Chronic fatigue sufferers. Hear me out

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Lovedeeply
Regular Member


Date Joined Mar 2016
Total Posts : 37
   Posted 5/28/2016 12:17 AM (GMT -6)   
Diagnosed with chronic fatigue syndrome after seeing around 30 doctors.

In the beginning I just felt bad..good days and bad days. But mainly bad days. Then insomnia and anxiety set in. This went on for years.

Long story short. I began to suspect Lyme disease. My PCP told me if I got Lyme a long time ago I would have gotten over it. THIS IS NOT TRUE.

My speech was affected. I had dizzy spells when standing. My hair falls out. Tingling and numbness.

I'm sort of rambling. But. Lyme is the cause for MS, fibromyalgia, lupus, CFS. And more.

Please go to ilads.org and get a referral for a Lyme literate Dr.

If you want to get to the root cause of your problems. You can research all this on your own and please watch the under our skin trailer. Its on YouTube. I lived through hell and I want to help as many as possible.

God bless

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10404
   Posted 5/29/2016 9:25 AM (GMT -6)   
I'm glad you found an answer to your questions. You seem to mean well, but please realize that it can be very offensive to some people to go to "their" forum and find someone telling them that their diagnosis is "really" something different.

Posts similar to this appear periodically on HealingWell and inevitably result in hurt feelings and offended members. We maintain a Lyme forum for people who want to discuss Lyme topics. I encourage you to share with others there.
Thyroid forum moderator

Ulcerative colitis; 10thyear of remission with Remicade. Inflammatory osteoarthritis; osteonecrosis from steroids. Grave's disease post-RAI and now on Levothyroxine. Type II diabetes induced by steroids. #ucsucks

Lovedeeply
Regular Member


Date Joined Mar 2016
Total Posts : 37
   Posted 5/31/2016 8:23 PM (GMT -6)   
Having been diagnosed with chronic fatigue syndrome myself, I certainly feel my post has a place here, sir or maam. I figured when I saw I had a reply to this comment that it would be someone such as yourself, easily offended or standing up for someone else who is. . So flag me. Whatever. I do post in the lyme forum.

Next time, just delete said offensive comment instead of wasting my time as well as your own.

Thank you.
March 2016 clinical diagnosis of lyme, bartonella, and babesia.

theHTreturns...
Elite Member


Date Joined Mar 2009
Total Posts : 19780
   Posted 6/1/2016 2:43 AM (GMT -6)   
lovedeeply, that is not nice to offend someone who cares a real lot for there members. the Moderater was very courteous to you, and as a long time member I am standing up for our mods. we all have our opinions and such, that is cool, even differences, however without moderators here we have anarchy.
THE HAPPY TURTLE.

A QUOTE FROM THE HAPPY TURTLE THAT REFLECTS ME.

"COMPLEXITY IS MY WAY OF EXPRESSING MY NEEDS IN A MANNER THAT IS NEITHER DESTRUCTIVE, NOR NEGATIVE"
'

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3539
   Posted 6/1/2016 5:46 PM (GMT -6)   
Lyme is not the cause of MS.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.
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