DR's tell me I'm fine...

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bukowski
Regular Member


Date Joined Jul 2015
Total Posts : 27
   Posted 5/16/2017 8:27 PM (GMT -6)   
I cannot seem to get anyone to listen to me, or at least acknowledge that I am not feeling well. I know I probably don't have CFS, I know very little about the severity levels of the disorder. But, Something is not right.

My brief history: Diagnosed with autoimmune hep in 2000. Eventually, caused cirrhosis of the liver. Needed a transplant & received one in 2012. In 2015, I was diagnosed with UC and had my colon removed resulting in an ileostomy. I've been on a ton of meds since 2000. Soc. Sec. stopped my disability in 2016 informing me I should be able to return to work full time. I disagreed, but lost the appeal. I tried full time work and physically could not do it. I have managed to keep a very part time job for the past 7 months, 8-20 hrs/wk. I am exhausted and in pain all the time just from that. Swollen ankles, back & leg pain, headaches and leg cramps and abdominal pain at times. I need to lay down after working just a 4 hr work day. It's hard just to make it through the day without having to sit down in the bathroom at work for a short time. I've seen 3 doctors and they all say as long as the blood results are fine, there is nothing there to diagnose. I'm just frustrated and I feel like everyone thinks I just want to get out of working. Prior to 2000, I worked 40-50 hrs/wk and loved it. I don't know what type of doctor I should see, if any. Can anyone help me? Thanks for reading.
"What matters most is how well you walk through the fire." -Charles Bukowski

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 14192
   Posted 5/17/2017 12:10 PM (GMT -6)   
Hello & welcome to Healing Well. It sounds like you have a an awful lot on your plate with the health issues. You mentioned your SSD was stopped back in 2016. At that time were you still under the care of specialists that continued to state in their medical records that you were still disabled? I know SSD can be awarded on a temporary basis & then they review the claim to see if the person is still disabled.

I know you have mentioned seeing various drs & none of them coming up with a diagnosis as to why you are in the shape you are now. Have you ever been seen by an internist, preferably someone that specializes in internal medicine? An internist takes a different approach than a general practitioner or family practice type of drs. They tend to view the problem as a whole rather than concentrating on one thing. It is really difficult for me to explain but a good internist can be valuable to someone with multiple issues. You mentioned you saw 3 drs that said your lab work was fine, what kind of drs were they?

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums
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