Not sure, depression or fatigue...

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Flaminguts
Veteran Member


Date Joined Dec 2004
Total Posts : 962
   Posted 4/10/2005 3:53 PM (GMT -7)   
Well here we go,
 
   Ive had a lot of issues with motivation and energy lately. I had major surgery on Jan 25th, for Crohns- a big old piece of my innards just had to go. I am wondering if chronic fatigue syndrome is something that is related to illness/ injury or if this is just a different monster all of its own.
 
I am so mad! My favorite pick me up in the world was those darn ephedra diet pills. I swear to god if I was having a bad day energy wise, thos eused to perk me right up. Now I just have to guzzle caffiene. Can doctors give you ephedra pills legally, or are they 100% illegal. I wish that I could have these things to get back into my normal groove again and I hate having to whine to my doctor that I am all F'ed up and need more pills.
 
I love it " hey doc, got crohns, crap myself 24/7, need drugs." "Hey doc, got an infection cause of the meds for crohns" "Hey doc, Im depressed, cant get off my butt" "Hey doc..... tired all the time, cant sleep at night, cant move during the day.... blah blah blah"
 
Okay, Im done. That was my rant for the day. Im sick of feeling like crap. mad
"History does not long entrust the care of freedom to the weak or the timid"
 Gen. Eisenhower


Brynn
Veteran Member


Date Joined Mar 2003
Total Posts : 1663
   Posted 4/10/2005 8:31 PM (GMT -7)   

Hey D,
Welcome to the CFS forum!

I hear your frustration yeah , really I do!  Whether you have CFS or Depression, I couldn't say.  It is a fact that people who have CFS are more likely to have an autoimmune disease (such as Crohn's), or to develop one at some point in their life.  So it is possible.  But depression sure would seem to be likely, as well, based on your message.  I would tend to think that fatigue which can be controlled with ephedra, would more likely be a product of depression.  Fatigue from CFS wouldn't be touched, or might even actually be made worse by ephedra.  But this really is no way to try to figure it out.  You really need to ask a Dr who is knowledgable about CFS.  Unfortunately, that is hard to find.  Below is a list of links to a few websites and webpages which will be helpful in educating yourself about it.  Then maybe you can form some kind of theory of your own.  Plus, you'll have info you can take your Dr, if you want to try to be "officially" diagnosed.

 
 
 
 
 
Also, you might want to consult some sort of psych professional, to find out if you fit the diagnostic criteria for depression.
 
No, I don't think Dr can prescribe ephedra.  They can prescribe a regular diet medication, but they're not likely to do that.  They would more likely prescribe an antidepressant, which is why I suggest a consultation with a psych professional.
 
But I think your first place to start, might be to investigate why you're not sleeping.  If you're not sleeping, or not sleeping well, overnight, then of course you're going to be tired or fatigued the next day.  You might want to talk to your Dr about a sleep aid.  Or you might even want to have a sleep study done.  A sleep study is basically when you go into a sleep lab overnight, or maybe for several nights in a row.  They hook you up to all kinds of monitors to detect your vitals and brain waves, and then at the end of your study, the crunch all the numbers and come up with a diagnosis.  There are several different kinds of sleep disorders.  And once they've identified it, they can recommend a treatment.  A sleep aid from your Dr might be the simplest first try.  But I'll leave that decision up to you.
 
Well, I've given you all the info I can think of that might be helpful, based on your message.  Please feel free to ask questions, if you have any, and I'll be glad to try to answer.
 
Take good care  :-)

Brynn
 
* Co-Moderator for Chronic Pain forums
* Moderator for Chronic Fatigue forums


preskat
Regular Member


Date Joined Mar 2005
Total Posts : 224
   Posted 4/13/2005 12:56 PM (GMT -7)   
hey D, i know what you are going through. i hate this dd so much. in jan. my dr. put me on 40 mg. of pred. and i was feeling so good. i felt like i did before i had cd. got down to 10 mg. and got sick again so dr. put back up to 20. then tapered down t 15 mg and ended with small obstruction so back up to 20 mg i go. it's like a freakin roller coster. well i'm still on the 20 mg and still having d. i'm tired of this and everything else. i think you know how little i weighed in jan. and i'm scared 'm going to end up ther again. to while i'm on the pred. i'm going to eat what i can and gain as much weight as i can before i get off of it. i did have the malnutrition and it made me feel so bad. as far as the B12 shot goes i use to get those every month and at the end of the month i would always start feeling bad, but when i would go to dr. and get the shot i would start feeling better the next day. so maybe B12 shot would be a good idea for you. hope you start feeling better soon!:)

preskat
Regular Member


Date Joined Mar 2005
Total Posts : 224
   Posted 4/14/2005 7:39 AM (GMT -7)   
i'm glad for you d-rule. i hope you keep feeling better:)

preskat
Regular Member


Date Joined Mar 2005
Total Posts : 224
   Posted 4/14/2005 9:10 AM (GMT -7)   
i think i need to get in contact w/ my dr., because for the last 3 days i've just been feeling bumed. i'm on 20 mg of pred. still and the "D" is back. i've been wondering can e pred. stop working on you? i mean can your body get use to it to where it doesn't work anymore?

Brynn
Veteran Member


Date Joined Mar 2003
Total Posts : 1663
   Posted 4/15/2005 10:28 PM (GMT -7)   
Hi D-Rule and preskat
D-Rule, glad to see you are working so hard to figure this out. Actually that is one sign that it might be more fatigue than depression. People with overwhelming depression lose their motivation, and would rather just sit around and cogitate! Well, that isn't entirely fair. It's not that they would rather sit around, it's just that they can't fight their lack of motivation. In CFS, patients are still plenty motivated, and often overcommit themselves, trying to get things done in between bouts of fatigue.

I don't know that much about Crohn's, but the malnutrition seems like a very reasonable idea, as does B12. I hope you're still having positive results.

Preskat, I don't know that much about the steroids. I don't think one can build a tolerance, like with narcotics, but I'm not positive. There may be another mechanism with steroids, which has the similar result. I can only suggest asking your Dr about it.

Thanks for adding your experiences to this forum, guys! I know fatigue affects so many illnesses, and I'm sure this will be helpful to others with CD. All best.
Brynn
 
* Co-Moderator for Chronic Pain forums
* Moderator for Chronic Fatigue forums


preskat
Regular Member


Date Joined Mar 2005
Total Posts : 224
   Posted 4/18/2005 10:44 AM (GMT -7)   
thanks drule and brynn, going to dr. wed. and i'm going to talk to her and see if we can figure out what's going on.
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