Hello, New here. Looking for help

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Williamm1985
New Member


Date Joined Jun 2005
Total Posts : 12
   Posted 6/29/2005 1:17 AM (GMT -7)   
Hello, I am 20 years old and have been diagnosed with CFS. about 1 year and 4 months ago I began to feel run down, tired all the time, not able to wake up inm the moring, not able to thing, nervous and depressed. I thought it was depression, so did my parents. I went to my doctor. I tired Zoloft, Cymbalta, Effexor, Wellburtin. Nothing worked. Months after I began to feel this way the doctors found out I had EB virus and mono. I have an athletic scolarship to a good college but have not been able to play in the past year. I also had to withdraw from going to school. I used to be able to run 10 miles a day, lift weights and go out at night and have a great time. I cant do any of this anymore. I feel nervous when going out and talking to people or interacting with people. I lost touch with my friend and only have 1 person I really hang out with. I have no sex drive or desire to go out.
I have improved some since I began to feel this way. I now can run a mile and lift some light weights. But if I do too much I get a headache and feel whipped out the next day. I have seen countless doctors. I recently went to one that told me I am depressed and there theres no such thing as chronic fatigue. Its just depression. I have told him that I get intravenious vitamin injections (which make me feel better). He explain that anyone who tells me I have CFS is just trying to take my money for treatment. It really got me worried. But I dont feel depressed, just tired all the time. I feel anxious an nervous and have no self confidence anymore because I dont have the energy anymore. This doctor that is giving me injections is doing it for free, and says he doesnt want any money. He just wants me to get better. So with him I dont think this is the case. But could this really be a mental problem? I am anxious, nervous and cant think at times. I am not depressed and would be happy if I had energy. I feel like I am not who I used to be because I can play any sports anymore. Some doctors say that theres really nothing wrong with my body and its all mental and they want me to go to a physciatrist. (sorry for spelling) What do you guys think? I feel its a waste of money. I dont feel like its worth it for my parents to pay $300 for someone to talk to me and tell me to take a pill. I really just dont know what to think or do. I just want to be who I used to be. These doctors telling me theres no such thing as chronic fatigue really get me worried.

onlyme
New Member


Date Joined Jun 2005
Total Posts : 5
   Posted 6/29/2005 5:20 AM (GMT -7)   
firstly williamm , there certainlyi is an illness called CFS and it is very real

have to say how you describe how you feel sounds a lot like like CFS


i have never found anti deps for anything for me

very tired but wanted to reply

Yvonne

gatorpanther2004
New Member


Date Joined Jun 2005
Total Posts : 1
   Posted 6/29/2005 3:57 PM (GMT -7)   
Hello,
I have c.f.s. and I am looking for individual/group chat about the subject. Please respond

Williamm1985
New Member


Date Joined Jun 2005
Total Posts : 12
   Posted 7/2/2005 12:46 AM (GMT -7)   
thanks for replying, the more I think about it the more I feel that the doctor is full of crap. I have found some doctors beleive that there is CFS and some say there isnt. For the ones that say there isnt I dont understand. They cannot explain why someone is feeling the way they are, they say well you blood test look good so your just depressed. My parents want me to go see a psychiatrist but I dont think I need anti depressants. I mean I do get upset but only because I cant do what I used to. I also have a terrible to falling asleep. I have to take medicine to fall asleep at night or else I wont be able to sleep. I feel very tired physically but cannot sleep. Like I need to lay down and just relax. Does anyone else feel like this?
thanks for the replies

Wotan
Regular Member


Date Joined Jun 2005
Total Posts : 462
   Posted 7/3/2005 2:34 PM (GMT -7)   
To Gatorpanther & all---All I know is----when i was leaving
my cardiologists office--i saw on the "check sheet"...marked off---"Mitral Valve Prolapse"    "SVT"     and..."Chronic Fatigue Syndrome"---sooo, my friends--there certainly must be CFS----why else would the diagnosis be on there?     I too, am looking for someone to correspond with.   (You can e-mail me)---I have been diagnosed w MVP for close to 30 yrs--suffer from SVT----now depression---but, for years.....chronic tiredness, lack of energy.  I wake up at 7:30 AM...by 11 AM...i feel like laying down.   I must take a nap at 3 PM...or else I'm drained!     Also--my cardiologist just gave me a blood test for throid (TSH)----all my other blood tests were normal!   My TSH was 5.4---a bit high--which indicates "Hypoactive thyroid"----I'm eeing an endocrinologist this week.    The cardio nurse said this could be contributing----& my therpist (just had 1st session with her)---said low Thyroid...MVP...& depression can all be contributing. 
 
  Would luv to hear from others with CFS.   Are you guys tired all the time???    Like i said...by 2:30 PM...i need a nap?   I'm just starting my Zoloft (25mg)----i also take Tenormin...for my SVT---& Valium for anxiety.  Maybe all the meds contribute too----Someone--please get back----i've been suffering from CFS---for years!!!!      Thanks--Robert

Williamm1985
New Member


Date Joined Jun 2005
Total Posts : 12
   Posted 7/3/2005 4:25 PM (GMT -7)   
I am the same way with the fatigue. If I am up early and do something, I will need a nap by the afternoon. Do you have trouble sleep?

Williamm1985
New Member


Date Joined Jun 2005
Total Posts : 12
   Posted 7/3/2005 4:32 PM (GMT -7)   
Wotan this is a responce to your post in the depression section

My blood test were all normal. I probably had about 20 different ones. X rays, catscan, MRI they all came out fine. The only thing they got from the blood test was that I had EB virus. I am definitly feeling more than depression (if there is any at all). There is really something wrong with me but doctors cant find out what or explain it. I find it all very strange. A year ago when I first began to feel this way I was not able to wake up or get out of beed. I now can, but have trouble falling asleep and getting up sometimes. I feel cloudly alot and my mind isnt sharp. I will also forget things. I am also extremely anxious. I really cant go out and do much. I like to find small hobbies and things to do around the house. Another hard part is explaining this to my friends and other people. I get the feeling from them that Im just lazy.

bella4
Regular Member


Date Joined Jun 2005
Total Posts : 263
   Posted 7/30/2005 1:35 AM (GMT -7)   
dear william,
 
i usually post on the lupus forum because i think i have lupus but...someone posted about mono the other day and boy can i relate to mono!  i too have ebv.  i am 38 years old and contracted the virus when i was 16 (1984).  i was told that i might have problems with it in the future but they didn't know what exactly at the time (i guess still don't today).  i still test positive (it is often active in my body), i am tired all the time, have liver pain when extremely tired, have had numerous bladder and sinus infections over the years and various other symptoms all of which i figured were related to ebv.  i also had vitamin injections (b 12) for a while but they didn't seem to help and they hurt so bad (back in the mid 90's.)!  i can get into great detail but i won't tonite, am tired but wanted to give you this link:
 
http://www.ourfm-cfidsworld.org/html/paula_carnes_.html. also, do a search of lake tahoe mystery disease and search hardinmd.com for more info. 
 
i lived in lake tahoe when i became sick with ebv, i am one of those 600!  i was also given anti-depressants back in the mid 90' for my fatigue and aches and pains, which i now regret ever getting started taking them (i haven't in years but...)  the docs don't want to admit that they don't know what to do about our ailments so they tell us we are depressed and put us on anti d's that don't help.  well, wonder why they don't help (sarcasm)?!  we are not depressed!  being depressed is not causing our pain, if we are "depressed" it is because we feel so bad.  feeling bad is frickin depressing, it is not a psych thing!  it actually took me until the other day to figure that one out!  i could never figure out why the anti d's didn't make me feel happy thus giving me more energy.  i read the posts and so many are on ad's and are saying that they don't help and they are trying another one and so on.  i feel bad for them.  they just haven't figured out that they are not clinically depressed, that is why they don't work.  it is the diseases, the sheer physical exhaustion and mental anguish of having to deal with it all. please don't get me wrong, some people truly are depressed and for those the meds work, but far too many people are on these meds that don't need them, they just need to feel better physically.
 
i hope you are finding some peace.
 
good luck~erica
 
by the way, this is the first time i have looked at this forum.  pretty slow, but i guess everyone is too tired to post (i mean that sincerely).

lauraz
New Member


Date Joined Jul 2005
Total Posts : 2
   Posted 7/30/2005 3:20 PM (GMT -7)   
Dear William...I feel for you..I know this is very difficult. If you look CFS up online, you will find all the symptoms you listed. CFS is real. Lots of doctors don't believe it, but they DO believe in depression. Yes, depression will also make you tired, but not usually chronically and completely exhausted. Some of the things  you had previously can be a precursor to CFS. My advice is not to give up. Your vitamin injections are a good thing....what you CAn do to exercise will also help. There are some things that can be prescribed to help, but not alot. My suggestion to you is please find another doctor. Go to someone who understands CFS. (you can also research this online). Don't give up and stay connected to people who can support you. CFS  is (unfortunately) real. Lots of docotrs don't believe in things like ADD or ADHD and autism, although they are also real. I have an autistic son. My heart goes out to you, but PLEASE, find a empathetic doctor who will listen to you and help you. DON'T give up!! Who knows...they have a cure in a few months, years time!! Kepp yourself surrounded by people who will listen to you and support you. OK? Laura

joaniek
Regular Member


Date Joined Jul 2005
Total Posts : 27
   Posted 7/31/2005 6:03 PM (GMT -7)   
hi william , i am also very disgusted, but i beg you not to give up. i have had cfs for l3 years, with many infections constantly, right now i think i have the shingles, which i will call the dr. in the morning. every month is something with me. either it is my ibs, or my asthma, or my sinuses.. i am never at peace. all from my weakened immune system. plus always battling unrelenting fatigue and body aches. try to find a good dr. that has cfs patients. that is important, they are out there. try to be good to yourself, and not to push, which takes a long time to learn. it takes a long time for us to come out of deniel. because every good day, you tend to push. and sometimes you can even think that you are better. and then you set yourself up for a fall. you will make it. try to educate your friends and family. read all that you can about the illness. talk to you again, meanwhile blessings to you joaniek

joaniek
Regular Member


Date Joined Jul 2005
Total Posts : 27
   Posted 7/31/2005 6:03 PM (GMT -7)   
hi william , i am also very disgusted, but i beg you not to give up. i have had cfs for l3 years, with many infections constantly, right now i think i have the shingles, which i will call the dr. in the morning. every month is something with me. either it is my ibs, or my asthma, or my sinuses.. i am never at peace. all from my weakened immune system. plus always battling unrelenting fatigue and body aches. try to find a good dr. that has cfs patients. that is important, they are out there. try to be good to yourself, and not to push, which takes a long time to learn. it takes a long time for us to come out of deniel. because every good day, you tend to push. and sometimes you can even think that you are better. and then you set yourself up for a fall. you will make it. try to educate your friends and family. read all that you can about the illness. talk to you again, meanwhile blessings to you joaniek

joaniek
Regular Member


Date Joined Jul 2005
Total Posts : 27
   Posted 7/31/2005 6:13 PM (GMT -7)   
also william sleep disorders is usually the first symtom many of us experience. and it is pure hell. i went from over the counter sleep meds , to sleeping pills , the dr. gave me many different ones because i kept building up an intolerance to them. finally they all stopped working. and she sent me to a sleep disorder clinic and that helped a lot. now i can sleep, but the sleep is nonrestoritive. but at least i dont stare up at the ceiling all night. and just l l/2 mil of lorazapam does it. joaniek good luck

joaniek
Regular Member


Date Joined Jul 2005
Total Posts : 27
   Posted 7/31/2005 6:18 PM (GMT -7)   
hi robert, yes i am profoundly tired all the time, how long have you been sick? and what is svt? would enjoy a chat with you . but sometimes i cannot find this site. too much brain fog. lolo joanie k

Wotan
Regular Member


Date Joined Jun 2005
Total Posts : 462
   Posted 7/31/2005 7:09 PM (GMT -7)   
Hi joaniek----svt is "Supraventicular Tachyardia" a suden. rapid, irregu;ar heartbeat. It comes & goes, scary & bothersome--but not serious. Regards--Robert
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