New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Piano Man
New Member


Date Joined Feb 2006
Total Posts : 5
   Posted 2/21/2006 1:51 PM (GMT -7)   
confused  My 16 year old son has been sick since the first of September. He sleeps as much as 18 hours a day and does not have the energy to do anything. He has headaches all the time. He has seen 6 different doctors and specialist (neurologist, hematologist, nephrologist, etc...) and we still do not have a diagnosis. He was a straight "A" kid, on the basketball team, marching band, so this is so unlike him. My question to those of you that do have cfs...do any of you experience headaches 24/7?
oh, he has also gone had a sleep study that came out OK.

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 2/21/2006 6:24 PM (GMT -7)   
Hi piano man, welcome to HW forum. Some one will come soon to give you ideas. Has your son had liver function tests or anything or checked for autoimmune? This will cause those kind of symptoms too. I don't know anything about CF so I'm sorry I can't help you from that perspective.But these symptoms can be also be that of autoammune & liver. Might not hurt to check.My thoughts & prayers are with you & your son. later....
"There is at least one good thing in each and every day we just have to find it and if we look hard enough we will.Somedays we just have to look a little harder than others,but its alway's there.
 
Valerie


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 2/22/2006 6:21 PM (GMT -7)   
Piano Man Hi and welcome to HW,we are so glade that you have joined us.Now I'am so sorry that you son is suffereing from severe headaches I do understand what yourr son is going through.

I will try and answer you question's the best I can,I will give you a little back ground on me so you can better understand where I'am comeing from.

Ok I have crohns,ra,oa,sjerns syndrome and a new dx of ankylosing spondylitis as well.So I do have major fatigue as well.I all so have miragrain headaches alot as well and that may be the sorce of his headaches.I do beleive that if he has not had any test done to determan if he has a autoamuin diseas then you may want to talk to his doctor and see what he has to say

Lerie has gave you some good info as well so you may want to ask about liver panel and all so if the doctor has not checked hi B-12 that may want to check for that as well that can cause sever fatigue as well.I wish you and your son the best of luck in finding what is causeing you son this pain.Please keep us up on how your son is doing.
Thanks
Curley......
a.k.a.Mela...........


Piano Man
New Member


Date Joined Feb 2006
Total Posts : 5
   Posted 2/23/2006 6:28 AM (GMT -7)   
Thanks for responding. We did have him tested for autoamune disease and is ANA screening came back postive but that said the followup test were ok, so they ruled the autoamune disorders out. I also checked with his doctor and they did a liver function test that came back ok. His has had alot of blood test and everything seems to be ok. His hemaglobin is a around 16 or 17 but the Hematologist assures me its because of his age. His kidneys, liver and neurological test are all good. It was on accutane for several months so I wondering if that has anything to do with it or if the mono that he had in Sept. has caused CFS.

timur
Regular Member


Date Joined Dec 2005
Total Posts : 86
   Posted 2/23/2006 8:45 AM (GMT -7)   
Hey piano man, i suffer from 24/7 headache for quite a few years now. Ive had blood tests taken, mri and ct scans done and all was normal. Recently I have found out about TMJ headaches, this is related to the jaw being tense and teeth grinding at nights and for the treatment you require a mouth splint. it might be well worth looking into... hope your son gets relief soon

Piano Man
New Member


Date Joined Feb 2006
Total Posts : 5
   Posted 2/23/2006 9:06 AM (GMT -7)   
Has it relieved your headaches any?

timur
Regular Member


Date Joined Dec 2005
Total Posts : 86
   Posted 2/23/2006 11:04 AM (GMT -7)   
well...i got the mouth splint five nights ago, it definately helps as i dont wake up with as severe a headache. Its an on going battle with my headache and hasnt gotten rid of it yet... i usually write messages in the migraine chat forum and ive heard from people that a mouth splint  has tremendously improved or gotten rid off their headaches within three days or so,  so its definately worth investing in one and chronic headache is one of the symptoms of  headaches related to jaw clenching... but it could be related to something else you have to get a proper diagnosis as this is the key to curing headaches. Im no expert but you could telll me his symptoms cause i can really relate to your son as i too started my headaches when i was 16 too and i was pretty popular in school... it can really take a lot out of you and changes your life completely. It is important to do mri or CT scans to be safe but it is really rare that it would be anything serious. There are quite a few preventives that you could look into for eg. im on a medication called amitriptyline which in certain doses is a preventive plus an antidepressant ( there is a relation between depression and headaches)

Twiggy2
Veteran Member


Date Joined Jan 2006
Total Posts : 703
   Posted 3/4/2006 8:22 PM (GMT -7)   
Hi it's Twiggy2 i have been experincing chronic migraine pain almost every day. I am on 10mgs of cipralex in the morning and i have been taking 25 to 50mgs of ami as well for the most it does ok but the migraine pain is still present. I see my doc on tues and am going to ask him to send me for a brain scan so as we can better figure out what could be causing them as sometimes they have been very intense. Can anyone relate which im sure somebody can anyway hope that everyone is well and if someone has any good suggestions thanks Twiggy2

Piano Man
New Member


Date Joined Feb 2006
Total Posts : 5
   Posted 3/6/2006 7:21 AM (GMT -7)   
Hi Twiggy, my son has had every neurological test done and everything has come back normal. He has not found a drug that make much difference. He has terrible pain only in the middle of his forehead. I took him to Duke Medical last week to see a Neurologist and he suggested that he may need to see a Infectious disease doctor. He tested him for a couple of different autoimmune disorders. Since my son has not been diagnoised with
cfs I'm not sure if that might be something you might want to look into. I am very sympathic to anyone who suffers this way. I hope you can find some relief soon.

Twiggy2
Veteran Member


Date Joined Jan 2006
Total Posts : 703
   Posted 3/6/2006 7:46 AM (GMT -7)   
Thanks piano man i will serch the net about cfs. not sure what it means but i will ty anyway. I hope your son is ok and keep in touch to let me know how things are going. Twiggy2

Piano Man
New Member


Date Joined Feb 2006
Total Posts : 5
   Posted 3/6/2006 9:06 AM (GMT -7)   
Chronic Fatigue Syndrome

Twiggy2
Veteran Member


Date Joined Jan 2006
Total Posts : 703
   Posted 3/6/2006 11:13 AM (GMT -7)   
Piano Man i looked it up on the net. Thank you. I read about how cfs and fibro and other things can cause cfs. I called my family doc but he is currrently on vacation and he has some other doc's taking his pplace until he comes back. There is a walk in clinic tonight between 5 and 8 still undecided wether or not i shold go but most likely i will don;t know if they will be able to do anything but it is worht a try Twiggy2

Twiggy2
Veteran Member


Date Joined Jan 2006
Total Posts : 703
   Posted 3/8/2006 8:10 AM (GMT -7)   
Every time i see my pshcyh he always pushes to ask if im under stress at work and things like that. I always have weel not really askes about my relation ship with hubby etc. our relation is fine better than ever most times who's relationship is perfect? None that i know of. Anyway i explained to him that the children are at each other all of the time so that can cause some stress i guess, so i guess to him all of the stuff is normal to him and sends me on my way with another script and a new appoinment yeah. Some days i would like to tell him to live in my home for a week, work my job for a week and see how much stress he can handle. But i know that wouldn;t be happening. Anyway i hope that this make some sense. I hope that things will get better over time. As for now i have to what i can to stay focused and calm. Twiggy
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 05, 2016 11:18 PM (GMT -7)
There are a total of 2,733,371 posts in 301,110 threads.
View Active Threads


Who's Online
This forum has 151249 registered members. Please welcome our newest member, John's Mom.
257 Guest(s), 4 Registered Member(s) are currently online.  Details
bluelyme, ROXY68, roisin86, John's Mom


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer