Just need somewhere to go

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Kaliska
New Member


Date Joined Sep 2016
Total Posts : 3
   Posted 9/24/2016 4:15 AM (GMT -6)   
I'm not sure what I might have but constant insomnia, crashes of energy, and so on have led me to at least chronic fatigue syndrome. Getting answers from doctors is near impossible and I often end up suggesting diagnosis to them that turn out correct so I haven't bothered to figure it out in detail yet. A psychiatrist treats me for insomnia.

My other forum changed design and it's horrible to use, near impossible on my lower resolution laptop until I got this new one, so I went searching and I am here. I just need somewhere to post occasionally. A few days ago when I signed up I needed somewhere I could tell people I felt like crying over my exhaustion and limitations and that I was determined not to. Well I shot veiled insults back to the person who caused the depressed feelings and then "went dark". When my people limit is reached I go dark where FB, phone, aim... are all silenced if not fully off. I played a game, I watched a show which I had to replay parts several times because I kept getting lost in thought, and I reminded myself that I am doing everything I can possibly do so whether other people understand or not is their problem. Also that I told someone the day before I would not cry anymore. I ran out of fight for an evening but not forever. Today I hiked 9 miles. Did not accomplish that shower or moving the 10g fish tank though.

It's 5 am and I'm going to try to go back to sleep.

ThePenTurner
New Member


Date Joined Sep 2016
Total Posts : 9
   Posted 9/25/2016 2:45 PM (GMT -6)   
Hello Kaliska,
I am almost 50 years old and was diagnosed about 3 years ago with Fibromyalgia & osteoarthritis. about 14 years ago I was diagnosed with RLS, restless leg syndrome. For my RLS, I take 8-12mg everyday. Even before that time I had serious sleep issues. There have been days that I have been awake in excess of 40 hours. Just last week I was up for over 42. Normally after sleep deprivation, I catch up by sleeping about 12-16 hours. That has not happened yet, the most that I have been able to sleep is about 5.5 hours. I have an expensive mattress that I can no longer stand and I am thinking about getting a recliner that will lay almost flat to sleep, watch TV & do my college homework in. Unless my wife or kids has me to do something, I do not leave my bedroom on most days. I used to work 50-60 hours and now I can barely get out of bed. I am sorry about the doctors you have to deal with, my doctor will listen but normally frowns when I mention researching the internet with my symptoms. My wife switched doctors 8-9 months ago and her new one actually appreciates us searching for possible answers. Most medical doctors here in Western Kentucky do not like chiropractors, or things like acupuncture or even a simple TENS unit. These things work for me struggle through each passing day. I wish you luck!
Almost 50 y/o and seem to be falling apart. I have been diagnosed with Fibromyalgia, Osteoarthritis, Restless Leg Syndrome, Lyme Disease, Rocky Mountain Spotted Fever, Type 2 diabetes and all sorts of migraines and on good days just a simple tension headache, I had Viral Meningitis in December 2009, that caused me to have brain damage and after that things got much worse.

Kaliska
New Member


Date Joined Sep 2016
Total Posts : 3
   Posted 9/25/2016 2:50 PM (GMT -6)   
I was sleeping 2 hrs a night. After I caught up sleep on meds but stopped them due to side effects I didn't sleep for 3 days and then for 5 days and showed up in the ER going "give me anything!". I got tossed around to my new psychiatrist and was on 800mg of seroquel at one point when I said this is a dead end road. I more than doubled my weight and I had a back infection that was not noticeably spiking my white cell count much so it floated around causing random inflammation for 3 years. My heart wouldn't go below 100bpm and made 160 at one point. My heart and lungs have improved. The ER had basically written me off as a hypochondriac for coming in with hyperventilation but I think it was lingering effects. Muscle mass is coming back. I still have chronic UTIs and similar things. Some parts of me are always in irritation.

ThePenTurner
New Member


Date Joined Sep 2016
Total Posts : 9
   Posted 9/25/2016 3:00 PM (GMT -6)   
Have you ever taken Mirtazipine for sleep? I had a doctor give it to me and it does quite well without being overly tired the next day.
Almost 50 y/o and seem to be falling apart. I have been diagnosed with Fibromyalgia, Osteoarthritis, Restless Leg Syndrome, Lyme Disease, Rocky Mountain Spotted Fever, Type 2 diabetes and all sorts of migraines and on good days just a simple tension headache, I had Viral Meningitis in December 2009, that caused me to have brain damage and after that things got much worse.

Kaliska
New Member


Date Joined Sep 2016
Total Posts : 3
   Posted 9/25/2016 3:14 PM (GMT -6)   
I have tried notebook pages worth of meds. Unless you have something really unique I'd rather not get suggestions. Sorry but I just get it constantly when I mention I have insomnia and it wears on my energy confirming I've tried everything everyone mentions. Prescription and not. Finally ditched the antipsychotics.

ThePenTurner
New Member


Date Joined Sep 2016
Total Posts : 9
   Posted 9/25/2016 5:04 PM (GMT -6)   
My apologies. I did not have intentions to trouble you. It seems to me that the VA changes at least 3 of my medications every 6 months or so. The ones that I mentioned were the ones that stood out and worked for me. As you mentioned in a previous statement, I do completely understand what it is like when the doctors would rather say that you are crazy or nuts instead of taking the time to diagnose you problems. Again, I am sorry.

Maybe you will sleep tonight.
Almost 50 y/o and seem to be falling apart. I have been diagnosed with Fibromyalgia, Osteoarthritis, Restless Leg Syndrome, Lyme Disease, Rocky Mountain Spotted Fever, Type 2 diabetes and all sorts of migraines and on good days just a simple tension headache, I had Viral Meningitis in December 2009, that caused me to have brain damage and after that things got much worse.
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