Well said painter . It does seem like a fight - everyday is a fight to get out of bed and try to function. I think it's important to figure out the the right amount of "fight" to give. You are right that if you fight too hard, the cfs will win. It's a huge balancing act and I'm still trying to learn how to listen to my body while still testing the waters a bit to see how much I can do each day. Diseases like cfs are life changing and I'm in the process of figuring out who I am all over again and I'm working really hard to find things I enjoy that don't require a lot of physical exertion.
Thanks for posting this, it gives us all a lot to think about. I hope you are as well as you can be. I'm still struggling. I've decided to turn my notice in at work next week. I'm going to work until the end of August. I know this is the right decision because I feel a real sense of peace about quitting.
Lots of hugs for you painter
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