Has anyone with CFS had a stiffness or soreness in their sternum (the bone in the middle of chest)? In the morning my sternum pops or cracks like the sound when you crack your knuckles. Im not sure if this comes with CFS. I also have anxiety.
Diagnosis: Suspected Lupus 2004; Raynauds 2006; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 200mg; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain
I have had stiffness and cracking in my sternum in the past. I have also had anxiety, in fact I was pretty much agoraphobic for awhile. I think what brought it on for me was the worry of passing out in public. I used to be plagued with lightheadedness and a rapid heart rate. Now that my other symptoms have eased, my anxiety is pretty much gone, too. My anxiety does seem to kick back in as my other symptoms worsen.
Yes, I have gotten much better. I work part-time as a massage therapist (I am self-employed, so I can set my own hours), and I am going to school full-time (online accelerated program). I had two kids while I was sick. My oldest is 17 and my youngest is 14. My husband did help out a lot, and is very understanding of this disease and my limits. I do have to pace myself, but I've learned that when I listen to my body, I heal faster and feel better. I never push myself too much. If I need a break, I take it, and maybe miss an event that is not totally necessary. I also work out, and I feel this helped condition my heart so I don't get the rapid heart rate like I used to. Amazingly enough, I feel it has also conditioned me so that I do have more stamina and energy. There are some days I'm dead tired, and I will go do a short 20 minute walk or work out with weights, and when I'm through I feel so much better.
I've been totally bedridden with this disease (for about a 3-month period.....14 years ago). So, I've seen the worst, and have come out well. I'm not saying life is perfect and I have the energy that I envy in normal people. I do have to pace myself, but I am able to lead a pretty normal life. I just watch myself and pay attention to my body, when I need to rest that's what I do.
I was diagnosed with chostrochondritis several years ago when I had intense upper left chest pain. I went to the ER where they told me it was my supraventricular tachycardia that had probably kicked in (even though at the time I didn't have a rapid heart rate). When I went to the doctor the next day, the pain was still there, and he pressed on the muscles in my chest where the pain was. Sure enough, it was painful to the touch. That is when he diagnosed me with chostrochondritis.
Now when it cracks, it's not really painful. I have many areas in my body that crack and pop. Over the years I've just come to learn that my body is different from others. When things like that happen, I just kind of take it in stride.
My sister has fibromyalgia, and I have chronic fatigue syndrome (I have more of the neurological symptoms when I get flare ups). I do have aches and pains, but not as the primary symptom.
I have been sick for 23 years with CFS!
I was just reading back over this post and I was wondering how many of you have had terrible terrible sickness with this illness. I am not just talking about fatigue(that isnt my main symptom) I am talking about feeling severly ill, weak, dizzy-feeling of neurological problems-, sore throats, muscle aches, panic attacks, anxiety, cracking sound in bones, feeling of pressure on my head, circles under my eyes. I have had so many horrible symptoms- I think the dizziness is the worst. The doctors hesitate to diagnose me with CFS because I keep telling them I feel like i have something running through my body that feels so ill and disgusting. I have improved a lot over the year I've been sick. I am still battling a few symptoms, but fatigue was never the main symptom. I wish I could have slept through this horrible year, that would have been easy!!!! I have been tested for everything under the sun and nothing shows up, no viruses- nothing. I do have saline breast implants, I've had them for 7 years so the doctors say that can't be the reason, but I still wonder. If someone else can tell me that they have felt violently ill with CFS then maybe I can believe that is what I have!!