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JMPJCK
New Member


Date Joined Oct 2005
Total Posts : 5
   Posted 10/30/2005 8:45 PM (GMT -7)   
Hi everyone,

I just stopped by to introduce myself. I am a disabled, widowed, cancer patient with CFS/FM as well as ADD. I had emergency cancer surgery/diagnoses for advanced stage colon cancer in March of 2002 along with a complete hysterectomy for uterine cancer. Ten months later my husband died while I was still going through chemotherapy. Seven months after this my left leg went out from under me and every bone in my ankle broke. The ambulance took me to the hospital where they put in two metal plates and several screws to hold what was left of my ankle together.

For everyone here who suffers from chronic fatigue my heart goes out to you.  For me it is the worse part of everything I am going through.  I am now alone trying to complete the repairs on our older home that my husband and I started before my emergency surgery. There is electrical, plumbing, carpentry to do. I have been painting and finishing the job of pulling up the rest of the old carpets. The ADD makes life interesting. I need a well organized environment to function well and with everything still torn up around here there is no order at all. With being sick and now with the house torn up in the process of repairs is making life more than just a little challenging. It has become too much to tackle alone.

If you would like to learn more you may visit my personal site at: 

http://mypeoplepc.com/members/jspr007/patricia/

One thing is so true - laughter is truly the best medicine. As long as I continue to see the humor it will somehow be all right.

Take care everyone. I’m looking foreword to getting to know you.

Patricia


Annieoakley
Regular Member


Date Joined Oct 2004
Total Posts : 310
   Posted 10/30/2005 9:01 PM (GMT -7)   
Hi Patricia,
Welcome to Healing Well, we are so glad you found us. WOW, you sure have been thru alot, I am so sorry to hear that you have lost your husband my heart just breaks for you. That was quite a fall you took to break all the bone in your ankle, How are you feeling now? I just wanted to let you know that we are all here for you and we will help in anyway we can, this place is a home away from home, the people here are wonderful, caring, and understanding and I can't wait for them all to introduce themselves to you. Again welcome to our little family. please take care of yourself.
Annie
 
Fibromyaligia, dx Oct 2004 but we are sure I have had this for about 4-5 yrs maybe longer.
Chronic fatigue Syndrome dx 1995
Anxiety/Panic attacks dx 1990
M.S. dx June 29th 2005
Anemia dx Jan 2005
Depression..lets just say for  a while now.

Meds: Amitriptyline
Lorazepam
Celexa
Ferrous Glouconate
Ibuprofen 600mg
and soon to start on
Rebif or Avenox

JMPJCK
New Member


Date Joined Oct 2005
Total Posts : 5
   Posted 10/31/2005 3:08 AM (GMT -7)   

Dearest Annie,

Thanks for the warm welcome to the family.

Wow, you too have your trials don’t you? How is your MS? As for the anxiety/panic attacks, I suffered terribly from that condition for about five years. I had been is a serious car accident in 1993 were a driver ran a red light and slammed into the passenger’s side of the car caving it in where it caused the dash board to fold up like an accordion and breaking out all the windows in the car. The anxiety/panic, ptsd started while driving down the highway at 6AM one morning. I had to ask myself, “What are you afraid of? There are only a few cars on the road at this hour in the morning.” I then had to repeatedly tell myself that I was in fact safe and not going to just up and die. This went on for several months. It was at that time it progressed to general panic/anxiety attacks just out of the blue that would occur just about anywhere at anytime. My husband spent the next five years gently loving me though this ordeal.

As for your fibromyalgia/chronic fatigue, how do you cope? This is the most difficult part of what I am going through. People who have not had to deal with this incredible disabling physical condition think it is something you can just go sleep off. Or else they think it is all in your head as is the case with some doctors. All I can say is, “Don’t we wish we could just sleep it off!” Oh, what a happy day that would be. I have had this fatigue/pain for nine years now. The medication I take helps but does not eliminate the symptoms where I would be allowed to hold down a full time job. But even at that I am grateful for any relief that comes my way no matter how small.

I am grateful that I do not have the depression on top of everything else to cope with. How do you manage? Do you have a good support group at home that helps you cope? I think, for me, the social isolation imposed by a society that does not want to be bothered with a disabled, widowed, cancer patient is one of the most difficult parts of all that I am going though. That part of the situation has caused a lot of heartache.

As for the ankle, it works most of the time. When it acts up I just rest until it settles down and allows me to resume my life.

Again, thank you Annie for the warm welcome.. You’re terrific.

Patricia


Annieoakley
Regular Member


Date Joined Oct 2004
Total Posts : 310
   Posted 11/2/2005 3:01 PM (GMT -7)   
Hi Patricia,
I wanted to see how you are doing today, we think I got fibro far a car accident 11 yrs ago.... I was driving in the winter time and I heard something in my back tire so I pulled the car over and saw a big chunk of ice on my tire and I took a ice scraper to bang off the ice from the tire and this car  drove by my car slid on ice and slammed into me and pinned me against my car then backed up proceded to hit and pin me again ... my children were in the car while this was all happening...then someone pulled me away from my car and then the car again hit my car for a 3rd time...so again with this trama the Dr think this is what caused Fibro and CFS

how do I cope and manage to cope with all of this???? lots of meds and support

Fibromyaligia, dx Oct 2004 but we are sure I have had this for about 4-5 yrs maybe longer.
Chronic fatigue Syndrome dx 1995
Anxiety/Panic attacks dx 1990
M.S. dx June 29th 2005
Anemia dx Jan 2005
Depression..lets just say for a while now.

Meds: Amitriptyline
Lorazepam
Celexa
Ferrous Glouconate
Ibuprofen 600mg
and soon to start on
Rebif or Avenox

Post Edited (Annieoakley) : 11/2/2005 3:06:25 PM (GMT-7)


Annieoakley
Regular Member


Date Joined Oct 2004
Total Posts : 310
   Posted 11/2/2005 3:03 PM (GMT -7)   
Hi Patricia,
I wanted to see how you are doing today, we think I got fibro far a car accident 11 yrs ago.... I was driving in the winter time and I heard something in my back tire so I pulled the car over and saw a big chunk of ice on my tire and I took a ice scraper to bang off the ice from the tire and this car by my car slid on ice and slammed into me and pinned me against my car then backed up proceded to hit and pin me again ... my children were in the car while this was all happening...then someone pulled me away from my car and then the car again hit my car for a 3rd time...so again with this trama the Dr think this is what caused Fibro and CFS....................... so.......how do I cope and manage to cope with all of this???? lots of meds and support
So that is my story, again how are you doing, hope to hear from you again soon.
Annie

Fibromyaligia, dx Oct 2004 but we are sure I have had this for about 4-5 yrs maybe longer.
Chronic fatigue Syndrome dx 1995
Anxiety/Panic attacks dx 1990
M.S. dx June 29th 2005
Anemia dx Jan 2005
Depression..lets just say for a while now.

Meds: Amitriptyline
Lorazepam
Celexa
Ferrous Glouconate
Ibuprofen 600mg
and soon to start on
Rebif or Avenox

JMPJCK
New Member


Date Joined Oct 2005
Total Posts : 5
   Posted 11/2/2005 4:44 PM (GMT -7)   

Oh my Annie. No wonder you are having the physical problems you are going though. My goodness!!

I am holding my own, barely.

Why did this car that ran into yours continue to hit your car for a total of three times? Why didn’t they just cut the engine and get out of their car and try to help you? My goodness Annie. Did you get any financial compensation for all you went through? I am so relieved to read that you do have support. Does this support come from your family or where?

Boy, we are a couple of tough cookies I think.

It was so good to get your email. This fibromyalgia/chronic fatigue is just incredible to live with. I think I am just now starting to come down with a cold or something. I just took some Nyquil so I should be feeling better shortly. However, I'm getting plenty of exercise running to the restroom. LOL

Take care.

Patricia


Annieoakley
Regular Member


Date Joined Oct 2004
Total Posts : 310
   Posted 11/2/2005 7:13 PM (GMT -7)   
Hi Patricia,
 
the officer said that it was a patch of black ice and that the car kept sliding into me.... you think they would of been smart enough to shut off the car. I did not get alot of finacial compensation...the insurance said that because I was not working...(excuse me I was a stay at home mom trying to take care of 2 toddlers) that I really was not losing money from employment.
I remember the Dr at the hospital saying "your gonna feel worse before you get better...and boy or boy was he right, the next day was the worst, every move I made was sooooo  painful that I wanted to die, and I was black and blue from head to toe, everytime I breath in you could here my chest cracking, it was just an aweful thing to go thru....I would not of wished that on my enemy.
 
My support comes from my husband and my 4 boys and other family, it really helps alot. but there are times when I can't be around them because I am in a mood where I just want to scream and yell and I don't want to do it to them, so I go to my bedroom for a good hour or so and when I feel that I have calmed down I came out and let them know how I was feeling.
I agree about the fibro and CFS, it is incredible thing to deal and live with...but we do it don't we.
I'm sorry to hear your under the weather, it's no fun when your sick. I don't know about you but with me when I get sick it takes for ever to get better. Well got go for now take care takes lots of Vitamin C for your cold and I hope you feel better soon.
Annie
 
Fibromyaligia, dx Oct 2004 but we are sure I have had this for about 4-5 yrs maybe longer.
Chronic fatigue Syndrome dx 1995
Anxiety/Panic attacks dx 1990
M.S. dx June 29th 2005
Anemia dx Jan 2005
Depression..lets just say for  a while now.

Meds: Amitriptyline
Lorazepam
Celexa
Ferrous Glouconate
Ibuprofen 600mg
and soon to start on
Rebif or Avenox
 
 

Post Edited (Annieoakley) : 11/2/2005 7:16:12 PM (GMT-7)


JMPJCK
New Member


Date Joined Oct 2005
Total Posts : 5
   Posted 11/3/2005 3:11 AM (GMT -7)   

Dearest Annie,

After the ambulance took me to the hospital from the car accident the emergency room doctor told me the same thing about "your gonna feel worse before you get better.” And yes, he was not making an understatement by no means. And for being black and blue. Oh yes. And the colors become very interesting as you begin to heal.

I am relieved to read that you have a wonderful support system. I know when my husband was still alive we went through the cancer and all the related nightmare issues together. Being alone means I cannot do chemotherapy because of the passing out issues. So now I must just ride it out the best I can. I only wish the home were repaired and livable so that I could function better. Also, if I knew that help was available I would not feel so overwhelmed with the situation. When I am flat on my back and not able to get out of bed for a time that is when the silence and isolation of being totally alone really gets too me. I begin to think, “Ok, now how am I going to get to the phone if I get to the place that I can’t get up?” And I try to remember to have enough water next to the bed with any needed medications and a barf pan if one is needed. I even finally set the porta-potty next to the bed after the fall I took in the hallway trying to make it to the restroom. I never gave any of this too much thought when I had the help that was needed. But, oh boy, I sure do now!!

I am so proud of you for taking a time out in your bedroom when you feel overwhelmed. How did you ever come up with such a good plan of coping? I know when I was raising my son I took advantage of every opportunity to participate in the parenting classes and support groups that were offered though his school. That time out issue was a biggy. Most of the parents there, especially when our kids were in the K-6th grades had not even considered a time out as a way to cope with stressful situations. I know on the many occasions I used this method of coping the results were always good. The one day I locked myself in the bathroom because no one wanted to allow me my time out was interesting. We only had the one bathroom. LOL

After taking the Nyquil I’m feeling much better. Took a really nice, long nap. We know how those can help. LOL

Warm thoughts,

Patricia


Annieoakley
Regular Member


Date Joined Oct 2004
Total Posts : 310
   Posted 11/13/2005 9:35 AM (GMT -7)   
Hi Patricia,
I'm just checking up on you to see how you are doing theses days, haven't heard from you in a bit.How are things going? write when you get the chance o.k. take care.
Annie
 
Fibromyaligia, dx Oct 2004 was recently told 12 years.
Chronic fatigue Syndrome dx 1995
Anxiety/Panic attacks dx 1990
M.S. dx June 29th 2005
Anemia dx Jan 2005
Depression..lets just say for  a while now.

Meds: Amitriptyline
Lorazepam
Celexa
Ferrous Glouconate
Ibuprofen 600mg
and soon to start on
Rebif or Avenox

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 11/13/2005 12:44 PM (GMT -7)   
Hi Patricia ........Have been reading your posts and you have certainly got your share plus someone else"s lol.......I would like to Welcome you to Healing Well and let you know there are great peeps here such as "Our Annie" and many others as well ........you will get support ,care and honest empathy here on this site as we are all sick with one disease or another .......I have Crohn's , Pyoderma Gangrenosum and also deal with Anxiety and Panic issues on a daily basis ........The best thing about here is you meet friends that you will have forever if you so choose and I know I have some great friendships come from this site over the last year . We cry together and share our trials and daily tribulations as well we do laugh together too ......you are so right ......Laughter is what gets us thru every day and my spirituality of course ........Glad you found us keep posting and let us know how you are ........God Bless ........Lyn
 
Contribute today to support Healing Well Forums...Donate @
 
    I cannot keep your feet from stumbling..........I can only offer my hand that you might grasp it and not fall...........Lyn  
 
 
 
 
                              


JMPJCK
New Member


Date Joined Oct 2005
Total Posts : 5
   Posted 11/13/2005 1:45 PM (GMT -7)   
Hi Annie and Lyn,
 
Wow!!!  I've been down for the count for a while now. How are you two doing?  Lyn, I got your email.  I replied not knowing really what is was all about.  It was not until I went down my list of emails that I began putting it all together. LOL 
 
I am just hanging on really tight waiting for some help to come along. LOL 
 
I hope your having a pretty good day. LOL  For us pretty good is fantastic. LOL
 
Patricia

joci
Regular Member


Date Joined Dec 2005
Total Posts : 93
   Posted 12/28/2005 10:02 PM (GMT -7)   
hi patrica i just wanted to welcome u ,i just found this site like 4 wks ago i love 2 be able to talk 2 people that understand wat i am going through.u have been through alot thats for sure and i hope it gets beta 4 u. u will meet some nice people that care and understand. i am 28 i was diagnosed with fibro wen i was 18 had symptoms since 17. l guess i am lucky i got diagnosed so fast but at that age i was just starting my life so it really did suck! i am on disability and still living with my parents i wish there was a magic pill to cure all of my problems. i wish i could work and just b normal again! i went to school to ba esthatician butmy future it doesnt look as planned. i have learned about new meds i never heard of b4 on here i just write them all down and then look um up i have a dr apt in a few wks and i am gonns ask her opinion of them
if u ever wanna talk e mail me sexijoci@aol.com i am on here alot usually a bit more at night cuz i have insomnia!! lol hope to talk 2 u soon
love to hear from u.
                           
                          joci
 
28 yr old from mass. i got fibro, migraines, anxiety, scholiosis, osteoporosis, ibs-d.i also have difficulties with tollerating meds! and chronic fatigue syndrome, acid reflex, asthma, allergies and insomnia-at night. im tired all day!planter feciatis-pain in feet, depression.
meds i take-neurontin, elavil, singular, prevacid, fosamax-1 wk, klonapin, atenolol, demeral and vistral- as needed for headache and pain,cholestyramine powder, provigil-as needed for major fatigue, and claritin.

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