New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

artpainter
Veteran Member


Date Joined Feb 2006
Total Posts : 620
   Posted 4/3/2006 6:30 PM (GMT -7)   
:-)  i want to thank the people in the lupus room this afternoon for inviting me in when it's not my disease;i was very down & you all helped me..thank you so much for your  kindness & friendlinessartpainter eyes eyes :-)
i believe we are all connected;everything is connected on an atomic and subatomic level, so how can we be separate;how can one thing not affect another? another reason to be kind to each other...and to think before we speak. and to try to love one another or at least give up hatred for individuals. and i don't mean we should turn into Pollyanna .no way...we musk feel and acknowledge all our feelings;it's how  we handle them.   that is the hardest part for me, i:ve discovered. i don't like injustice & i don't stay quiet about it. sometimes i'm disliked for that. i can live with it...lots of practice.I was marching in the streets before a lot of you were born, so i think that tells you a lot. i'm not brave. but i care.and i try to help.  so do things like YOU do them;with the docs help
bob dylan said, "I aint gonna work on maggies farm no more            you all try to do the same;hold on to all the dignity you can& do as many things your own way as you can;of course swe have to deal with docs & so on, but we need to keep ourselves.


Foreign
Veteran Member


Date Joined Jul 2004
Total Posts : 674
   Posted 4/4/2006 5:52 AM (GMT -7)   
Hi Art!!!
Did you happen to post your thank you in the lupus forum as well??
Just askin to make sure that your message gets out to who you intended it for.
Take Care :) :) :)

Mel
Co-Moderator for Fibro
Moderator for CFS
Please make HW donations @: http://www.healingwell.com/donate
Please check this out:

artpainter
Veteran Member


Date Joined Feb 2006
Total Posts : 620
   Posted 4/4/2006 10:41 AM (GMT -7)   
:-)  thanks, mel..no i didn't buti will...appreciate your directions,,thanks again artpainter
i believe we are all connected;everything is connected on an atomic and subatomic level, so how can we be separate;how can one thing not affect another? another reason to be kind to each other...and to think before we speak. and to try to love one another or at least give up hatred for individuals. and i don't mean we should turn into Pollyanna .no way...we musk feel and acknowledge all our feelings;it's how  we handle them.   that is the hardest part for me, i:ve discovered. i don't like injustice & i don't stay quiet about it. sometimes i'm disliked for that. i can live with it...lots of practice.I was marching in the streets before a lot of you were born, so i think that tells you a lot. i'm not brave. but i care.and i try to help.  so do things like YOU do them;with the docs help
bob dylan said, "I aint gonna work on maggies farm no more            you all try to do the same;hold on to all the dignity you can& do as many things your own way as you can;of course swe have to deal with docs & so on, but we need to keep ourselves.


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 4/4/2006 7:24 PM (GMT -7)   
I'm so glad they helped you feel better. It's terrible how these debilitating chronic diseases can leave us feeling lonely and depressed. HealingWell is truly a blessing - we all help each other and support each other here.

I hope you have a peaceful and restful night's sleep.

Take care

Diagnosis:  Suspected Lupus 2004; Raynauds 2006; CFS 1991; Mono 1985

Meds:  Plaquenil 400mg; tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 200mg; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/


artpainter
Veteran Member


Date Joined Feb 2006
Total Posts : 620
   Posted 4/4/2006 7:42 PM (GMT -7)   
:-)  thanx,hip;didn't do much today..one of those days you just survive, you know what i mean, i am sure,,,sure appreciate your posts...you are a friend;sleep  well, too my friend. hope to see you tomorrow. :-) tc & hugs
i believe we are all connected;everything is connected on an atomic and subatomic level, so how can we be separate;how can one thing not affect another? another reason to be kind to each other...and to think before we speak. and to try to love one another or at least give up hatred for individuals. and i don't mean we should turn into Pollyanna .no way...we musk feel and acknowledge all our feelings;it's how  we handle them.   that is the hardest part for me, i:ve discovered. i don't like injustice & i don't stay quiet about it. sometimes i'm disliked for that. i can live with it...lots of practice.I was marching in the streets before a lot of you were born, so i think that tells you a lot. i'm not brave. but i care.and i try to help.  so do things like YOU do them;with the docs help
bob dylan said, "I aint gonna work on maggies farm no more            you all try to do the same;hold on to all the dignity you can& do as many things your own way as you can;of course swe have to deal with docs & so on, but we need to keep ourselves.


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 4/5/2006 3:36 PM (GMT -7)   
Hey artpainter. I hope today is a better day for you. I'm really really tired and will probably go to bed early tonight. I only work part time (3 days a week) and cut back a few months ago from 8 hr days to 6 hr days, but I'm not sure how much longer I can manage to work.

Take good care of yourself and I'll talk to you soon.

Diagnosis:  Suspected Lupus 2004; Raynauds 2006; CFS 1991; Mono 1985

Meds:  Plaquenil 400mg; tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 200mg; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/


artpainter
Veteran Member


Date Joined Feb 2006
Total Posts : 620
   Posted 4/5/2006 4:50 PM (GMT -7)   
:-)  hi, hippimom..thanks for post;bad day again..can sometimes last awhile;hope its not a 2-3 wk deal this time.i don't like to be on disability but don't have any choice;i never know from day to day how i'll be. you cheer me up& i thank you.hope you are feeling good...what is raynaulds? i keep meaning to ask.tc & i hope to feel up to talking more tomorrow..tired hugs  painter
i believe we are all connected;everything is connected on an atomic and subatomic level, so how can we be separate;how can one thing not affect another? another reason to be kind to each other...and to think before we speak. and to try to love one another or at least give up hatred for individuals. and i don't mean we should turn into Pollyanna .no way...we musk feel and acknowledge all our feelings;it's how  we handle them.   that is the hardest part for me, i:ve discovered. i don't like injustice & i don't stay quiet about it. sometimes i'm disliked for that. i can live with it...lots of practice.I was marching in the streets before a lot of you were born, so i think that tells you a lot. i'm not brave. but i care.and i try to help.  so do things like YOU do them;with the docs help
bob dylan said, "I aint gonna work on maggies farm no more            you all try to do the same;hold on to all the dignity you can& do as many things your own way as you can;of course swe have to deal with docs & so on, but we need to keep ourselves.


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 4/6/2006 6:25 PM (GMT -7)   
artpainter, I hope you get some relief soon - it stinks to never know how long you will feel rotten. I'm doing a little better today and I hope it will last. I always have fatigue and pain, but at least it is bearable today.

You aske me about Raynauds. It's a disease that a lot of people who have lupus get and it especially affects your hands and feet. My hands and feet are always very very cold, even when the weather is not cold. I also get burning pain in my hands and feet and they sometimes turn purple. It's very painful and uncomfortable. I were both socks and slippers at the same time to try to keep my feet warm. I have been looking into trying to get some heated slippers.

I hope you are able to get some rest. Just know that there are people here who care about you and will always be here when this darn disease gets you down. I keep thinking I need to go into the chat sometime, but I'm always so tired by the time I am done posting, that I don't go into the chat rooms. I'm also not a very experienced chatter - I have a hard time keeping up with all the conversations. I'll have to try it sometime.

Peace and gentle hugs for you.

Take care

Diagnosis:  Suspected Lupus 2004; Raynauds 2006; CFS 1991; Mono 1985

Meds:  Plaquenil 400mg; tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 200mg; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/


artpainter
Veteran Member


Date Joined Feb 2006
Total Posts : 620
   Posted 4/6/2006 8:49 PM (GMT -7)   
eyes   eyes dear hippimom, i am so unhappy right now;i just almost completed a long post to you..it had a quote&;can't even try to reconstruct it right now a bunch of my beliefs;i hit a wrong key & lost it in cyberspace...i am weeping;too exhausted to even try to reconstruct it , but when  I feel better, i will..it was meant to help you  so i feel awful about it, & i am so sorry you have constant pain & fatigue;you inspire me...thankkkks so much for the post;you are a truly lovely lady. i hope to connect with you tomorrow, my friend, nite, tc & sleep well. :-) :-) painter;i'd like to talk with you in a chat room ...that would be terrific.i 'm not good at keeping up, either as i look at keys, so i listen a lot when i've gone on;tried to, arher...someone always says some      thing that i want to respond to'i had to learn to pull back & not butt into otjer peoples canversations;funny, cause in person i'm shy;until some idiot pushes me too far;anywayhow i'm awake i don't know. tomorrow, dear friend;thanks again,,god eynaulds sounds like hell;crohns is like hell all these are;we're stronger than we know, believe it..nite
i believe we are all connected;everything is connected on an atomic and subatomic level, so how can we be separate;how can one thing not affect another? another reason to be kind to each other...and to think before we speak. and to try to love one another or at least give up hatred for individuals. and i don't mean we should turn into Pollyanna .no way...we musk feel and acknowledge all our feelings;it's how  we handle them.   that is the hardest part for me, i:ve discovered. i don't like injustice & i don't stay quiet about it. sometimes i'm disliked for that. i can live with it...lots of practice.I was marching in the streets before a lot of you were born, so i think that tells you a lot. i'm not brave. but i care.and i try to help.  so do things like YOU do them;with the docs help
bob dylan said, "I aint gonna work on maggies farm no more            you all try to do the same;hold on to all the dignity you can& do as many things your own way as you can;of course swe have to deal with docs & so on, but we need to keep ourselves.


artpainter
Veteran Member


Date Joined Feb 2006
Total Posts : 620
   Posted 4/6/2006 8:52 PM (GMT -7)   
:-)   eyes eyes eyes :-) hi, hippimom, my friend;love you fro the post;i am so sorry that you always ahve faigue & pain..the reynaulds sounds horrible ...3 million gentle hugs so as not to hurt you further;i was thiking about you earlier...& music & i thought of a lightfoot lyric , lyrics ..:I was trying to get by with life's amenities, well, nothing's free;i got more than i bargained for, now it's  plain to see;i can't depend on love to defend me." tho  he meant "love". you know;at least partly, probably any kind of love. don't know//he was alot younger when he wrote that so i suspect it 's about i girl...anyway don't know why that came to mind untl i realized that i thank sometimes we all want to be saved or defended by love;then i thought ;'..look no forther than the universe & god;it's all there;i do think what i go thru is what i agreed & wrote or whatever a contract with god & universe before i came here.my challenges;geeze what were we thinking, hip? i believe more & more that thimgs are as they are meant to be. no matter how bad...& i beelieve that those of us who come here to accept difficult challenges are more spiritually evolved , certainly braver than others who seem to have easier lives, DO have easier lives;i think most of them are not as far along the path, perhaps, as we are... i don't know..  Hey, hip, I found it & will send it...thank goodness..nite again
i believe we are all connected;everything is connected on an atomic and subatomic level, so how can we be separate;how can one thing not affect another? another reason to be kind to each other...and to think before we speak. and to try to love one another or at least give up hatred for individuals. and i don't mean we should turn into Pollyanna .no way...we musk feel and acknowledge all our feelings;it's how  we handle them.   that is the hardest part for me, i:ve discovered. i don't like injustice & i don't stay quiet about it. sometimes i'm disliked for that. i can live with it...lots of practice.I was marching in the streets before a lot of you were born, so i think that tells you a lot. i'm not brave. but i care.and i try to help.  so do things like YOU do them;with the docs help
bob dylan said, "I aint gonna work on maggies farm no more            you all try to do the same;hold on to all the dignity you can& do as many things your own way as you can;of course swe have to deal with docs & so on, but we need to keep ourselves.

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 4:45 AM (GMT -7)
There are a total of 2,732,003 posts in 300,981 threads.
View Active Threads


Who's Online
This forum has 151148 registered members. Please welcome our newest member, Cary Breef.
189 Guest(s), 2 Registered Member(s) are currently online.  Details
lynbrez, Hope 196


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer