your ins. unfortunately does not cover the cost for this test, you will have to pay for it but it is the best investment you will ever make; I know I have no regrets) www.igenex.com

and if you need to find a specialist go here- Lyme Disease Association http://lymediseaseassociation.org/Doctor_Referrals.html
or you can call 888-366-6611

for more information on latest news on Lyme visit the International Lyme and Associated Diseases web page http://ilads.org

Post Edited (ltlgirl) : 4/13/2005 1:12:39 PM (GMT-6)


rockypoint
New Member


Date Joined Apr 2005
Total Posts : 11
   Posted 4/19/2005 11:02 AM (GMT -7)   

 

backwardbob said...
:-)  don't know about the resof you ,but i have a lot of these symptoms too.Except for the testicles,there fine and dandy.I was looking for what cf was and this lymme deisase problem fits the bill.Iam always tired stiff joints,ect.Who knows .i have a dr appointment tommrow and this is one test i surly am going to ask for.backwardbob

(Moderator's Note:  HW doesn't allow for promoting doctors in the forums.  But the link provided by ltlgirl in the message above is fine, and will contain all the info one might need, to find a "Lyme-literate doctor".

Post Edited By Moderator (brynn) : 4/22/2005 2:43:04 PM (GMT-6)

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