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Foreign
Veteran Member


Date Joined Jul 2004
Total Posts : 674
   Posted 12/6/2005 12:54 PM (GMT -7)   
Hey Everyone....
Just wondering what everyone has been up to.
If there are any new members lurking....Introduce yourselves :)
Hope to hear from someone.
Mel
Co-Moderator for Fibro
Moderator for CFS


snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 12/8/2005 8:40 PM (GMT -7)   

nono  SHHH !! You'll wake the hibernating sloths.... tongue

Maybe it's just because there is such a strong seasonal component to my health, but I'm inclined to think that most CFS sufferers are likely to hit the same "winter brick wall" of lack of oomph as I do.

This year I hoped I might avoid it...had just started on a new organic diet, was much healthier than earlier in the summer - although that's not saying much - then at the end of October I went  away on a fortnight's holiday to Sri Lanka and Thailand, ending up in the Kho Samui in the South. Gorgeous sunshine, lovely fresh organic food, no gluten anywhere in sight...maybe it was the insecticides that they sprayed us with on the aircraft, maybe it was the tired old food the supermarkets sell here, or just the fact that when I came home I was switching the lights on at midday, but when I came home it was as if my body just lapsed into instant biochemical despair ! All the benefits of those years of getting acclimatised to the Scottish weather, being able to work outside in all conditions with nary a thought...gone. I spend all my time with the heating on, and just can't get back to feeling fit.

tongue  Oh well, if it's not weather for gardening then it looks like it's the bookworming/cybersurfing season.... anyone read any good books recently ?


Foreign
Veteran Member


Date Joined Jul 2004
Total Posts : 674
   Posted 12/9/2005 7:19 AM (GMT -7)   
HAHA
Thanks for responding ...
You are so lucky to visit those places...I've only been in Canada and the US.
I know the winter months are affecting my fibro lately...been pretty sore.
And nope the only books my nose has been in are my school books....which i'm doin pretty well in.
Got any suggestions for a book???
Mel
Co-Moderator for Fibro
Moderator for CFS


Donkey
New Member


Date Joined Mar 2006
Total Posts : 12
   Posted 3/31/2006 8:53 PM (GMT -7)   
smurf   Hi Mel and everyone !
 
 I just joined today and thought I would say hello.  Youe sight seems really nice and alot of info. So looking forward togetting to know everyone and learn more about what I can't seem to change LOL...
 
I am 42 years old have 4 children,21,19,12 and 4yrs. and I have FM and CFS/ME  So am in pain everyday. I am still trying to come to terms with having to accept these illnesses and learn to be happy anyway, not a easy thing to do. sad    But I'm looking forward to the support here and the support i hope to be able to give back.
 
HUGS,
Donkey :-)
 
  Donkey ears watching over me~ALWAYS...


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 4/1/2006 7:28 AM (GMT -7)   
Hi Donkey and welcome. I have multiple health issues too. I was diagnosed with CFS in 1991, but after several years my symptoms got better and I was able to live a fairly normal life although I got tired more easily than most people. Then about 2 1/2 years ago I got really sick and I'm now being treated for lupus. I spend a lot of time on the lupus forum and I'm a co-moderator for that forum, but I decided to try to start posting here more often. It is a pretty quiet forum compared to a lot of the other forums here, but it seems like there are a few members here who can keep things going and hopefully we'll get more activity on this forum.

I am a mom too. I have a 4yr old girl and an 8 yr old boy. At first I had a lot of guilt that I couldn't do a lot with my kids anymore, but over time I have been finding different ways to be with my kids such as snuggling up and reading a book or watching a movie, or coloring together.

I can also relate to being in pain everyday. Even with meds I am never pain free and a lot of times the pain is pretty severe, not to mention the fatigue. Has your doc got you on any meds?

I'm glad you joined. I'm sure you saw that there is also a FMS forum here too.

Take care
Diagnosis:  Suspected Lupus 2004; Raynauds 2006; CFS 1991
                Mono 1985
Meds:  Plaquenil 400mg; Tramadol 100mg 3-4xdaily; Amitriptyline 10mg
          Neurontin 200mg; Steroid Cream and Mouth Rinse for mouth
          and tongue ulcers
 
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Donkey
New Member


Date Joined Mar 2006
Total Posts : 12
   Posted 4/1/2006 8:07 PM (GMT -7)   
smurf  Hi there, thank you for your reply and yes i too am on pain meds. wich do not leave me pain free either.  It is hard to get over the guilt & saddness of not being able to have the energy to do things like I use to with my kids.  Yes i agree with you on finding new ways or other ways to be with them and easier to do with the young ones as they are still little but my 21 & 19 are more busy and they understand but I just miss being me.
 
Thankyou for welcoming me here and yes i did see the FM site too, its great to be able to go from one to another to get support.  Sorry you also have Lupus. sad    But your too in the right place reaching out for support. hugs
Donkey tongue
 
  Donkey ears watching over me~ALWAYS...


Foreign
Veteran Member


Date Joined Jul 2004
Total Posts : 674
   Posted 4/3/2006 1:29 PM (GMT -7)   
Hi Donkey and Welcome aboard!!!!
I too have FM, and am just now getting help with it after 6 years of trying to get a new doctor.
I am going on 22 this month, and have no children..so I commend those parents out there that can deal with this disease and still manage their children.
Anyways just wanted to welcome you :)
Later Dayz

Mel
Co-Moderator for Fibro
Moderator for CFS
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Donkey
New Member


Date Joined Mar 2006
Total Posts : 12
   Posted 4/3/2006 1:35 PM (GMT -7)   
:-)  Thank you Mel for the nice warm welcome !  yes it is hard to handle having kids with this, but I gues I can say to it is just hard to handle it with living life period ! hugs to all we need it for sure.
Donkey
 
  Donkey ears watching over me~ALWAYS...

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