I just stopped by to introduce myself. I am a disabled, widowed, cancer patient with CFS/FM as well as ADD. I had emergency cancer surgery/diagnoses for advanced stage colon cancer in March of 2002 along with a complete hysterectomy for uterine cancer. Ten months later my husband died while I was still going through chemotherapy. Seven months after this my left leg went out from under me and every bone in my ankle broke. The ambulance took me to the hospital where they put in two metal plates and several screws to hold what was left of my ankle together.
For everyone here who suffers from chronic fatigue my heart goes out to you. For me it is the worse part of everything I am going through. I am now alone trying to complete the repairs on our older home that my husband and I started before my emergency surgery. There is electrical, plumbing, carpentry to do. I have been painting and finishing the job of pulling up the rest of the old carpets. The ADD makes life interesting. I need a well organized environment to function well and with everything still torn up around here there is no order at all. With being sick and now with the house torn up in the process of repairs is making life more than just a little challenging. It has become too much to tackle alone.
If you would like to learn more you may visit my personal site at:
One thing is so true - laughter is truly the best medicine. As long as I continue to see the humor it will somehow be all right.
Take care everyone. I’m looking foreword to getting to know you.
Thanks for the warm welcome to the family.
Wow, you too have your trials don’t you? How is your MS? As for the anxiety/panic attacks, I suffered terribly from that condition for about five years. I had been is a serious car accident in 1993 were a driver ran a red light and slammed into the passenger’s side of the car caving it in where it caused the dash board to fold up like an accordion and breaking out all the windows in the car. The anxiety/panic, ptsd started while driving down the highway at 6AM one morning. I had to ask myself, “What are you afraid of? There are only a few cars on the road at this hour in the morning.” I then had to repeatedly tell myself that I was in fact safe and not going to just up and die. This went on for several months. It was at that time it progressed to general panic/anxiety attacks just out of the blue that would occur just about anywhere at anytime. My husband spent the next five years gently loving me though this ordeal.
As for your fibromyalgia/chronic fatigue, how do you cope? This is the most difficult part of what I am going through. People who have not had to deal with this incredible disabling physical condition think it is something you can just go sleep off. Or else they think it is all in your head as is the case with some doctors. All I can say is, “Don’t we wish we could just sleep it off!” Oh, what a happy day that would be. I have had this fatigue/pain for nine years now. The medication I take helps but does not eliminate the symptoms where I would be allowed to hold down a full time job. But even at that I am grateful for any relief that comes my way no matter how small.
I am grateful that I do not have the depression on top of everything else to cope with. How do you manage? Do you have a good support group at home that helps you cope? I think, for me, the social isolation imposed by a society that does not want to be bothered with a disabled, widowed, cancer patient is one of the most difficult parts of all that I am going though. That part of the situation has caused a lot of heartache.
As for the ankle, it works most of the time. When it acts up I just rest until it settles down and allows me to resume my life.
Again, thank you Annie for the warm welcome.. You’re terrific.
Post Edited (Annieoakley) : 11/2/2005 3:06:25 PM (GMT-7)
Oh my Annie. No wonder you are having the physical problems you are going though. My goodness!!
I am holding my own, barely.
Why did this car that ran into yours continue to hit your car for a total of three times? Why didn’t they just cut the engine and get out of their car and try to help you? My goodness Annie. Did you get any financial compensation for all you went through? I am so relieved to read that you do have support. Does this support come from your family or where?
Boy, we are a couple of tough cookies I think.
It was so good to get your email. This fibromyalgia/chronic fatigue is just incredible to live with. I think I am just now starting to come down with a cold or something. I just took some Nyquil so I should be feeling better shortly. However, I'm getting plenty of exercise running to the restroom. LOL
Post Edited (Annieoakley) : 11/2/2005 7:16:12 PM (GMT-7)
After the ambulance took me to the hospital from the car accident the emergency room doctor told me the same thing about "your gonna feel worse before you get better.” And yes, he was not making an understatement by no means. And for being black and blue. Oh yes. And the colors become very interesting as you begin to heal.
I am relieved to read that you have a wonderful support system. I know when my husband was still alive we went through the cancer and all the related nightmare issues together. Being alone means I cannot do chemotherapy because of the passing out issues. So now I must just ride it out the best I can. I only wish the home were repaired and livable so that I could function better. Also, if I knew that help was available I would not feel so overwhelmed with the situation. When I am flat on my back and not able to get out of bed for a time that is when the silence and isolation of being totally alone really gets too me. I begin to think, “Ok, now how am I going to get to the phone if I get to the place that I can’t get up?” And I try to remember to have enough water next to the bed with any needed medications and a barf pan if one is needed. I even finally set the porta-potty next to the bed after the fall I took in the hallway trying to make it to the restroom. I never gave any of this too much thought when I had the help that was needed. But, oh boy, I sure do now!!
I am so proud of you for taking a time out in your bedroom when you feel overwhelmed. How did you ever come up with such a good plan of coping? I know when I was raising my son I took advantage of every opportunity to participate in the parenting classes and support groups that were offered though his school. That time out issue was a biggy. Most of the parents there, especially when our kids were in the K-6th grades had not even considered a time out as a way to cope with stressful situations. I know on the many occasions I used this method of coping the results were always good. The one day I locked myself in the bathroom because no one wanted to allow me my time out was interesting. We only had the one bathroom. LOL
After taking the Nyquil I’m feeling much better. Took a really nice, long nap. We know how those can help. LOL