Anybody been to the mayo clinic

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KevinGerd
New Member


Date Joined Jul 2014
Total Posts : 3
   Posted 12/30/2014 7:03 PM (GMT -6)   
Hi, I was wondering if anybody had ever been to the mayo clinic for CFS? I'm going to the one in Minnesota in about a month. I've been struggling with Cfs for about 4 years. Everytime I eat I get exhausted, have ibs symptoms and blurred vision. I've been on a lot of different diets and none seem to help much. Also my lymph nodes seem to ache a bit too and I get this minor sore throat that comes and goes throughout the day.

Joey911
Regular Member


Date Joined Sep 2014
Total Posts : 67
   Posted 1/7/2015 1:57 PM (GMT -6)   
I went back in November of 2014 with an open mind that I wanted a diagnosis of my symptoms. I was given a diagnosis just before I left from another Doctor, but Mayo didn't know that before I showed up. I just showed up without an appointment and took my records so they didn't get to view them a head of time. After checking in I seen the Doctor in internal medicine who listened to my story and viewed my records. I was then set up to see four different specialists and lots of blood tests. They found some small fiber nerve damage with their sweat tank test, but in the end I was given a possible diagnosis of post viral fatigue syndrome (CFS). I was referred to their three day CFS and Fibro clinic.

I did attend the clinic while I was there. Mainly it was stated that their is no cure for CFS and you manage your symptoms. They give you examples on how to do that. There is a two week pain clinic they offer but that seemed to be more for the fibro group. Overall it was ok. If I was only going for the three day clinic it would have been iffy to me if its worth it but everyone is different. I ended up coming back and immediately seen a Dr. who is giving me anti-virals meds to see if it will combat my symptoms. Mayo knew I was considering this treatment and didn't recommend it before I left. Other than one Dr. in the Neurology dept, all of the other Doctors, staff, and people were nice.
IGM Igenex/CDC Positive
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MTHFR C677T homozygous

mishell
Regular Member


Date Joined Jun 2014
Total Posts : 82
   Posted 1/10/2015 4:21 PM (GMT -6)   
Hi, I was at Mayo for about 10 days back in Sept and they finally diagnosed me with Central Sensitization (Fibro and Chronic Fatigue). I've been sick for 2.5 years and have seen many, many doctors who didn't know what was wrong with me. They put me on Cymbalta and recommended paced breathing, meditation, massage, acupuncture, reducing stress, eating well, graded exercise, stretching, etc. I attended the 3 day workshop and it was pretty much common sense and really focused on living a balanced life.

If you've already been diagnosed, I wouldn't bother going there. The info I received from them is info I could have found on the internet. I recommend going to their website and reading what they have to say about CFS instead.

Minnesota
Regular Member


Date Joined Jan 2012
Total Posts : 136
   Posted 3/25/2015 3:13 PM (GMT -6)   
Just thought to add here as well. I ended up there 2 years ago after dealing with this for about 2 years then. I was undiagnosed, but had also been through many docs and tests/scans but didn't have much to go off of. I came down with this after a flu like illness, and bam, never felt the same. I had a balance test that showed abnormalities, and some lower testosterone as well. I was diagnosed with "chronic subjective dizziness" which as the name implies, all in your head. I just felt that without any real results to go off of, they really didn't seem to bother with me. I respect Mayo here in MN, but for these vague illnesses they don't seem to be the best. Just my thoughts.

magoo2
Veteran Member


Date Joined Mar 2015
Total Posts : 880
   Posted 3/29/2015 4:38 PM (GMT -6)   
I went there for a two day physical to find out what was wrong.
I was very disappointed-they had no clue and told me to learn to live with it.
IBS-fatigue-allergies
I don't think they are any good at chronic conditions-at least that would be my opinion
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