I've had CFS for about 4 to 5 years. Before I even got diagnosed there was a lot of going to a million doctors and them not knowing what was wrong, finally there was one doctor that came to the conclusion that I had CFS, it took so long to even find that out because a lot of doctors don't believe in CFS which can get frustrating because they make you feel like you're crazy and making things up. But with CFS I sometimes get these spells, that's what I call them, where I get lightheaded, dizzy, hot/cold flashes and it gets hard to breathe I've had a few times where I've passed out completely and got up and didn't even remember falling out. I also get headaches a lot, I have one about every day. My memory isn't all that great either since I have had CFS, like sometimes I can't remember what I did the other day. Having CFS I stay sick a lot since my immune system is very low. And I'm always very tired no matter what. To say the least CFS has been a big burden on me, I had to drop out of highschool because I was missing so many days of school from being sick. I don't really get out and do a whole lot because 90% of the time I don't feel good. It seems like sometimes I get really bad panic attacks out of the blue, I don't know if it's like truely a panic attack but maybe something like it like I'll have trouble breathing and my heart feels like it's going to pound out of my chest, not a good feeling. CFS is really hard to live with, a lot of people don't understand they hear CFS and they think oh you're just lazy because they don't take the time to try and learn anything about CFS and what it truely is, I'm so glad I found this forum it's nice to be able to talk to other people who are also living with CFS and can relate.
Well onto the advice part lol, I was wondering what do a lot of you do job wise? Is it hard to keep a job because you do have CFS? I'm 19 and haven't ever had a job, because I got diagnosed with CFS at a young age I didn't have the chance to go out and find a job like a normal teenager, don't get me wrong I'd love to have a job but I don't know...I just don't know how it would work out because a lot of people wouldn't want to hire someone that stays sick all the time you know. Are there online jobs that you do? or anything?
Thanks for listening =)