Trying to get diagnosed....for something

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Hol1979
Veteran Member


Date Joined Aug 2005
Total Posts : 563
   Posted 5/7/2006 9:23 PM (GMT -7)   
Hello All!!
 
  Maybe some of you could help me out.  First, a brief history.  Last August, I came down with an illness that lasted about a month and a half.  The symptoms were very much like Lyme disease, as a matter of fact, I've posted here in the Lyme forum before. I never tested positive for anything. It left my body in late September and then I was fine for a few months.  Around Christmas, I developed achey joints very much like Rheumatoid Arthritis. My doctor ran tests and sent me to a rheumatologist.  I think I also posted here about that.  I never tested positive for anything, and it went away after about another month or so.
 
I was fine for awhile again, until April.  I developed low back pain and fatigue.  My doctor put me on antibiotics for what we thought was a UTI. Urine test came back, it said there was no UTI.  The back pain, headache, fatigue, pelvic pain, fever and night sweats persisted.  Doctor sent me for a Cat Scan, and MRI and more blood work.  Nothing.  I don't have swollen lymph glands, I am not pregnant, I don't have Lupus, Lyme, RA, Mono, thyroid issues, hypertension, Hepatitis, or any of the other things that the doctors have tested me for that could indicate fatigue, fever and pain. I am 26 and have been married for four years, no risk of STDs. I have had several CBCs and they are fine. I do think being on antibiotics *may* have helped me feel better, though don't know if it's a placebo effect. I do have a history of repeat infections (sinus, UTI, ear infections), I think I may have a lowered immune system, and my father has had autoimmune problems (RA and Grave's disease).
 
Regular physician asked me to go back to the rheumatolgist.  He said if there's a possibility of Chronic Fatigue Syndrome, then she'll help diagnose it by ruling out anything else there could be. 
 
Sometimes I feel so sick and tired, I can't get out of bed, I will sleep for 12 hours.  Sometimes I think I'm crazy, and the only tangible evidence I have that something is wrong, is the temperature that registers on the thermometer. 
 
Can anyone shed some light on this? Am I seeing the right doctor, as in, is there another specialist I should see?
Thank You very much for any help!

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 5/8/2006 7:12 AM (GMT -7)   
Welcome Hol. I'm sorry about your ongoing health problems and that the docs haven't been able to help you figure things out. CFS is really hard to diagnose, because like you said, everything else has to be ruled out. THe fevers and swollen glands as well as your feelings of fatigue are definitely symptoms of CFS. I think going back to the rheumatologist is a good idea, it might also not hurt to see a good internal medicine doctor.

Just remember that you are not crazy. I've been through times when I have felt very sick and nothing showed up in labs. If you are diagnosed with CFS it's a good idea to keep track of your symptoms and make sure to get bloodwork checked if things get worse to make sure you aren't developing something else.

Keep us posted on what your doctor says. Take care

Diagnosis:  Suspected Lupus 2004; Raynauds 2006; Sjogren's 2006; CFS 1991; Mono 1985

Meds:  Plaquenil 400mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 200mg; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/


Hol1979
Veteran Member


Date Joined Aug 2005
Total Posts : 563
   Posted 5/8/2006 7:57 PM (GMT -7)   
Thank you hippimom.
 
Everyone at this board is so nice to talk to, even when I thought I had Lyme and RA.
 
It is very hard being tired and feverish all the time...while having headaches..and another thing is ringing in my ears and terrible nightmares I've had recently.  So frustrating!
 
My rheumatologist appointment is next Monday, so hopefull she'll have something to say.
 
And I never thought of the point you made....if you're getting fatigue and fevers anyway, how can you tell when you're sick with something else, like an infection? Arggh!  That's probably why my doctor was feeding me antibiotics the last few weeks, even though he wasn't sure they'd do anything.
 

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 5/9/2006 4:50 PM (GMT -7)   
I'm glad you are seeing the rheumy soon. I hope you get a good rheumatologist who is very thorough. You might not have any answers on the first visit, but hopefully some more labs will be done to help sort things out and maybe the rheumy might have some thoughts about what might be causing your symptoms. I found it helpful to write down all of my symptoms and all of my questions so I didn't forget anything.

Please let us know how it goes.

Take care

Diagnosis:  Suspected Lupus 2004; Raynauds 2006; Sjogren's 2006; CFS 1991; Mono 1985

Meds:  Plaquenil 400mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 200mg; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

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