Chronic Fatigue or Lyme? Treatments?

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ACF612
Regular Member


Date Joined Dec 2014
Total Posts : 21
   Posted 2/26/2017 9:46 AM (GMT -6)   
A little bit about myself, I am a college student who has been dealing with Lyme Disease for almost three years. I was first diagnosed in 2014 by my infectious disease specialist, and received treatment with Doxycycline for 6 weeks. Once I stopped the medication, I got all my symptoms back full force. My doctor then put me on an additional two weeks of Doxy but I did not feel any effect from it. I tried an herbal supplement protocol for 4 months and I didn't feel any improvement. I even tried having my infectious disease specialist switch antibiotics, so I tried Zithromax for a 2 weeks and I had to stop because I was experiencing extreme fatigue a few hours after I took it. I've bounced around from many doctors, including LLMDs, with no results, but most recently, I found an LLMD that may have the answer to getting me well. At my appointment I brought him all the bloodwork I have received from 2014 until now and my most recent bloodwork said that the Borrelia came out positive. Both the iGG and the iGM came out positive and it was the strand p41. The first time Lyme came out positive for me in 2014, it showed a different strain (p39) instead of p41 and only the iGM showed up positive. What exactly does this mean? Do you think I am still dealing with Lyme or was my Lyme treated and do I have chronic fatigue as a result? In my doctor's opinion, he thinks my Lyme was already treated and I am now dealing with chronic fatigue.

The treatment that my most recent LLMD wanted to start me on was low dose Naltrexone, glutathione drops, vitamin b6 P5P, sublingual B12, and activated charcoal for detoxing. I'm a little skeptical about the prescription. Has anyone tried LDN and has it cured or managed their fatigue? The only severe symptom I am experiencing is fatigue, but I notice that exercise and the heat makes my fatigue worse. I occasionally get headaches and forgetfulness, but it's manageable.

Lastly, my LLMD asked me if I had any strange symptoms and I told him that on my latest bloodwork, they did a food allergy test and it said I was allergic to beef. It's funny because even before I found out my food allergies, I noticed every time I ate beef I would feel unusually tired a few hours after eating it. My doctor found that kinda odd and suggested that I could have Stari - an infection caused by a lone star tick. Do you think this may be the case? Knowing that the Lyme blood tests are inaccurate, my doctor suggested a DNA test for Lyme. Should I get a DNA Lyme test to confirm if I still have it or is it not accurate?

Thank you,

Angelica

mcspike
Regular Member


Date Joined Sep 2016
Total Posts : 114
   Posted 3/19/2017 7:02 PM (GMT -6)   
Hi Angelica,
I 1st started getting symptoms in late 2005; but it wasnt until 2014 when I FINALLY got the 'right' Dr...after years of bouncing around from dr. to dr. I was told its just allergies, GERD, anxiety, and thyroid imbalance. Then in 2010 after my 1st so-called negative Lyme test, I was diagnosed w/CFS and fibromyalgia.

I had 2 more Lyme tests reveal indeterminates which means not negative OR positive. My 4th Lyme test revealed one * on band 41.....then I did the DNA testing that revealed for the FIRST time, a 100% yes I have Lyme disease....

I have CFS AND fibromyalgia as A RESULT of misdiagnosed and untreated Lyme disease. Im 52 and its ruined my life. I have permenent damage from years of no treatment...

W/that said-you need longer term antibiotics and you REALLY NEED to take supplements that'll help your body get rid of all the dead bacteria known as biotoxins.

Also VERY GOOD to know is that Lyme disease almost always involves MULTIPLE infections such as parasites, virals, AND fungal, and toxins such as heavy metals(too much mercury or lead) that each need to be addressed.

If you've still got symptoms=youve STILL GOT Lyme disease!

I am so sorry. I hope you can get additional treatments.

ACF612
Regular Member


Date Joined Dec 2014
Total Posts : 21
   Posted 3/20/2017 11:47 AM (GMT -6)   
@mcspike Thank you for the reply. I agree totally with what you said. I am still experiencing symptoms so I believe I am still dealing with Lyme. Some of my doctors thought otherwise and labeled it as just chronic fatigue. I plan to get more testing such as Igenex, and a DNA test may sound like a good idea since I never had that done before.

I've been on and off supplements and had to stop because of adverse effects. They made my fatigue worse. Any recommendations for supplements that may help with Lyme?
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