I second that motion...........

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longtimesick
New Member


Date Joined Apr 2006
Total Posts : 17
   Posted 4/4/2006 9:17 AM (GMT -6)   
Been lurking for a while, and just now must post...........just read the Lyme post "a friend of mine" and boy did it resonate - that's me! but thankfully not 8 years , more like 8 months.....................I was told lupus, CFS and fibro..............................7 doctors before I did some real reading into Lyme , and finally after many inconclusive blood tests - positive Western B at 2 diff labs.....................the lyme doc I see tells me also that most cfs and fibro and even lupus and ALS patients actually have an underlying lyme infection. The symptoms are dead on.   I urge anyone in this site to take a fresh look at it- don't bother asking a regular doc- they won't know, you need a Lyme Literate doc to get to the bottom of it. there is a website lymebusters and ilads.org with good info...........................................................................................lyme is in every US state, and it is written that for every 1 person diagnosed with it- 10 go undiagnosed.

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 4/4/2006 8:20 PM (GMT -6)   
What type of doc should you see to get tested for Lyme?

Diagnosis:  Suspected Lupus 2004; Raynauds 2006; CFS 1991; Mono 1985

Meds:  Plaquenil 400mg; tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 200mg; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain

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LYMIE 74
Regular Member


Date Joined Sep 2005
Total Posts : 43
   Posted 4/5/2006 8:42 AM (GMT -6)   

hm, who to see for lyme....depends on your location. I saw 5 doctors, family practice and an internist - all told me I was nuts.........(not in those exact words....but that was the basic message) finally I got myself to an alternative doctor, I said " know Ive got Lyme, even though the tests are negative, he agreed and started treatment that day.  Eventually we did get a postive test..from a new lab. The thing is, I now have a real bad case of a disease that if treated back when I originally started going to non-lyme-aware doctors- would have been a quick fix- but because these 5 doctors had no clue about the reality of lyme, I am now in a mess, with a long recovery ahead of me..............

Anyway, I get mad and start typing. hop over to the lyme forum and get doctor info. there are several I know of in Mass. Ct.NY........

***When I finally got that alternative doc to help me, I was sitting with the nurse going over the antibiotic regimen I was going to start....I said "wow- lot of people must have this thing , and are told it is something else"  she rolled her eyes and said  ..."yes- probably tens of thousands..." 

web searches ; Lyme busters, Ilads.org, Dr.Joseph Burrascano, Dr. Sam Donta, Lymenet


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 4/5/2006 4:31 PM (GMT -6)   
I had a test for Lyme when I first got really sick 2 years ago, but it was negative. I have read there are several differnt Lyme tests and that some are more sensitive than others. Thanks for the info.

Diagnosis:  Suspected Lupus 2004; Raynauds 2006; CFS 1991; Mono 1985

Meds:  Plaquenil 400mg; tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 200mg; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

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