Feeling so ill!

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aquarias
Regular Member


Date Joined Mar 2006
Total Posts : 296
   Posted 6/16/2006 7:44 PM (GMT -6)   
I was wondering if anyone with CFS has a very bad, ill feeling.  For me this feeling goes beyond fatigue, it is like an extreme run down and sick feeling.  It almost feels like there is something in my bloodstream making me sick.  I am still not completely convinced I have CFS although I have had a lot of the symptoms.  I have been sick 8 1/2 months.  All of my EXTENSIVE medical tests came back fine, not even a virus.  Most of my doctors(ive seen many) told me they just don't know what is wrong with me.  I got one dx of CFS from an infectious disease doctor, but I had only been sick for 2 months at that time and I thought you had to be symptomatic of CFS for 6 months before being diagnosed? 

hopestudios
New Member


Date Joined Jun 2006
Total Posts : 1
   Posted 6/29/2006 8:50 AM (GMT -6)   
Yes! You described exactly how I feel! I am only 41 and just can't accept that I won't get better or feel "normal" again. Recently I have been searching for answers nutritionally, but have to take meds to stay alert enough to go to work. I have been battling this for 3 years now. One thing I've learned is that YOU know your body better than anyone else. Trust your instincts and use the doctors for testing to rule out other conditions or diseases. The rule of thumb is 6 months of symptoms to Dx it as CFS...it just seems that after you are "labeled" with it, they don't really do anything for you except treat the symptoms. I want to be CURED! There has to be a way. I won't give up!

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 6/29/2006 9:09 AM (GMT -6)   
aquarias, I'm sorry that you sontinue to feel so sick. I do believe you are right about the 6 month thing. I do think it is really important to continue to get tests done once in a while especially when you feel really sick or if you develop any new symptoms. I do think your description of feeling like you have the flu goes along with CFS. I think a lot of people with CFS feel very sick.

hopestudios, welcome. It is frustrating to battle a chronic illness for so long and to know that there is no cure. CFS seems to have fallen off the radar in the medical community and you don't hear about a lot being done to find a cure or to help people live more "normal" lives. You have a great attitude about not giving up. My symptoms went into remission for several years and I felt almost "normal" but I still had to rest more than most people.

I think all of us need to hold out for hope. If I didn't have hope that things would get better I'd probably give up.
Diagnosis:  Suspected Lupus 2004; Raynauds 2006; Sjogren's 2006; CFS 1991; Mono 1985
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aquarias
Regular Member


Date Joined Mar 2006
Total Posts : 296
   Posted 6/29/2006 2:52 PM (GMT -6)   
Hopestudios- I was just curious, did your illness start with a  virus?  Did your symptoms come on suddenly, or develope over time?  Did you experience dizziness?  Do you suffer from any other illnesses?  I am really just trying to understand CFS.  Thanks!

megangirl
New Member


Date Joined Jun 2006
Total Posts : 8
   Posted 6/30/2006 5:30 AM (GMT -6)   
i dnt think the CFS has any sickness in it. to me its more like a state. maybe your body metabolic condition is in havoc, totally unbalanced that why you feel like this. did you try paying attention to your food?

Amby
Regular Member


Date Joined Jun 2006
Total Posts : 53
   Posted 6/30/2006 4:50 PM (GMT -6)   
Hi,

Have you heard of Dysuatonmia? Or P.O.T.S? My Cardio thinks this is what I have, and it can be confused with CFS and even be a part of it. You can develope this from illness. Good luck.
Amber

Amby
Regular Member


Date Joined Jun 2006
Total Posts : 53
   Posted 6/30/2006 6:05 PM (GMT -6)   
sorry, I need to correct my spelling....dysaustonomia is the correct spelling. It takes awhile to get the spelling down, lol
Amber

KCLyme
Regular Member


Date Joined Jun 2006
Total Posts : 316
   Posted 7/6/2006 6:40 PM (GMT -6)   
Hi Amby,

Just wanted you to know that the symptoms of POTS are also the symptoms of Lyme Disease---which is usually curable with antibiotics. If you haven't explored Lyme, you probably should. Keep in mind it is very likely your cardiologist does not know much about Lyme since most doctors don't, and you could have it even if you don't remember being bitten by a tick.

Good luck.
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