This might help..

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johnnyboy
Regular Member


Date Joined Mar 2006
Total Posts : 51
   Posted 3/8/2006 8:45 AM (GMT -7)   
Hi I'm new to this forum.  I've been suffering with CFS/CMV/EBV for 5yrs now.  I'm 23yrs. old and I started feeling different/fatigued around 18.  I've tried EVERYTHING.  And one thing that helped me with the CMV was Valtrex.  It's usually used for Herpes (STD) but it can also be used for other Viral Infections. Everyone is different but maybe this can help you.  I know how hard this is, and how we are all looking for answers.  It's been very hard for me.  I played baseball and I had a a full college ride to to play Baseball.  But then all of a sudden I could'nt perform the same, I felt the "brain fogg"  my grades dropped and I later quit Baseball.  Everyone thought I was crazy.  That maybe I was with the "wrong crowd".  But I was'nt nobody believed I was sick except my mother.  Anyways to all the people who read this, don't stop looking for a solution.  Don't except having CFS.  There is a reason we have this and most doctors look down on us, therefore not enough $$$ and time is spent on helping people with CFS.  Until a politician or a famous athlete gets this syndrome really bad, it won't be accepted.  I'm highly motivated and I HATE when people judge me and think I need to suck it up and feel better....Anyways I would like to hear from you people out there.......
 
P.S. Has anyone here suffered from throat swelling (outside, not so much inside the throat) my fatigue is usually at it's worst when my throat swells. If my throat is not swollen, my fatigue is not around. It kinda looks like I have a double chin, but normally I don't at all.  Very strange.  It really puzzles doctors.  God bless
 
-Johnnyboy

Rock
Regular Member


Date Joined Oct 2005
Total Posts : 28
   Posted 3/11/2006 10:09 AM (GMT -7)   
Hi Johnnyboy
 
Sorry to hear of your illnesses.  It's extra sad when these DDs hit young people.
 
I have the major symptoms of CFS:  fatigue, sleep disturbance, depression and brain fog.  But as you probably know there are other symptoms including swollen glands.
 
Good you found this board.  Maybe somebody will have a helpful suggestion for you.
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