New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

pasara
Regular Member


Date Joined Apr 2006
Total Posts : 206
   Posted 8/22/2006 3:48 PM (GMT -7)   
does anyone know of any resources regarding applying for disability due to chronic fatigue? any advice? i have been out of work for over a year

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 8/23/2006 1:58 PM (GMT -7)   
Pasara, one of the best places to start is with your doctor. It will be hard to get disability if you don't have a doctor in your corner. I have never applied for it myself, but I have heard from a lot of people who have. Just know that it can be a long and stressful process. Almost everyone is denied the first time they apply and often times the second time they apply too. Most people then have to request a hearing and hire a lawyer and that is when you might actually have a chance at getting disability. The good thing is that if it is awarded they backdate the payments to the date that you first applied.
Diagnosis:  UCTD (probably lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain;

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/



lmb
Regular Member


Date Joined Aug 2006
Total Posts : 48
   Posted 8/24/2006 6:35 AM (GMT -7)   
good luck with that chronic fatigue is only one of my problems and they told me that they didnt consider me disabled lucky for me i found a job online that i manage to do ok with so i didnt appeal but u can apply online and it takes awhile but like i said good luck
lmb

cactus
New Member


Date Joined Aug 2006
Total Posts : 2
   Posted 8/30/2006 9:33 AM (GMT -7)   

Hi

I've been on disability since 96.  Here are my suggestions.  You need a doctor on your side.  Try to avoid part time work if you can cause it can serve to lower your average for calculating the disability payment.  Then start adding up all the things that are wrong with you.  The more the better.  You have a chronic disease, you must be depressed.  Do you have high or low blood pressure?.  Are you overweight?  Are you sound and light sensitive?  Anything else a Doctor will document? 

Once you get a Dr to say that you can't work and it goes on your chart you are moving along.  Then do the paperwork to apply.  They will turn you down.  APPEAL!  Always APPEAL!  When it gets down to seeing a judge say OK, set a date.  Don't get a lawyer till you have a court date, they take a large portion of your check just when you probably need every penny.

I got my first check two days after I set a court date, I never got a lawyer.  If you think the amount is too low, get it checked out.  The amount you get will be the basis for your Social Security for the rest of your life, don't get cheated.

Once you get on checks they will hassle you every few years, just keep seeing your Dr. and reminding him of all the reasons you can't work.  Keep getting it in the record.

If you don't have enough quarters for  Disability you may qualify for other programs.  If you aren't well enough to check into them get a friend or relative to do the leg work.

Good Luck - Cactus

 

 


Shortstop
Regular Member


Date Joined Aug 2006
Total Posts : 195
   Posted 9/1/2006 6:33 PM (GMT -7)   
I can speak from experience here as I applied in 2002 and currently I am at the hearing level. I have my hearing date coming up this is something I didn't set up, I was sent a letter in the mail from the Judge that will be hearing my case. I have looked into filing and what needs to be done that this is what I have learned: I am not an expert on this and don't know everything.....I have questions myself still....
1. I was denied the first time and I appealed.
2. I was denied the second time and I appealed...Both cases you are on a time frame of 60 days to file your appeal....
3. Your third appeal will get you a face to face with an Adminstrative Law Judge. You should have already hired an attorney to help you file this stage. Also a key indicator that you have a possible chance of winning your case is if a lawyer takes your case to begin with...My experience with this is in the beginning I could not find a lawyer to take my case because they only get 25% of your backpay up to $5300.00 dollars and not one penny more. I didn't have the backpay time built up for them to make a large payday for their firm. If my backpay in the beginning was $500 dollars they would only get 25% of that and not a penny more...Now I had several years of backpay built up by the time I appealed the after the second denial....It is a long process....I called the same firm to see if they would take my case and boy they jumped, but I declined. I hired an attorney from another firm...This is just my experience only....
Since I don't have a large amount of medical history built up concerning my Panic disorder and major depression, some of medical records were even purged by the doctor and not available anymore....Also, since my back injury occured in 2002 I don't seek a ton of medical care because of the panic disorder...I even rush out of the doctor's office without telling half of why I am there...I even tried to fake being better from the severe back injury....Because of this, Social Security sent me for exams at their expense, they are called CE's....I was sent to an orthopedic and a Neurophsycologist for a mental exam....This gives the judge a clear and precise medical determination of me and gives him a good solid source to base a part of his determination on....
Yes it will be easier to go with more than one ailment, build the case....ALSO, and this is a big ALSO, I wish I would have known this in the beginning: The diagnosis of CFS, chronic pains, or even Aids does not qualify anyone for disability...The basis of disablity is determined by how the diagnosis of CFS has "limited your functional abilities." Example: I cannot sweep my floor because it causes my severe pain and increases my pain level to an 8 out of a 10. When the pain increases to this level I am off my feet for 2 days in a row. I cannot walk more than 70 yards without assistance, because walking this far causes my legs to become stiff and causes muscle spasms in my back. It also increases my chronic pain to increase to a level 7 out of 10....
I am still learning how to speak specifically like I have just described above...It is difficult for me to write so pinpointedly like that...
It has to be this way because SSA will say to someone saying I have chronic pain: Well a majority of the people have chronic pain everyday and they work fine. How does your chronic pain prevent you from sustaining gainful employment? In other words in your case How will your CFS prevent you from sustaining gainful employment? Seek a lawyer, if they take your case they won't get anything unless you win...
Also, if your doctor supports your claim of not being able to work because of the CFS, most doctors don't write down most of what you are saying. It is important that you get it all documented in your medical records...Also, a key thing is if you do file for SSD most doctors write terribly and the people in the SSA won't be able to read your doctor's notations. Make sure you request your records and if they are not dictated request them to be. That way when they are requested it will be clear and precise...I have a 8 days in a row of a hospital visit when the MRI revealed the severity of my S1 hernation was, the doctor's records are unreadable, O'MY! A great deal of what needs to be read cannot be by the normal lay person anyway...
If I had to give you one big peice of advice it is this: Do not trust the SSA to be on your side, do not trust them to collect the medical records. In my case even though I gave the doctor's name and information they didn't collect what needed to be collected. Make sure you keep copies of what you send, they tend to lose things....Good luck..


 Severe herniated S1 disc that caused never damage on left side and wonderful reflex tricks, mild herniated L4/5 disc, severe spinal stenosis, panic disorder, major depression and if that wasn't enough IBS with the beginning stages of diverticulosis. 


pasara
Regular Member


Date Joined Apr 2006
Total Posts : 206
   Posted 9/3/2006 8:13 AM (GMT -7)   
Thank you, Shortstop, this is the kind of information I need. good luck with your hearing!

Shortstop
Regular Member


Date Joined Aug 2006
Total Posts : 195
   Posted 9/5/2006 9:33 PM (GMT -7)   
Your welcome...If you have anymore questions just ask, if I know the answer I will be happy to help...

Biting nails hearing getting closer....Pray for me!
 Severe herniated S1 disc that caused never damage on left side and wonderful reflex tricks, mild herniated L4/5 disc, severe spinal stenosis, panic disorder, major depression and if that wasn't enough IBS with the beginning stages of diverticulosis. 


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 9/10/2006 8:54 PM (GMT -7)   
I seen your post and wanted to put my two cents in.

I'am on disability have been for two years now,but not with out a fight.the first time I was turned down reaplyd and turned down again replyed for the third time and got a lawyer this time but in the mist my ex-husband dicided that he did not want a sick wife.

So I moved back to my home town and I told my lawyer there what was going on and he made sure all of my files made it to the state i live in and had a court date set and three week's before i was to go in front of a Judge I got a letter telling me that I had been approved.

It did take a couple of year's but don't give up because truth be known that is what they want you to do.I do agree with some of the other's though the more Doctor's you have on your side the better off you will be.

Please let us know how it goes and if you would like to talk in privete please e-mail me.
Thanks
Curley......
a.k.a.Mela...........


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 9/10/2006 8:57 PM (GMT -7)   
Sorry I also ment to tell you that this is what I have

(1)CROHNS

(2)Ra

(3)oa

(4)as

(5)Sjerens syndrome
Thanks
Curley......
a.k.a.Mela...........


Shortstop
Regular Member


Date Joined Aug 2006
Total Posts : 195
   Posted 9/16/2006 10:27 PM (GMT -7)   
Just to update my post here even though I have already post in the aniexty thread. I had my hearing yesterday and I was given a bench decision of fully favorable....I am not just awaiting for the letter in the mail....Once that letter gets here I am completely in the system...

Curley is correct, just keep going, keep appealing....Mine fight was 4 years long........
 Severe herniated S1 disc that caused never damage on left side and wonderful reflex tricks, mild herniated L4/5 disc, severe spinal stenosis, panic disorder, major depression and if that wasn't enough IBS with the beginning stages of diverticulosis. 

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 4:47 AM (GMT -7)
There are a total of 2,732,003 posts in 300,981 threads.
View Active Threads


Who's Online
This forum has 151148 registered members. Please welcome our newest member, Cary Breef.
180 Guest(s), 1 Registered Member(s) are currently online.  Details
Hope 196


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer