What do you guys think of this.....

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johnnyboy
Regular Member


Date Joined Mar 2006
Total Posts : 51
   Posted 10/26/2006 12:50 PM (GMT -7)   
I was told by someone I don't know to well to see this Doctor. I was hoping some of you with a little more experience in seeing different types of Doctors could check out his website and let me know your opinion. I know you can tell much by a website, but your guys opinion means more to me than someone without CFS. Here's the link.

http://www.simplyhealingclinic.com/health_conditions/chronic_fatigue_syndrome.html?src=overture

Let me know your opinions on this type of therapy. Thanks.

Orion82698
Regular Member


Date Joined Mar 2006
Total Posts : 423
   Posted 10/26/2006 1:21 PM (GMT -7)   
JohnnyBoy...


Can you tell us a little about yourself first?



How long have you had your CFS? What are you main symptoms? What are you secondary symptoms? What have you been tested for? What have you tried?

Post Edited By Moderator (Admin) : 9/28/2009 3:59:39 PM (GMT-6)


TaniaAust
New Member


Date Joined Oct 2006
Total Posts : 13
   Posted 10/26/2006 5:59 PM (GMT -7)   
I didnt check out the website but i think we often find the best doctors for this illness by the recommendations of others. Also those doctors who have a real interest in this illness..and going to understand it and us much better.

I personally dont like going to any doctor who doesnt specialise in CFS.. other doctors get confused at my symptoms and end up trying to diagnose me with things I dont have.. just cause of my CFS symptoms.

I recently had one try to tell me that he thought I was bipolar.. just cause I get mood swings due to the emotional liability of CFS.

johnnyboy
Regular Member


Date Joined Mar 2006
Total Posts : 51
   Posted 10/29/2006 12:10 AM (GMT -7)   
Sure Orion, I'm 23 and I believe I have had CFS for 5 years now. My main symptoms are fatigue,severe lymph node swelling, "Brain fog", memory loss, can't concentrate the same, don't retain info as much. Those are my main symptoms. Along with many little ones. I can go for days. I have been tested for everything, to many to list. Most things I try make me worse. As far as myself I was an athlete 5 years ago, and full of energy. Slowly I got worse and worse. No major illnes to triger it, no major event. No ticks, nothing. I went from Mentally and physically being well, to physically falling apart. Luckily my family is supportive so mentally I have been great considering my situation.

TaniaAust-
I'm sorry for your experience with your Doctors, if it makes you feel any better I can relate to ridiculous conclusions do to my symptoms. I've gotten up and left laughing from a Doctors office more than once.

Post Edited (johnnyboy) : 10/29/2006 1:14:49 AM (GMT-6)


pasara
Regular Member


Date Joined Apr 2006
Total Posts : 206
   Posted 10/29/2006 8:31 AM (GMT -7)   
Johnny Boy,

First of all, I want to say that I am someone who believes strongly in holistic medicine, and without discounting out of hand what allopathic medicine has to offer, prefer to go that course whenever possible.

Here is my caution after looking at this site: I would be suspicious of anyone who claims to be able to cure everyone 100% of the time. That was a red flag to me. Also, after reading the dissertation, many of his patients merely needed to make simple lifestyle changes, that by themselves, without even doing the mega-doses of supplements and herbs would have been strongly beneficial to them. For example, walking to a sweat daily, quitting smoking, cutting caffeine and sugar consumption. There are many beneficial supplements that he uses that could be helpful to people, but he uses so many at one time, this was another red flag to me from a holistic perspective, for the same reason taking tons of pharmaceuticals would be. When you do so much at one time, how do you know what it is that is actually helping you, and that is not even considering the potential for problems through their combinations with one another or other simple mainstream medications. For instance, I was told to start taking ginkgo biloba once, but that is actually a problem for someone who takes ibuprofen because of blood thinning properties. I would hope that this guy thinks about these things, but sadly there are practicianers out there who don't look carefully enough at how they are taxing the body just because the substances are "natural." There is nothing natural about taking any type of supplement. Our bodies are made to run smoothly through a varied and healthy diet. I do take some supplements, but I also keep in mind the truth of the matter, which is that I am adjusting the chemistry of my body.

From my perspective, everyone I meet has some great advice on just what will help me, so I have learned to smile and thank them, but not latch on to everything they say, which is what I did at first out of hope and a feeling of desperation. Now I know to investigate thoroughly, weigh things carefully, and proceed cautiously. Once I feel the treatment is for me though, I give it my all, as in, I don't do it half-heartedly. Whatever doctor you work with, whether an MD or a naturopathic, interview them. Remember they are working for you, because ultimately it is you who has to do the work. Don't let them bulldoze you so that you are not in charge, or tell you they can fix everything, because there are too many variables out there when it comes to the human body and life force.

johnnyboy
Regular Member


Date Joined Mar 2006
Total Posts : 51
   Posted 10/31/2006 1:00 PM (GMT -7)   
Thanks for the reply. That's funny you say that because he gave me Ginco biloba. He gave me all kinds of things to drank. And he definately was pushy. But I stopped him and explained how I felt about the situation. I definately feel better in some aspects, but worse in others. So we will see.
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