how to get any bit better

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artpainter
Veteran Member


Date Joined Feb 2006
Total Posts : 620
   Posted 3/11/2006 12:46 AM (GMT -7)   
it's not like the painter to be so down, beem too sick & not bouncing back quickly...don't mean to bum anyone out, what do you all do when you can't find the energy to brush your teeth?anyoe else get cfs that bad? can't enen paint, too weak   help'

Donkey
New Member


Date Joined Mar 2006
Total Posts : 12
   Posted 3/31/2006 2:55 PM (GMT -7)   
Hi artpainter,
Yes i know what you are talking about not haveing the energy to even brush your teeth. It is so awful I feel bad everyday. I jsut cant get a handle on this illness either.
HUGS xoxoxoxo
 
  Donkey ears watching over me~ALWAYS...


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 3/31/2006 3:27 PM (GMT -7)   
I don't think healthy people realize how much of an effort and how much energy it takes to just get in the shower, brush, your hair, or get dressed. I know I used to take those things for granted. Sorry you have had trouble painting lately - it's miserable when you can't do the things you love. I used to be a long distance runner and now there are days I can barely walk. I haven't found anyway to get more energy except to really listen to your body and rest when you need to. I just wanted to let you know that I can relate.

There is a great website to go to - it is called: butyoudontlooksick.com. A woman with lupus came up with something called The Spoon Theory, but she said it can be used to describe any chronic illness that drains your energy. CLick on the story of The Spoon Theory and I think you'll find that she does an amazing job of describing what a lot of us go through each day. I have shared it with some friends and family and it has helped them understand what I am going through.

Take care
Diagnosis:  Suspected Lupus 2004; Raynauds 2006; CFS 1991
                Mono 1985
Meds:  Plaquenil 400mg; Tramadol 100mg 3-4xdaily; Amitriptyline 10mg
          Neurontin 200mg; Steroid Cream and Mouth Rinse for mouth
          and tongue ulcers
 
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