New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

John321
New Member


Date Joined Feb 2012
Total Posts : 6
   Posted 2/16/2012 7:24 PM (GMT -6)   
Hi all -

I found this forum searching for information on prednisone - and I don't know that I'm posting this in the right place because I really don't know what, or if, anything is wrong for me.

A few weeks ago I got into some poison ivy and had a normal bad reaction to it. Bad enough that a friend recommended I go to the doctor and get a steroid shot - which I did.

The doctor also prescribed a "prednisone pack".

Now let me say, first, that I don't like taking medication, period.

But, if you've seen the movie Limitless - that's how I felt on prednisone. Aches and pains went away. I had an abundance of energy. I felt clear and focused - very clear, very focused. I had drive and I was accomplishing more in a day than I normally accomplish in 3. It was as if I had discovered the greatest performance enhancing drug ever invented.

This experience has caused two things -

1. The realization that how I've been feeling for years probably isn't how I should feel. I struggle with focus, motivation and internal drive - which has never been a problem before about 5 years ago. I simply have the pervasive feeling that goes between panic and complete apathy.

2. I've started taking an adrenal supplement which has helped *some* with my energy, however, I don't have the focus or drive aspect. I have energy but still feel rather lethargic, and certainly not clear or focused.

So I've come here because I have yet to read anyone claiming prednisone has had any performance enhancing effect on them. In fact, most people here seem to feel it's a bane on humanity!

I've read about the side effects of prednisone and almost the opposite was true for me - aside from trouble sleeping, I've never felt better (I'm no longer taking it - the effect lasted while I was taking 3 or more pills per day).

And one last thing - after much research and insight from friends in the medical profession I'm pretty well certain that adrenal fatigue is at least an issue - so that's why I'm posting this under chronic fatigue.

Thanks for any input or insight you might have to offer.

John

madisun
Regular Member


Date Joined Mar 2012
Total Posts : 151
   Posted 3/20/2012 9:24 PM (GMT -6)   
I was put on prednisone late last year for asthma. The first day I was on it I felt amazing. Second day, I still felt pretty good. By the time I was done weening myself off it, I felt horrible. I couldn’t stand unsupported for more than 3 minutes. I was alert (well, alert enough) and I wasn’t THAT tired… I just couldn’t stand up without feeling like I was about to fall over.
My chest would feel funny, and I felt like every fibre of me was being pulled to the ground. When I was leaning on something, or sitting I was pretty much ok.
(I was still working, in before/after school care… Try that one next time you’re up for fun and games, lol.)
It took MONTHS to get over it.

As far as I understand it, the prednisone doesn’t so much supplement the adrenal function as replace it. When that function is replaced, you’re body goes “Woo! Holiday!” and stops producing the hormones. When you come off the prednisone, there’s no natural hormones and you’re a bit screwed until you’re body gets the message it’s time to do it’s thing again.

Then I found my old bottle of homeopathic adrenal support drops… and I felt fabulous for the first day. Second day I felt good… I don’t get quite the boost that I used to, but I’m still better than I was.

So yes, they help me… It’s just not so much fun coming off them. Especially because I’ve just been teased with a fabulous few days.

Do you mind me asking what supplement you’ve found for adrenal support?

John321
New Member


Date Joined Feb 2012
Total Posts : 6
   Posted 3/20/2012 9:42 PM (GMT -6)   
Thanks for your reply Madisun.

BTW, I have found a few posts online with people sharing that "I felt amazing" experience. Many others absolutely feel terrible. It still leaves me puzzled.

I'm still taking the adrenal support supplement - it's simply "Adrenal" by Pure Encapsulation. Here's a link on Amazon (where I buy it) - http://www.amazon.com/dp/B0058HX3NQ/?tag=exampleid-20

It does give me an energy boost but I can't say that I feel anything close to amazing - the prednisone gave me a major energy boost along with feeling very driven, mentally clear and focused. I'm very much opposed to taking medication, *however* to feel that way all the time . . . tempting!

All the best to you - John

Post Edited (John321) : 3/22/2012 5:38:46 AM (GMT-6)


madisun
Regular Member


Date Joined Mar 2012
Total Posts : 151
   Posted 3/21/2012 9:57 PM (GMT -6)   

Awesome, I'll have to give it a go (Along with the fistful of other supplements I'm taking, lol.)

Thanks :-)

 

I have always thought that there’s more going on with CFS than just one illness. The symptoms and debilitation are SO different, and people seem to fit into groups of symptoms (For the most part anyway.) Then you get the opposite reaction to drugs, and it starts to make more sence that there’s a few things that cause CFS that have been all lumped together in the same diagnosis.

One of these days they’re gonna figure this all out, and the world will be gob smacked, lol.


John321
New Member


Date Joined Feb 2012
Total Posts : 6
   Posted 3/22/2012 6:47 AM (GMT -6)   
I have to add a couple more things re: the supplement.

I've taken plenty of supplements and often feel little to no effect. So as a supplement the Adrenal supps certainly make an impression. I had tried another brand, first, and they seemed to give less of an energy boost while leaving me a little foggy in the mind.

Aside from the energy boost I've learned that a number of other symptoms tend to accompany adrenal fatigue (other than low energy). I've had some nagging aches and pains for years. Those completely went away on prednisone - and they are greatly reduced on the supplement - not gone, maybe 50%.

I think of this as I've stopped taking the supplement, regularly, this week and I've noticed those aches and pains increasing.

Since doctors don't acknowledge adrenal fatigue as *real* problem good luck getting help with it! I agree Madisun - doctors tend to lump too many things into one category while excluding other symptoms as "something else".

All the best to you -

John321
New Member


Date Joined Feb 2012
Total Posts : 6
   Posted 3/22/2012 8:31 AM (GMT -6)   
I have to add a couple more things re: the supplement.

I've taken plenty of supplements and often feel little to no effect. So as a supplement the Adrenal supps certainly make an impression. I had tried another brand, first, and they seemed to give less of an energy boost while leaving me a little foggy in the mind.

Aside from the energy boost I've learned that a number of other symptoms tend to accompany adrenal fatigue (other than low energy). I've had some nagging aches and pains for years. Those completely went away on prednisone - and they are greatly reduced on the supplement - not gone, maybe 50%.

I think of this as I've stopped taking the supplement, regularly, this week and I've noticed those aches and pains increasing.

Since doctors don't acknowledge adrenal fatigue as *real* problem good luck getting help with it! I agree Madisun - doctors tend to lump too many things into one category while excluding other symptoms as "something else".

All the best to you -

nannu23
New Member


Date Joined Mar 2012
Total Posts : 4
   Posted 3/23/2012 7:32 AM (GMT -6)   
John check to see you are using any products with aspartame and eliminate it from your diet.. you have to check closely because they hide it the most unlikely places. Some of the symptoms may drop off. Worth a try.

John321
New Member


Date Joined Feb 2012
Total Posts : 6
   Posted 3/23/2012 8:02 AM (GMT -6)   
Thank you for the suggestion Nannu -

I had a college chemistry professor back in the 90s who was doing research on aspartame and she claimed it was "100 times more dangerous than saccharine". So I avoid it completely.

And you bring up a good point about labeling. Things like MSG are now falling under the label "natural flavors", which can be just about anything.

But I have to think my issues are diet related. I eat a pretty clean diet by American standards but prednisone is an anti-inflammatory drug and therefore something must be causing inflammation in my body that is taxing my energy.

Again, thanks and all the best to you -

WendyV
Regular Member


Date Joined Aug 2012
Total Posts : 26
   Posted 2/6/2013 1:36 AM (GMT -6)   
idea  I was prescribed prednisolone in april 2012, for a rash, which ha now been diagnosed (eczema) and treated, but.....even though I tapered the drug,having been on it for so long...I suffer now from adrenal fatigue. I've found that coffee, sugar and white bread etc make it much worse. I also found that vit B5 helped greatly, although I personally can't tolerate B5! 
 
Was just reading about adrenal extracts and will ask my doctor when I see her next week, as I'm taking quite a while to recover fully.
 
Best of luck to everyone! Wendy from Oz.

Recoveryme2day
Regular Member


Date Joined Jul 2012
Total Posts : 332
   Posted 2/6/2013 4:28 AM (GMT -6)   
Welcome John, i understand your frustration and confusion, I have an Endo who's been trying to get me tested for "adrenal fatigue" for 3 years! but my insurance won't pay because i already have a CFS/EBV and Hashimoto's Thyroid diagnosis. Yes prednisone is a wonder drug for people like us and it just as dangerous and destructive to our bodies as the other drugs that give us that "top of the world" feeling. I know somebody already mentioned that it can cause "adrenal fatigue" absolutely if its abused or even prescribed long-term. That's why it come in short-acting packs. It can also cause violent mood swings and psychosis in people with mental disorders(one of those would be me). I would say you are on the right track with the supplements and the diet, you could try going gluten/wheat-free for a couple months, it seems to help everybody who tries it irregardless of what their diagnosis. Hang in there and Keep in Touch.
Crainiotomy Lg. Meningioma Dec.02, Bi-Polar 2004, SMI 06, Gluten/Wheat/Dairy Intolerance, IBS 06, Migraines w/pseudo-seizures 07, Dev. Septum Sur. Sept.07, 2nd Men./Tumor Gamma Knife Rad. Dec.08, Radical Hysterectomy Sept.09 w/instant Menopause, Fibromyalgia 09, Disability since 09, EBV/CFS 11,Vomiting/Multiple Ulcers, Vertigo 12, Chronic Fatigue Moderator 2013.No meds list I ran out of space.

TOM@ocala
Regular Member


Date Joined Nov 2012
Total Posts : 185
   Posted 3/5/2013 7:35 AM (GMT -6)   
!!!!WARNING!!!!
I crashed the hell out on steroids (prednisone) I get poison ivy every year and many times.
last spring I came back from a hiking trip to the mountains with the usual rash and called in my usual dose of steroids, when it caused what I now know is lyme disease to go through the roof!
its now been almost a year of walking death and I'm just starting to feel better.
if you are starting to not respond well to it, STOP! STOP! STOP!

glorob
New Member


Date Joined Mar 2013
Total Posts : 2
   Posted 3/24/2013 11:37 PM (GMT -6)   
Hi John:

Wow - you described my situation perfectly - it was very much like the movie Limitless for me as well.

I have been wiped out with CFS for over 20 years and am completely housebound, mostly bedridden - 2 years ago I was having problems breathing - went to ER and was given Prednisone or something similar through an IV (what I suppose were very high doses). I was also given a 10 day script to taper off of it.

I came home and for the first time in a decade started to cook, bake, clean, organize and live my life as if I'd just come out of a coma - I literally discovered things about my life that I had not been aware of, as if I'd been totally absent - day after day I was just lying there wasting away with no idea what was going on around me and the Prednisone helped me return to the former healthy me. I was beside myself with joy and could not and would not sleep rationalizing that I'd been sleeping for 10 years and was not about to sleep now that I didn't have to and was capable of doing more than just lying there.

Things were great until the stuff turned on me - I gained lots of weight in a short amount of time and started to feel just horrible physically.

It's been very tempting not to continue taking it and there are CFS docs who rx small amounts of it (5-10 mg per day) because apparently some people with CFS benefit greatly from that amount...I'm not one of them - I need more to feel it...I likely had adrenal issues before taking it and believe I did even more damage to my adrenals while on them because I'm definitely worse off than I was before I went to that ER that fateful day.

I don't understand how something that helped so much could turn so evil, but that's typical of Prednisone.

Just wanted to let you know that I completely understand and it's a huge bummer.

Best to you,
GG

Rd_123
New Member


Date Joined Aug 2013
Total Posts : 1
   Posted 8/10/2013 5:07 AM (GMT -6)   
I'm 15 right now, and have been having really bad issues with being fatigued easily along with rapid heart beating for about 2 years and back when it started my asthma was acting up, and I had bronchitis and ammonia wheezing lungs and was getting sick all the time.. Taking like 12 pills a day including prednisone and breathing treatments a few times a day, also I am not over weight and before this happened I was skateboarding everyday and running a mile everyday in my pe class, but I had to stop going to school and be home sick even into the summer and the next school year, but around when all this was beginning possibly after I got off the prednisone I began suspecting I had heart problems due to the fatigue and none of the doctors could really tell me what was wrong, my heart rate was going up to 140 and 160 while I was sitting still and was normally beating a bit over 100 and finally a doctor said I had tachichardia but I was never prescribed anything for it, I've gone back now but the doctors don't think I have it now, but I still easily get fatigued with a rapid heart rate as energy drinks supplements or coffee doesn't help at all it just makes me tired, I'm always tired now and I think now after reading this it could be from the prednisone I don't know. I wish I could get actual help to fix it though,

Post Edited (Rd_123) : 8/10/2013 4:12:09 AM (GMT-6)


Minnesota
Regular Member


Date Joined Jan 2012
Total Posts : 99
   Posted 8/12/2013 10:16 AM (GMT -6)   
This discussion about prednisone is interesting.  I will relate my story.  I was given 3 IV's of solu midrol, which is a mix of steroids I guess, spaced out 30 days each.  I was prescribed this because one of my blood tests showed 2 antibodies being very high, which indicated possible hashimotos encephalitis.  I have been having CFS sypmtoms for almost 3 years now, and my tests have all been negative expect for some slightly low testosterone, and these antibodies.  After the first infusion, I had 19 days of feeling awesome.....the best I have felt in over 2 years with this.  The fog was lifted, and I had energy close to when I was full healthy.  After the 2nd infusion, the relief lasted only 3 days.  The third treatment basically lasted 24 hours before I lapsed back into my current state.  My antibody levels came down to almost normal levels, which my doctor said I should feel better if this was in fact Hash. encephalitis.  I was actually excited when I saw the initial test results showing high levels of SOMETHING to treat. But in the end, just another failed attempt to treat this moving target.  Question for those out there....why would the initial treatment work for that length of time, but not the other 2?  My doc can't figure this out, but he is intrigued that I actually responded for a bit. Thank you.

Judy2
Forum Moderator


Date Joined Mar 2003
Total Posts : 9498
   Posted 8/12/2013 11:47 AM (GMT -6)   
As a person living with inflammatory bowel disease, I've taken my share of Prednisone and Entocort. Except for the inability to sleep more than two hours a night, I feel wonderful on steroids. Energetic, well, pain-free. I can become a nightmare for those around me, though, because I turn into a screaming, weeping shrew.

Fast forward a couple of years after the steroids, and I'm not so grateful for them. I have a shoulder that had avascular necrosis and will forever have limited motion and pain, as well as diabetes. Both from the 'roids. I have a titanium plate in one leg after a pathological fracture from osteoporosis. I'm happy that, so far at least, I haven't developed glaucoma or other long-term irreversible effects.

I guess it's true that if it seems too good to be true, it probably is.
Ulcerative colitis diagnosed in 2001; symptoms as early as 1992. Currently in 7th year of remission with Remicade.
Inflammatory osteoarthritis; osteonecrosis from steroids
Grave's disease successfully treated with radioactive iodine and now on Levothyroxine.
Type II diabetes induced by steroids.
Meds: Remicade, Colazal, Levothyroxine, Mobic, Metformin

Moderator, thyroid forum

michelle313
New Member


Date Joined Aug 2013
Total Posts : 1
   Posted 8/19/2013 11:54 PM (GMT -6)   
I found this thread while searching for info on prednisone. I've been taking prednisone for an allergy problem. I was on 40 mg for several days and as I began to reduce my dosage, I have been feeling more fatigued than I ever have in my life. Though I've only been on it for about a week, I'm worried that as I taper off the prednisone, I'm going to be feeling like this for a long time.

I have always HATED taking prednisone - it keeps me awake indefinitely and makes me feel edgy and sometimes unable to focus. But my allergy problem got so bad that I finally said screw it and gave in and started taking the prednisone. Now I regret it. Thoughts/suggestions appreciated.

appetizerqueen
New Member


Date Joined Aug 2013
Total Posts : 1
   Posted 8/20/2013 10:32 PM (GMT -6)   
Hi John:
 
I had the exact same reaction to Prednisone as you did.  And as you said, it was very much an experience like in the movie Limitless.  It was the best 5 days I've had in the past 12 years.  I was put on the Prednisone because my ear canal was blocked and the doctor thought it might be due to seasonal allergies resulting in inflammation.  I was hesitant to take it, especially for my ear, but I thought, hey, its for inflammation, I wanted to see if I would feel better all over...and boy did I!  Joint and muscle pain disappeared, energy level soared, clear mind.  When I described this situation to my family physician and asked him about taking Prednisone regularly for my joint pain, he would not prescribe it for me.  I had to take a series of adrenal function tests, all which came back in normal range.  His only advice was that I see a holistic doctor.  I'm considering finding a new family doctor.  The thing is, I realize the side effects.  But I don't think doctors understand how much pain one can be in.  My doc was concerned about my high blood pressure.  Hello-whenever you are in pain your blood pressure will be high.  I can't sleep through the night because of the pain, but ok for my doc to prescribe sleep medicine for that-it's just a band aid.  He also suggested DHEA, another HELLO-I have high BP and thyroid condition, for which DHEA is not recommended.  What is he thinking? 
I hope you have found a solution.
 
 

BenjaminChew
New Member


Date Joined Sep 2014
Total Posts : 1
   Posted 9/11/2014 9:09 PM (GMT -6)   
I taken prednisolone for my sorethroat. it was amazing. Pain and soreness went off so quickly.

uwnakno
New Member


Date Joined Sep 2014
Total Posts : 2
   Posted 9/13/2014 6:51 PM (GMT -6)   
My allergist recommended a book called Safe Uses of Cortisol by William Jefferies. I haven't been able to buy it because it is kind of expensive but he said the book documents how low doses of hydrocortisone can be actually be helpful--similar to someone supplementing with thyroid hormone for low thyroid. Hydrocortisone is the natural form of cortisol so it doesn't have the degree of side affects that the pred does. My mom has COPD and he has no problem with prescribing that for her and her taking 1/4 to 1 pill a day as needed. Mostly she just takes two quarters a day and it helps tremendously. She cannot do the inhalers for asthma and COPD, they make her swallowing reflex stop working, but she can take the pills. There are some websites that have excerpts from the book so you may want to look at those before buying.

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1650
   Posted 10/2/2014 8:38 PM (GMT -6)   
Yes, I had a similar reaction to prednisone with tons of energy feeling great, even going to an aerobics class once. But, the other times I had to take it, I didn't quite have that response. I had to take it b/c they thought I had RA or auto immune disease. But, prednisone will weaken your immune system in the long run and I felt like I got rebound disease afterwards. It's not a good drug to be on in the long run as it will give a lot of people diabetes and a lot of other problems and eat your bones away. Sure wish I could get that energy back though. I can totally relate to what other people have said to feeling so good.
d 1/09 with colitis sigmoid colon with some diverticular disease as well, Colon resection Nov. 2010, now in remission!
seronegative RA, type 2 d, asthma, skin scleroderma, VSL#3 probiotic, Vit. D, nexium, synthroid,
Positive ANA speckled pattern 1:180, high sed r
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, October 31, 2014 12:49 PM (GMT -6)
There are a total of 2,256,180 posts in 250,959 threads.
View Active Threads


Who's Online
This forum has 157716 registered members. Please welcome our newest member, SpeyFisher.
127 Guest(s), 9 Registered Member(s) are currently online.  Details
Wrap_down_unde, hypoHashimoto, Tbrown2, melodee, Scaredy Cat, Park12, caia_120, ks1905, ak angel


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer