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tried
New Member


Date Joined Jun 2015
Total Posts : 3
   Posted 6/21/2015 11:53 PM (GMT -6)   
Has anyone ever experienced a dreamlike state you can't get out of for hours?
I slept for 15 hours straight, only to "awaken" in a fog and weak.

Background:
I was referred to the Rhumetologist with a positive ANA who tested me negative for lupus and concluded I have CFS.
For the past five years I have been getting increasingly more fatigued. I am now unable to work. I can barely stay awake more than 4 hours without napping, on a good day. On bad days, I can't get out of bed even to eat. I keep losing weight. They say my thyroid is normal.

I couldn't come out of my dream today and had a flashback to a traumatic experience I had. I know I have a bit of ptsd too.
What is wrong with me? Am I ever going to live again?

noramouse
New Member


Date Joined Jun 2015
Total Posts : 6
   Posted 6/22/2015 12:47 PM (GMT -6)   
What you are describing I have almost every night/day! I'm new to this forum and am little help, but I understand at least. I keep telling my husband I can't get out of my dreams. I sleep all day. I'm tired ALL THE TIME. It feels like someone is pushing down on my face and head. It feels like my blood is heavy. I know this isn't advice or anything, but it's not just you. I'm going to try to go see an infectious disease specialist to get tested for EBV (the virus that causes mono) and lyme's disease and any other tests I can get, I'll make sure to post here any information I get. Hang in there, it's so easy I give up but I for one won't accept that this is how my life is going to be from now on. Joining this forum has given me a little kick in he ass and a little hope, it's important to know you're not crazy or lazy or broken. I cried a little when I saw that I'm not entirely alone in this, it's easy to convince yourself that it's too hard to fight. Hang in there. If you need someone who gets it, I'm here too.
"Your heart felt good, it was dripping pitch and made of wood. Your hands and knees, felt cold and wet on the grass to me. And that's how the world began."

tried
New Member


Date Joined Jun 2015
Total Posts : 3
   Posted 6/22/2015 1:22 PM (GMT -6)   
Thank you noramouse for the encouraging words. Your reply does help in knowing I am not alone in this. It is scary and hard to imagine ever feeling better when these occurrences happen. But I just try to tell myself that the episode does lighten up and when it does, I am as proactive as possible.
I hope the doctors find the culprit for us!

sweetpeaisme
Regular Member


Date Joined Feb 2015
Total Posts : 498
   Posted 6/22/2015 2:47 PM (GMT -6)   
@Tried= so the Dr. Concluded you have CFS? Dr's and scientists now KNOW from their studies that CFS is caused by chronic infections of a combination of bacterial, viral, fungal, and/or parasitical.

I was 1st diagnosed, by an MD, with CFS, but it wasn't until I became proactive in my own healthcare which involves research/reading and putting the puzzle of symptoms together to view my illness as a whole... MD' s tend to separate out each symptom and they tend to only treat the symptoms not the cause which doesn't lead to a cure...

Is there any possibility that you could go see an Integrative MD, or better yet A Lyme literate Dr?

My heart goes out to you because I suffered needlessly for YEARS by several doctors NOT testing me for Lyme disease and co-infections, viruses such as HHV6, & Mycoplasma and Chlamydophila Pneumoniae= CP is VERY COMMON & contagious!

The longer one suffers from CFS, the more likely permanent damage to joints, muscle, vascular(veins), and the central nervous system= nerve damage.

I've been on antibiotics, supplements, herbs, and other prescriptions for one year now and am doing better; although not totally cured because I let the illness progress too long before choosing the right DR.

I hope you are able to investigate THE Cause of your CFS and to get some tests, as mentioned above!

I share what I do, with hope that I can help prevent what happened to me being mis-diagnosed FOR YEARS!

tried
New Member


Date Joined Jun 2015
Total Posts : 3
   Posted 6/22/2015 3:37 PM (GMT -6)   
Thank you sweetpeasme. I plan on getting tested for LYME this next visit to my GP (because of recent information I read). I need to be referred to a specialist by my GP. I was thinking of trying to get a referral to an infectious disease Dr. And an endocronologist if I can.
Anythoughts about this are welcome. I am trying to gather as much ammo i can before seeing Doctors since they dont seem to care.
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