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aquarias
Regular Member


Date Joined Mar 2006
Total Posts : 296
   Posted 6/2/2006 4:50 PM (GMT -7)   
Hi, it is me again.  I was just curious as to how you felt before your CFS went into remission?  Was it a gradual improvement, or did it just go away one day.  I have been so so extra tired and out of it the last few days, and I thought I was getting better.  I have also been seeing a chiropracter and have had 3 adjustments over the past couple days.  I am wondering if this is causing the added fatigue.  I am getting ready to go to New York for more testing, I feel like I am dying, throughout the last 8 months I have felt so bad I can't even explain it.  This is no life.  No human should ever have to feel this bad.  Have you ever felt this bad with CFS?  I also have saline breast implants and I am wondering if they have something to do with this illness.  I just need advice from someone who has gone through CFS.  I just don't know what is wrong with me.  Thanks for listening.  I will keep you in my prayers!

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 6/2/2006 6:15 PM (GMT -7)   
aquarius, it was a really slow gradual improvement. But like I said, I still went through times about once a month or every few months when my body would crash and I'd spend a few days in bed and then I'd be able to get back to normal activity. I also required more rest than the average person even while in remission. Even while in remission I'd go to the doctor once or twice a year for overwhelming fatigue. I still consider all of that remission because basically I was able to live a normal life on most days.

I do know what you mean when you say you feel like you are dying - there are days I feel so bad that I'm sure I'm going to die from this. It's sometimes hard for me now to sort out CFS stuff and lupus stuff because a lot of the symptoms are similar - I imagine I'm dealing with both. You really should get a good doctor to look into the implants. I don't have experience with them but have heard horror stories about them and have read about cases where women got extremely sick du to problems with implants.

I really help you get some help from the doc you are seeing in New York- make sure to mention the implants. Hang in there and take care.

Diagnosis:  Suspected Lupus 2004; Raynauds 2006; Sjogren's 2006; CFS 1991; Mono 1985

Meds:  Plaquenil 400mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 200mg; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain

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