epstein barr virus

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ktp812
Veteran Member


Date Joined Jul 2007
Total Posts : 715
   Posted 7/14/2011 6:10 AM (GMT -6)   
seekanswers - I recently had my EBV tested and it was 640 which is a different number from yours. I was told it was extremely elevated. My test didn't have a range on it so I have no idea what the range even is. Mine was also EBV IgG VCA
 
I did have HHV6 done and it was 21.44 with a range of 0-1.1 being normal so I know that one is high. Was your EBV an Elisa test from Quest?

seekanswers
New Member


Date Joined Jul 2011
Total Posts : 3
   Posted 7/14/2011 12:55 PM (GMT -6)   
ktp812, I just found a category above the one i listed B4.
Epstein Barr Virus VCA
Antibody (IGM)
EBV Capsid AB IGM is <OR = 0.90 In Range Index

Index Interpretation
<OR = 0.90 Negative
0.91 - 1.09 Equivocal
>OR = 1.10 Positive
Then it says
Epstein Barr Virus VCA
Antibody (IGG)
EBV Capsid AB IGG 5.92 H Index

Index Interpretation

<OR = 0.90 Negative
0.91 - 1.09 Equivocal
>OR = 1.10 Positive

ktp812, I don't know if this means anything to you.
If not I hope someone can tell me what that means.

pitbull486
New Member


Date Joined Jul 2011
Total Posts : 1
   Posted 7/23/2011 8:14 AM (GMT -6)   
pa7k, I am interested in hearing more about evtox and the results you have had with it. I have given up on Western Medicine as they have done nothing for me over the past 3 years except keep me sick. Any info you can provide would be greatly appreciated.

wynnie
New Member


Date Joined Sep 2011
Total Posts : 3
   Posted 9/17/2011 8:37 PM (GMT -6)   
@SeekAnswers: Anything above 1.10 is positive so your result is positive.

I have chronic EBV and am currently seeing an infectious disease specialist. My EBV (VCA) IgM is within normal range; however, my EBV-EA is very elevated. I don't know the difference between these tests.

I hope that helps explain a little on your tests and hope you're beginning to feel better. I have had chronic EBV for over 20 yrs and was always told by doctors that there was nothing they could do for me but to treat the symptoms. I'm hopeful for the first time in my life. I am on 1 gram Valtrex 4 times/day. I also have HHV6, a heart condition caused by the chronic EBV, & mycoplasma pneumoniae. I was negative for Lyme, CMV and many other viruses.

Good luck!

phoenixlemur
New Member


Date Joined Feb 2012
Total Posts : 1
   Posted 2/1/2012 5:15 PM (GMT -6)   
Ditch the antivirals. Try Larrea Tridentada. When it works, and I'm willing to bet a lot it will, get on with your life and tell other people. This has helped quite a lot of people with anything in the HHV family. No sense in living like a ghost. Seriously try this.

Dunwidit
New Member


Date Joined Jun 2011
Total Posts : 5
   Posted 3/17/2013 11:51 AM (GMT -6)   
Hello,
I was diagnosed with lyme disease and EBV back in 2009. I went to a homeopathic doctor for treatment because the antibiotics only made me relapse into a worse state. Once on the homeopathic remedies and herbs and supplements, now 4 years later it is under control. However I still have bouts of chronic fatigue and I seem to catch every flu and virus that comes along. After my second flu this winter I went to the doctors to get multiple tests done. They found my EBV levels were at 535 when they should be under 38. I also had Mycoplasm pneumonia and herpes 1. The doctor had me out of work to rest to get over all this. Its been 4 weeks now and I am back to work full time. I need to nap at lunch time to get through the day and when I get home, I just change my clothes eat, clean up and go to bed. I have been taking anti viral herbs, Lysine, Olive Leaf extract, adrenal supports and homeopathic remedies prescribed by my homeopathic doctor. I am feeling better every day and I am hoping to get to the point, again, where I can exercise, do yoga, walking, etc, and still have energy the next day. It seems now I have to watch evvery activity as to not over do it. When I get 10-12 hours sleep I feel almost normal. Does anyone else have this up and down stuff. I seem better in the spring and summer , then fall comes and I want to hybernate and I get sick alot and the fatigue is very hard to deal with. If it wasnt for my special doctor and the diet, herbs, supplements she has me take, I dont know where I'd be. The Medical Doctors did nothing but tell me to rest. I would have been on disability for weeks and weeks. Thanks to my doc I was only out 2 weeks and one week at part time. The worst thing though is people just dont get the exhaustion we feel. They say, oh everyone gets tired. But not like we do. But I am hopeful that with a good attitude, the right foods and supportives that we can get better. 
Good luck everyone and good health to you! 
 

kbielec
New Member


Date Joined Jun 2015
Total Posts : 2
   Posted 7/1/2015 12:43 PM (GMT -6)   
I am hoping someone reads this and can help me.
I am 38 and a mother of an almost 3 year old who works from home. I was diagnosed in January with "mono" and the numbers are still "high" well two of them and I don't understand why I can't kick this and why I'll feel better then I won't and I have had such crazy symptoms. Swelling, migraines, neck pain, I have been tested for EVERYTHING and nothing (thank god) is positive but this...HELP!!
The EBV VCA, Igm is 60 (has gone down 3) since Jan.
EVB Ab VCA, IgG is 346 (was 185)
I am so over this!

kbielec
New Member


Date Joined Jun 2015
Total Posts : 2
   Posted 7/1/2015 12:51 PM (GMT -6)   
Thank goodness I have found this. I hope someone reads this.
I felt terrible and had "weird" symptoms (swelling, stiffness, etc) in Jan this year so after a handful of ER trips and a lot of CT scans, tests, Doctors, MRI's they found EBV. I can't get rid of it.
I just had my levels run and they are higher than they were in April.
I now am being treated for Migraines which I have NEVER had. I have had PT on my neck, it's killing me and now they are going to inject steroids in it. I see my blood doc for Factor V and MTHFR that they found 5 yrs ago and he is trying hard to help me get rid of the EBV but dang...
I work from home and have a daughter to care for this is NUTS. HELP! Suggestions?

orbigirl
New Member


Date Joined Jul 2015
Total Posts : 6
   Posted 7/11/2015 8:02 PM (GMT -6)   
Hi I have active Epstein Barr, I have had it for many years. Back in the 80's I was treated with B-12 and Gamma Globulin shots once a week for about 6 months, I was in complete remission for over 10 years, I never caught a cold, the flu, did not have any symptom's of Fibromyalgia or Chronic Fatigue Syndrome either. Now I live in another state and can not find a Dr. who is will to help me I called my old Dr. who treated me and he said he is now giving B-12 with Magnesium shots and they seem to be helping his patients. The only way to take it is injections just taking the vitamins does not work. I still have not been able to get anyone to help and I can not afford to fly back to where my wonderful Dr. is located. I understand how you feel as I walk that same path. I will keep trying to find some Dr who can help. The problem is that most Dr. don't care and I had a Dr tell me that. It takes many many hours of research for them to understand what people go through with Active Epstein Barr and they don't make any money do that. Hope you feel better soon.

babs64
New Member


Date Joined Jul 2015
Total Posts : 7
   Posted 7/15/2015 4:14 PM (GMT -6)   
I will be, 64 next month. 6 years ago I started having a sore throat that wouldn't go away. I didn't go to my doctor until months later. I was moving from where I was living to another state, so, my insurance was going to change. I would no longer have my doctor I had, had for, 25 years. I went to see him the day before I moved. It concerned him so much how bad my throat looked and how long It had been hurting, he wanted me to stay long enough to be tested for, cancer. My saliva glands were also swelling up, very large for several months. It would come and go. But, it wasn't until the day I moved that getting sick set in. Before that, my throat hurt and my glands would swell up pretty bad, but, I didn't feel sick. So, July 17th, 2010, the, horror started. I had every test known to man. ENT, did the scope. No cancer. MRI's, CTS's, because I was so sick, everything hurt, etc. they did, colonoscopy's, gallbladder, all of it. Nothing. Till one day I couldn't take it anymore, I was so sick. I hadn't slept in almost 2 months. The pain, the sick...so, my daughter told me there was a clinic up the street and she had seen a, PA there, that was very nice. ( I won't even talk about how rude the doctors had been. I still can't get over that) Anyway, I went to this, little piece of heaven, PA, named, Anna. I told her all that I just posted. She took a couple of blood tests. I waited for several days and hadn't heard anything. So, I figured, they too came back negative. But, it was, 5 days later her nurse called. Low and behold, I had, mono. My B12 and D were extremely low. She said just the, B12 and D being so low could cause you to be so tired, but, mono on top of it..So, now it is, six years later. I know there is nothing they can do to get rid of it. Time went by, and nothing got better. Anna, treated the symptoms. Its all she could do. She gave me sleep meds and pain meds, B12 and D3. I had all those symptoms I've seen others talk about. The extreme tired. You're so tired, something you've never felt. But can't sleep. So sick I couldn't eat, but I was gaining weight. Memory was shot, confusion, blurred vision on and off. My muscles hurt so bad I could lift anything and took everything I had to get, upstairs. The harder I tried to function, the sicker I got. She told me to quit doing that. To rest. Most important thing at that point was, rest. But, now this six years later. My muscles don't hurt, I"m not sick. I can't lose weight as hard as I try. I still get blurry vision, I still have trouble with, memory, trying to find words, etc. Finally, she put me on, amphetemines. The first, prescription was too strong. So, lower dose. I still take sleep meds. and I still take, amphetemines. She called the, CDC when I was still testing positive and they said, " after six months and the tests haven't changed and symptoms haven't changed...they call it, Chronic Fatigue. That was after 6 months of the original diagnoses. Then I had a flare up a few months back, the tired and sleepy was so, extreme. My body hurt everywhere, on and on. So, she sent me to the, CDC. ( she did the blood work) she said the numbers were way too high. The CDC said, yes, you've had, EBS and mono...but at this point, they said, " You have an active virus infection, but, there is no way to know exactly what it is. It's either, Chronic Fatigue or Fibromyalgia. Because of the body pain, she's going with, Fibromyalgia. There is no conclusive test for either. Just symptoms. So, what I am doing besides taking my, sleep meds and amphetemine...I'm doing liver cleanse, I've cut out, milk products, wheat, and very little meat and no sugar at all. I take a cell cleanse detox. What I'm trying do is, clean as much as built up toxins out. I eat all organic, i use, essential oils, take my raw, D3 and B12, and Magnesium/calcium. 90% of our meals are, raw vegetables and fruit. small amounts of meat. eggs and bacon. no nitrate bacon. only carbs we get is from the salad. I'm starting to feel better. and we have fine tuned my meds. Just the exact amount for now, for sleep, energy, and very little pain. I also go to a, chiropractor once a week. As I feel better, i cut back on the pills. I went long enough in pain, no sleep, and NO, energy and way too tired. The stress from all of that, was enough to keep you sick. So, my stress is down a lot, I can participate in life, we even went and helped in a soup kitchen last week. I'm not back, 100% but I'm working towards it. The reason I detox, is, this site I go to on supplements said, when you have a life time of toxins from the air, your home, body products, things in food, etc...your body is full of toxins, if you don't detox it, you can take all the supplements you want and they won't work. Your body can't handle it. So, I'm trying to clean 60+ years of toxins out. I think the, mono happened in the first place because of stress...at that time, 6 years ago. I lost my mom, my sister, my husband was having major surgerys on his spine for over a year (5 surgery's) my daughter and her husband and kids moved here where we live now, which took my grandkids away, it just got too much so I can see how I was getting sicker and sicker...so, now, I've warned everyone. You want to give me grief, etc. don't even try. I gave so much to others, I had none left for me. So, for now. I make it about me. except for my grandkids...it will always be about them. That also happened after we moved here. I had just had a major surgery and was back up on my feet for a week, when my grandson was diagnosed with cancer, he was 12 at the time. We spent the next 9 months getting our baby well. If I took all the stress I have ever had in all my life and added it together, my dad dying, my mom dying my sister dying, and just life in general, wouldn't add up to the stress and horror that was. The love of my life, him and his brother is what kept me going to that point. They were the reason I needed to keep trying...and now, one was fighting for his life. But, by the grace of God, he is in remission, he has, 3 more years of tests before they will call him, cured. But, we all know that the, chemo and radiation will rear its ugly side affects some day...he will be, 16 in a few days and he makes my heart smile..him and his brother. God is good. So, that's my story. Nothing new for some of you. But, if I can be of any help answering questions, etc...I would be happy to. Thanks for letting me share. If anyone has any suggestions for me that might help in my quest to get well, please let me know. Babs

babs64
New Member


Date Joined Jul 2015
Total Posts : 7
   Posted 7/15/2015 4:36 PM (GMT -6)   
Once I understood that, EBV is a virus like, chicken pox. meaning, with, EBV, if you've had it, you can get, mono later. They said you had to have had, EBV, to get mono. Just like, you had to have had, chicken pox to get shingles. Not everyone does but you are at risk for it. It said, 95% of people have been exposed and had, EBV, in their early years. So, once I understood that there is no cure for a, virus, but it can and does go into, remission. There is no test for, Chronic Fatigue or Fibromyalgia. But they seem to go, hand in hand. Just different symptoms. I had mono, then the CDC said after six months and you're not well, they call it, Chronic fatigue, and now, with the new symptoms plus the old symptoms, they are calling it, fibromyalgia. Because of the all over body pain and inflammation. But, I am taking hold of all this. After 6 years i had to. yes, I take sleep meds, pain meds and amphetimine prescribed by my doctor. It keeps my stress at a low level, so I can work on this. 100% organic, no dairy, no wheat, no sugar, small amounts of meat, lots of beef and chicken stock for protein, that helps in healing. and tons of raw. Raw veges ( we grow our own organic garden ) and raw fruits, the specific supplements I need. And pray...if this doesn't do it, nothing will. As I feel better, I reduce the, meds...after six years of this, come and go, come and go...and even when i would get better, that wasn't saying much. But, when It would flare up again, it was always worse than the time before. So, i'm two months into this, " getting myself well " and I'm, praying and hoping by this time next year, I will be well. But, I'm giving it all I've got. My doc knows I won't abuse my meds. But, I told her. As long as I'm, sick, hurting, tired, tired x100 I'll never be able to get well. I'll never be able to do what it takes to hopefully get well. You can't be, exhausted and hurting everyday all day, year after year...and get well. So, by God's grace and hard work...we will see. I also go to a, Chiropractor. which really does help alot.

babs64
New Member


Date Joined Jul 2015
Total Posts : 7
   Posted 7/15/2015 4:42 PM (GMT -6)   
There is no cure for, EBV, aka mono, chronic fatigue, or fibromyalgia. EBV is just that, a Virus. You can't cure a, virus. You can prevent them with, vaccines, if there are vaccines for what you have. Like, chicken pox. But once you have a virus, its not going anywhere. In some cases for what ever reason, a virus will leave the body but thats rare. Mostly they go in, remission and some never do. Like, if you end up with, chronic fatigue. It most likely isn't going to get much better...EBV is a virus there is no cure for a virus...just remission.
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