anyone else.......

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Shaper
Regular Member


Date Joined Jan 2006
Total Posts : 23
   Posted 6/13/2006 8:12 AM (GMT -7)   
sick and tired of CFS taking control of their lives?!! I havent had it long, got diagnosed with it in dec 05, so i lose count of themonths, but it already feels like a life time!! I have to be the first to admit that it changed my life so much. i lost my girlfriend, due to the fact that it changed my entire attitude and i was mean and nasty, down to the lack of energy! i lost my job! and it isn't for the lack of trying...i'm my own worse enemy, i cant rest when i'm told too! since losin my job, i've had 3 jobs! 1 in a pub, another 2 as a labourer and it was the latter that made me feel better!! but after blacking out the other week, i've been knocked back and i want to ask everyone out there, if they've found any remedy that really helps?! i've already tried raiki and accupuncture. i eat healthy and i have always been active! i dont really want to go on drugs as my body rejects them and make me worse, so natural remedies would be good!! Enough is enough, i have had enough of sitting waitin for it all to ease, if it(CFS)pushes me then i'll push back harder - surely one of them will break, general physics apply(odds are on that it'll be me first)but i've tried what the doc says to do, it's now time take the bull by the hands and fight!!! i dont take offense, so it'll pro bably make me laugh to hear some of your replies, you might think i'm stupid - tell me.anyway i look forward to your replies!
"miracles we do at once, the impossible takes a little longer" tongue

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 6/13/2006 9:07 AM (GMT -7)   
I wish there was an answer to your question. It's terribly hard to deal with these types of illnesses - I still go into denial. I know you don't want to take meds and there really aren't that many out there anyway for CFS, just antidepressants and provigal. I'm not too familiar with a lot of natural remedies. There were some interesting suggestions on Orion's post about "always tired" you can read that and see what you think, although i'd be hesitant to use one of the treatments that was described. There are non traditional treatments out there like naturopaths and people who practice Chinese Medicine, but I don't know anything about these approaches and you really have to make sure you get a reputable person who isn't going to scam you or harm you.

I relate to "taking the bull by the horns". I sometimes think that if I just get in the right frame of mind to fight this thing then I will feel better, but my body just won't cooperate for some reason. THe times I've fought my body and tried to live a normal life, I have paid dearly. I hope you find something that helps you. I like raiki and healing touch, but I haven't tried accupuncture.
Diagnosis:  Suspected Lupus 2004; Raynauds 2006; Sjogren's 2006; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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aquarias
Regular Member


Date Joined Mar 2006
Total Posts : 296
   Posted 6/13/2006 3:35 PM (GMT -7)   

Shaper, I am sorry you are suffering - I am too.  Since September 05.  Did you have a virus before the CFS came on?  I am sorry you lost your girlfriend, I often stress I will lose my fiance.  I have devloped severe anxiety as a result of this "illness".  Could you share your symptoms?  I have had most doctors tell me that they are not convinced I have CFS and one infectious disease doc who thought it was CFS.  I just think this whole thing is bull****. I am going for more bloodwork tomorrow, I keep thinking maybe they missed something or it is lyme disease.  I think you and I communicated before- sorry to hear you are still suffering.  I have never blacked out,  but I get really really run down feeling, like I am dying. You can see the fatigue on my face and I still have the circles under my eyes.  God bless you for staying positive,  I am really losing my positivity.  I mean who suffers like this with no tests showing anything.  I just cant accept it.  Notice this forum is only like 13 pages long- it just shows you how few people have to deal with this craziness.  If you want to you can email me at aquarias@heallingwell.net. I would really like to compare symptoms.  My uncle went through something similar and he was blacking out- almost lost his job- but got better at the six month point.  I am at 8 months now- I am really losing it.  How do you stay positive? 

 


aquarias
Regular Member


Date Joined Mar 2006
Total Posts : 296
   Posted 6/13/2006 3:58 PM (GMT -7)   
Shaper- I apologize for being so negative- one thing you might want to try is juicing organic vegetables everyday. Sometimes that seems to help me.  I believe you said before that you did some kind of fitness training as a proffesion?  If I am correct then I really relate becuase I was previously very physically fit and active.  If I could just come out of this I would have such an appreciation for health and for life.  I am only 28 and I am wasting the last years of my 20's being sick.  I know what you mean about the irritability- I have been very rotten throughout this "illness".  I also suffer from anxiety which complicates my situation.  It is very hard not having anyone to talk to that has gone through or is going through the same thing.  MY symptoms started by just being really dizzy, fatigued, weak through whole body, circles under eyes, sore throats, headaches, back aches, stiff chest (sternum), panic attacks- now it is pretty much just fatigue, feeling really run down(dead), occasional sore throats and headaches and back aches and anxiety.  Let me know your story- they never found any virus or anything.  I did all the tests- I just feel like I have been in an awful nightmare for 8 months- I am just surviving(not living) everyday until I get better.

Shaper
Regular Member


Date Joined Jan 2006
Total Posts : 23
   Posted 6/14/2006 9:50 AM (GMT -7)   
hey aquarias, i tried to email you with my symptoms, but it got rejected - but i'll keep trying! the email explains alot so hopefully you'll get it
keep glidin
shaper

aquarias
Regular Member


Date Joined Mar 2006
Total Posts : 296
   Posted 6/14/2006 10:59 AM (GMT -7)   
Shaper try emailing me to my personal at amym2178@yahoo.com
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