cfs kicks in after virus leaves, hippimom

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

artpainter
Veteran Member


Date Joined Feb 2006
Total Posts : 620
   Posted 6/7/2006 2:07 AM (GMT -7)   
eyes   eyes :-) hippy, hope u are doing better;thinking of u;cfs bad as usual afte a virus, but i'm hanging in...please, you do that, too. hugs ...love ya, painter :-) tc of u

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 6/7/2006 8:01 AM (GMT -7)   
I'm sorry you are feeling rough. I've realized that I have completely forgotten what it feels like to feel normal - no pain, no fatigue, etc. My appointment with the kidney specialist yesterday went well. He said he wants to monitor things really closely to make sure there is no kidney damage. He said if the protein gets worse or if I ever have blood in my urine I'll need to have a kidney biopsy. I am also not supposed to take any anti- inflammatories because they can make kidney problems worse. Overall, he seemed like a pretty good doctor. I've been taking my son to a lot of appointments too and I'm happy that he is responding pretty well to his meds and physical therapy. The poor little guy doesn't know when to slow down though and listen to his body - he just wants to play and then he ends up in tears by the end of the day because he is so exhausted.

I keep trying to find the purpose in all of this illness - I'm sure one day I'll figure it out. For right now I feel blessed to have met people here at HealingWell and to be able to try to give some words of comfort to others who are going through this.

As always, you are in my thoughts. I'll check back in this evening to see how you are doing. Take care.

Diagnosis:  Suspected Lupus 2004; Raynauds 2006; Sjogren's 2006; CFS 1991; Mono 1985

Meds:  Plaquenil 400mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 200mg; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/


artpainter
Veteran Member


Date Joined Feb 2006
Total Posts : 620
   Posted 6/7/2006 8:19 PM (GMT -7)   
:-)  hi, hippy;thanks so much for post...you brightened my day immeasurably. i am feeling better tonight than i have for 5 plus weeks. the cfs is better(i think that the stress really got to me;that's what happens to my body after the immediate stress has passed...being locked out of the forum was incredibly tramatic..more so even than the tests(1 to go...;  the mri)i will know tomorrow probably when they will schedule it. my lack of painleads me to believe that the main problem is scarring ;and what really added to it has been my drying meds...50 mg a day of paxil,generic sinemet, mirapex...the last 2 are for rls...restless leg syndrome, which in my case affects nost of my body...arms, legs,most of my nerves..it's a lack of a chemical, levadopa;sometimes...often ...my brain just doesn't produce enough cd/ld(parkinson's is what happens when the body stops producing any);rls, though does not turn into parkinsons. this, too , is genetic...my mom has it, too. you know, when i think about it, i think i inherited the bad genetic stuff from both sides of family;yet, it makes me me..& isure can't complain about my brain;got mine from dad's side(my IQ is 146...not too shabby...too bad about the rest of me)> i don't say the IQ # to impress, brag, etc. In fact, i think it doesn't mean much;those tests are biased...there are different kinds of intelligence, etc... so i have a preference most of the time. to not mention or discuss it. i don't define myself by it;if anything, i define myself by my artwork;it's ME! i was vey glad to hear your appt. went well;i am praying, dear friend;your poor little guy...an awful lot  for a kid to deal with. i cried when i read where you said he ends up in tears cause he just wants to play;god my heart goes out to you both;i will  keep u both in my thoughts & prayers, as i have been doing .hippy, don't worry about trying to figure it all out;we can't, not in this world, this dimension;i think all we can do is try to trust the universe/god & deal as best we can. i think that is all that is asked or expected of us...& it is difficult to trylet alone succeed. but trying counts for all;i believe it. some people can't do that...try...we are lucky we can. anyway, i don't want to get kicked out again;this is sooo long! tc, hun & hugs...will u give your son a hug from me;i'd love that! painter eyes eyes :-) later...we'll talk more;hopefully a conversation! I also thank god for hw...every day

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 6/9/2006 7:02 AM (GMT -7)   
Hey artpainter - just checking in. I hope you are still feeling better and that you have been able to do some painting. I have been pretty sick again and feeling lousy. I'm going to try to do a lot of resting today. My kids let me sleep until 8 this morning (for me that is sleeping late). It was like heaven, but I still didn't want to get up though.

I know what you are saying about stress and how it affects illness. I know that when something stressful happens at work or at home my body reacts and my symptoms get even worse. It just gos to show how powerful that mind, body, and spirit connection are and that they really can't be separated.

Take care. Love and hugs,
- hippi

Diagnosis:  Suspected Lupus 2004; Raynauds 2006; Sjogren's 2006; CFS 1991; Mono 1985

Meds:  Plaquenil 400mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 200mg; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/


artpainter
Veteran Member


Date Joined Feb 2006
Total Posts : 620
   Posted 6/9/2006 12:03 PM (GMT -7)   
sad  dear hippi, i am so sorry you feel so rotten & i sure hope it improves for u soon.i was just thinking of you & when i checked e-mail, i was delighted to see something from u. as i always am. you werethe first real friend i made on hw & i have learned a lot from you & your sweet kind nature;you are also strong...i respect you a lot, hippi, & i don't say that to too many people. i don't know if i told u, but hw saved my emoional & maybe physical life;i am not used to the positive support i get here;my family doesn't know how to do that cause they never got that support from their family. what i'm used t(except for my sweet...most of the time...hubby,daniel) is "judy, is that all you have to talk about? how you feel?" well, of course not;but i will no longer beat a dead horse;i get a lot of support from all of you...& it is so much more emotional support than i have ever received,, even before i got sick. i am going to donate to hw in july9totally broke now...paint is expensive) but i want to donate so someone else can benefit from hw as i have & am...do you see why i was so upset when peter kicked me out for awhile? i really did feel like i'd lost the only supportive family i'd ever had.and in a real sense, i had lost you all.bless everyone who helped & bless peter for realizing that i had no clue what spamming is. oh, 1 more thing befroe your poor eyes fall out..
my doc changed his mind again after re-checking x-rays & all the blod testing he did;no mri!! but in oct,nov i have to have another colonoscopy & barium enema, possibly the enema)  cause of the scarring, i'll have to drink a whole gallon of really foul-tasting laxative first!! oh, well...he feels it is not crohns now, but scarring...bad, but not bad enough to cause a lot of pain;in fact, i have no pain now...once the virus left& i can eat about anything;so i have a reprieve for now;it will eventually narrouuuw further most likely;we will deal with that & surgery then...my doc hates surgery for crohns. yes, mind, spirit, body...what a connection;i believe the strongest & best thing about humans is the spirit, all the spiritual things. hippi, how do you indent? different subj, but you cannot have missed that i don't indent;i don't know how...pathetic, huh, though my typing is improving...i don't know a lot of basics, thouge & danny & i fight  when he tries to teach me anything, you know? well , as usual, my verbose self took over...read this in small sections, hun, if u get too tired! i'm serious. another thing in a very long list of things i can't do is write a precise(sp)? i wrote a novel a few yrs ago...took about 5 yrs, is way too long...1698 pages..& i won't edit it or let anyone touch it even though it is the dullest, most boring thing i have ever read!true, hippi...i'm not putting myself  down;it truly stinks! painting saves me, though. tc, dear & i pray u feel better soon. hugs by the bushel-full...love, judy eyes :-) :-) i really DO have to make these shorter;don't want to get kicked off again!!later, sweetie..you rest....bless you j

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 6/9/2006 4:59 PM (GMT -7)   
I'm glad you don't have the mri for right now, but sorry that you have anothe colonoscopy to look forward to in the future. I don't know if I have the flu or what, but on top of my usual yucky symptoms I have a terrible headache and nausea. I'm wondering if I got sick from being in the sun yesterday. I was out watching my son play baseball in the early evening, but it was really really hot and still very sunny. My body doesn't tollerate the sun very well anymore. Well, I think I'll be off to bed soon and hopefully I can function better tomorrow.

I enjoyed reading your post - you've always got interesting things to say. Have a good night. Take care

Diagnosis:  Suspected Lupus 2004; Raynauds 2006; Sjogren's 2006; CFS 1991; Mono 1985

Meds:  Plaquenil 400mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 200mg; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/


artpainter
Veteran Member


Date Joined Feb 2006
Total Posts : 620
   Posted 6/9/2006 5:33 PM (GMT -7)   
sad  awww hippi;i am so sorry you ae feeling roten;i wouldn't be surprised if you do have s virus, too..mine was nausea, headache, etc..the usual awful symptoms;trounble is, when yiou're already sick how can u tell if u have a virus;usuall nausea & vomiting clues me in..eventually. sad feel beter, hun;i appreciate your taking time & thought to answer my posts, but when you are sick, please thake care of you first;i regard you as a very dear friend..& i plan to keep u, dear, so please, above all don't worry about me...i will be ok;TAKE GOOD CARE OF YOU9emphasis, not hollering..) i can post you without needing an answer right away, but when you are better;i won;t continue to be selfish , hippi;i just won't!! hugs & hugs,...love ya, painter- :-) :-) eyes eyes

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 6/11/2006 11:07 AM (GMT -7)   
I'm still fighting my flare. Everytime I get up to try to do something I end up feeling worse and have to go rest again. I feel like most of this weekend was a waste - I wanted to be able to do more with my kids and hubby and get a few things done around home. I just feel really sick.

I don't think you are selfsh at all - you are always very kind and supportive. Have you been able to paint at all? I haven't been able to do much but I have been doing some reading which helps pass the time and gives me a temporary escape from feeling rotten.

until later....take care
Diagnosis:  Suspected Lupus 2004; Raynauds 2006; Sjogren's 2006; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/



artpainter
Veteran Member


Date Joined Feb 2006
Total Posts : 620
   Posted 6/11/2006 2:02 PM (GMT -7)   
sad  oh, hippi, i am so sorry u are still fighting flare, hon...please rest;now i am going to get bossy(like my brother says i am anyway);stay in bed, dear...unless, of course,the house is burning down! i am 100& serious; i do understand that you want to spend more time w/family, but when you don't rest in bed it will just take longer for flare-up to leave..i speak from a lot of experience, believe it;i was once in bed for 3 wks;too weak to get up, but that was after i had done too much & pushed my body too hard;we pay big time for doing that, hippi, you know it. i really do understand a lot of how u must fel, esp. emotionally;not havin lupus , etc, of course i can't understand it all;crohns isn't lupus, but it is related as is cfs;our immune systems just don't work properly...as though you don't know that, right? you know, after all these yrs., there's still a part of me that is in denial about it. there is a part of me that still believes i'll get out of bed one day & be healthy again, although i know better...is it stupid to hold on to that hope? what do u think? it is not realistic, but if i give that up, i don't think i would want to live;make sense? i thought i had accepted it all 100%;apparently not, & i just now realized that. thanks, hippi;you help me to think as i write to you. also, thanks for the kind words...you have no idea how much you lift my spirits, hun...& i can't properly ever thank u enough excert to tell u that uhave a friend for life in me if you want one. i have worked on 2 paintings this past wk;think i ruined 1, we'll see...so i'm waiting for more energy, concentration before i tackle moe work;cfs makes me so weak as well as confused, can't concentrate;i love books, too;don't  rad much anymore, tho;since the cfs...i can read a sentence or 2 3 times sometimes & still not remember what i readwe hadto take speed-readind in college &i sad used to inhale books....i sure miss that;i read when i can but it's different now..i am so glad that u can pass some time rading, dear;it's a wonderful thing.my mother read to me when i was 2&3 on for a few yrs.(i didn't tell her i could read when i was 31/2 cause i liked that time, our time;) well as usual, too long.. tc, rest, & stay in bed as much as you can..or knowing.  u, WILLknow i'm thinking of you & hoping & praying for u to feel bettr soon. again, & u can't kick my butt, cause u can't reach it hehehe..REST.  tc hugs & love from painter j. eyes eyes i will be watching u, lady;i have my ways!!REST- eyes :-) sleep SLEEP
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 10:58 AM (GMT -7)
There are a total of 2,732,122 posts in 300,996 threads.
View Active Threads


Who's Online
This forum has 151159 registered members. Please welcome our newest member, webers.
252 Guest(s), 13 Registered Member(s) are currently online.  Details
Krimpet 🍔, PeteZa, Wdan, Michael_T, Bucko, sararectenwald1, ChickNorris, rockyfords, Jingles1234, Kmuth, joee, MollieMae, minnietoty


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer