CFS/FM or Lymes

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JennWM
Regular Member


Date Joined Jan 2006
Total Posts : 22
   Posted 1/9/2006 3:13 PM (GMT -7)   
In 2002 I was involved in an automobile accident. My doctor told me my symptoms was from the accident. When I woke the bottoms of my feet hurt to walk on them. My legs was so weak I could hardly walk. Headache, neck pain, TMJ, IBS, Ringing in my ears. I changed doctors & he said it was FM/CFS. He give me some xanax & lortab and said basically to just deal with it.
My symptoms worsen to the point I can no longer work or even go shopping. So I went to the Fibromyalgia & Fatigue center in Houston. They have begun extensive blood work and some of the results are back. I have Epstein-Barr, Cytomegaly Virus, Mycoplasma Pneumonia, Chlamydia, and he did a Western Blot test for Lymes Disease which I had a reaction to 2 of them. I had to go back for a 2nd blood work for an infectious panel to test more for the Lymes. I have done some research on Lymes Disease and all my symptoms fit. The doctors around here didn't even mention or test for Lymes Disease. I will get the results in a couple of weeks but I thought I share this with you all since I have been suffering so long and looks like I was miss diagnosed........ 
 
Knowing how you all feel. My prayers to you all....

snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 1/9/2006 6:40 PM (GMT -7)   
Thanks. Best of luck with the herx! Have you been to the Lymie's Forum here ? Ticker's great. yeah

JennWM
Regular Member


Date Joined Jan 2006
Total Posts : 22
   Posted 1/9/2006 7:00 PM (GMT -7)   
Yeah the herx is already started!!! Yes I have been to the Lyme forum and learn alot. You are right Ticker is the greatest!! I have never been to a chat it is good to be able to have some to talk to. My family just don't understand.

Rock
Regular Member


Date Joined Oct 2005
Total Posts : 28
   Posted 1/13/2006 5:19 AM (GMT -7)   
From reading various message boards, I gather that CFS, FM and Lyme may be related. At present it all seems to be very mysterious and not very treatable.

At least for me the depression is treatable w/ antidepressants.

Maybe the news about proteins in the spinal fluid will lead to a cure someday.

And you're right, Jenn. Families, friends and bosses generally don't understand. What we need is a conspicuous symptom. "See, my fact is bright blue. That proves I'm sick!"

JennWM
Regular Member


Date Joined Jan 2006
Total Posts : 22
   Posted 1/13/2006 8:58 AM (GMT -7)   
Your right I saw on one post that if you had two broke legs in a cast then people would understand. Well that is what it feels like for me they might as well be in a cast cause on most days they just don't want to walk. My husband just don't understand. Maybe one day he will get it. ????

obs ann
Veteran Member


Date Joined Jan 2006
Total Posts : 679
   Posted 1/13/2006 7:37 PM (GMT -7)   
Dear Jenn,

You poor thing. Gosh, you tested positive on a Lot.

I have Lyme and CFS. You 'can' have both. And the researchers of CFS are finding Epstein-Barr, Cytomegaly Virus, Mycoplasma Pneumonia, Chlamydia or at least one of those in most CFS patients.

The fortunate thing, is that because those showed up, they'll know what to prescribe much better for you.

It will be interesting to hear, how they treat the 'viruses', etc. etc..

Thank God for that FM/CFS place you were able to go to in Houston. They sound like they're really on the ball.
I wish you all the best and much improvement.

Ya know, there's a lot of wives that don't understand sick husbands too. There's some good stuff on the Web about "Invisible Illnesses" as what we have is called. They even have an Invisible Illness Awareness Day.
If you type that in your search engine, and you find them, they're a great support, because they talk a lot about how we're treated because we're not dragging an Oxygen tank around.

All the best to ya Jenn.
Ann
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