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Aljosangels
New Member


Date Joined Sep 2005
Total Posts : 11
   Posted 9/5/2005 10:53 PM (GMT -7)   
Hello, I am new here and I need help figuring things out. I was diagnosed with fibro about 6 or 7 years ago and I have yet to find balance. I suffered from the chronic pain of a back injury for over a year and then the pain of fibro... and I found myself so fatigued that it was taking all my energy to walk to the bathroom.
 
I eventually became so depressed that I could barely function at all. I think the depression came from the pain and the fatigue stealing my life away from me. I have recently been given a diagnosis of depression, and the rhuematologist I had been seeing told me I have chronic fatigue, but she did not put it in my file as a diagnosis.
 
I have applied for disability and have been denied twice, so I am waiting for a hearing date to be set... I do have an attorney. I don't know quite know what to do from here.
 
I am not happy with the rhuematologist, and I can't get much from my GP. I do not have any doctor backing me up on disability,
and I haven't been able to muster up the energy to find a new doctor, much less gp to one.
 
How do I find the enrgy? The motivation?  The right doctor who can diagnose the cfs officially? where do I begin? I am tired and I am weak and I am very sad  on top of it all.
 
I am presently on cymbalta for depression and anxiety, but I am not sure I like it. I have started therapy for the depression but I'm not sure I like that either...LOL...The meds for depression are really what I am taking to help the fibro.
 
I just don't know what to do next... any advice?
 
Allison
 
Allison

Post Edited (Aljosangels) : 9/5/2005 11:58:37 PM (GMT-6)


aladin
New Member


Date Joined Sep 2005
Total Posts : 9
   Posted 9/6/2005 10:32 AM (GMT -7)   
Dear frien,
i'm italian and i live in Italy, so that i dont know where the CFS centres are.
But, if you go to:
 
 
you can find a list of doctors who follows CFS sicks by State.
 
Hope this one can help you....my best wihes for your health
                                                                     Aladin

Aljosangels
New Member


Date Joined Sep 2005
Total Posts : 11
   Posted 9/6/2005 11:07 AM (GMT -7)   
:-)  Thank you aladin... I will check it out. I hope you are well and that the day will bring wonderful things to you!
 
Allison

aladin
New Member


Date Joined Sep 2005
Total Posts : 9
   Posted 9/6/2005 11:10 AM (GMT -7)   
tyvm, my friend...take care :).....Aladin (daniela)
 


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 9/17/2005 10:40 PM (GMT -7)   

Allison - I'm sorry to hear about what you are going through.

I typically post in the arthritis forum, but I wanted to reply to you. 10 years ago, I was in horrible pain and was not getting the treatment I needed. Depression took over, my ability to function between pain, fatigue, and depression was unbelievable. I am just now applying for disability...I don' t know what the doctors have in their files to know if it'll hurt me or help me with my claim.

But, keep fighting with the doctors, disability to get what you need...it's hard, boy do I know! To do this when you feel tapped out 24/7 physcially and emotionally.  Do your best to find the right doctors you need to see - you can't and don't need to do this all in one day. Because your doctors now are not helping, you may want to think about finding a specialist (psychologist? psychatrist? I don't know which is which) whose main focus is pain management and depression. If you can find a good one to talk to and diagnose you - this could help YOU deal with this better AND possibly your CLAIM if they can diagnosis you with depression from chronic pain/fatiuge at a minimum.

Take it day by day. There is a lot of support here to help you out, HW has been such a life saver for me.  There is a depression forum as well as arthritis - you might find some help and support there as well. Make sure you have a lot of YOU time to get the care, rest, and pampering you need right now. 
 
Good luck!
**
 


carina-1
Regular Member


Date Joined Sep 2004
Total Posts : 21
   Posted 9/20/2005 5:15 AM (GMT -7)   
Allison, I always hate to hear about all of the trouble people have getting Drs. to document on paper what what they tell us in person. Seems pretty 2-faced.

Ithought you would like to know that the Cymbalta also acts on our pain recepters and help any pain med work better. Check with your pharmacy for a print out of what this drug can do for you. It has helped some with my fibro pain. It didn't take very long either. Good Luck
Carina-1

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