Ever been labeled as lazy....?

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fiestysteph
New Member


Date Joined Dec 2003
Total Posts : 4
   Posted 12/8/2003 1:59 PM (GMT -7)   
I need two questions answered that are very important to me and I was hoping someone would help me out. I would really appreciate it.

1. How have you been labeled or stigmatized regarding your chronic illness?

2. How has your illness affected your family?


I would really appreciate some feedback.

Thanks to everyone who helped out.

Brynn
Veteran Member


Date Joined Mar 2003
Total Posts : 1663
   Posted 12/10/2003 12:39 AM (GMT -7)   
Hey Fiesty,
Welcome to the CFS message board.

That's some pretty personal info, for which you're asking. And not very much of an explanation as to what your interest is. Actually, your message is bordering on spam. You may want to give us a little more info about yourself, if you want sincere replies.
brynn,  Moderator for Chronic Pain forum
            and Chronic Fatigue Syndrome forum


Admin
Forum Administrator


Date Joined Jan 2003
Total Posts : 9658
   Posted 12/10/2003 10:29 AM (GMT -7)   
I think these questions can be answered somewhat anonymously (she isn't asking for names, etc.), although if she is posting the same questions throughout the forums, she should email admin@healingwell.com to obtain permission.

Peter
Peter Waite, Founder/Editor
HealingWell.com - Community, Information, Resources
www.healingwell.com


fiestysteph
New Member


Date Joined Dec 2003
Total Posts : 4
   Posted 12/10/2003 8:31 PM (GMT -7)   
This is feistysteph

Administration

I dont see what the problem is or where you get the insane concept of bordering on the spam issue. I am a student frustrated and wanted some help. Sorry for the inconvenience of asking how people feel about their lives. I thought that this is what this site was about, I must have been wrong. I''ll stop asking and find a new website if this is such a huge concern that adminstration felt a necessity to write me.

Brynn
Veteran Member


Date Joined Mar 2003
Total Posts : 1663
   Posted 12/14/2003 2:23 AM (GMT -7)   
Hi Fiesty
If you had said
"I am a student frustrated and wanted some help."
in your first message, or replied to any other members' messages, I would not have had any concern.  It's just that you didn't give us any info about yourself, yet asked for very personal info about us.  Also, there's no way I could answer your questions in 2 minutes.  So, as a member, I chose not to answer them.  I don't mind spending 2 hours on a reply, if I think it might help someone.  But I have no way of knowing what to write, or whether it might help, as I know nothing about you.

Plus, posting the identical message in 3 different forums, also seemed a little impersonal.  So as moderator, I felt it necessary to ask the administrator to comment, as I wasn't sure if your messages qualify as spam or not.  You can see that he does not think so.

"Sorry for the inconvenience of asking how people feel about their lives. I thought that this is what this site was about..."  This site is about sharing our feelings and experiences, not telling strangers how we feel.  You simply needed to have introduced yourself, and/or replied to other members' messages.  You can't expect people to open up, or invest time and energy in your problems, if you are unwilling to do the same for them.

You are more than welcome to continue participating at HealingWell, and I hope you can find some support in whatever are your medical problems (you haven't said).  You may want to keep in mind that when you share your own feelings and experiences, you support others who may be in similar situations.  And also, that you may receive as much, or even more support, by reading other members' messages, as you do from replies to your own messages.  THAT'S what this site is about.

brynn,  Moderator for Chronic Pain forum
            and Chronic Fatigue Syndrome forum


Fibro Wheezer
Regular Member


Date Joined Feb 2004
Total Posts : 143
   Posted 2/7/2004 7:09 PM (GMT -7)   
to answer the question...... Yes, I did at one time have a Dr(?) tell me I was just "fat" and "lazy" he didn't feel I had an illness. I started crying, got down off the table, pushed him out of my way and left the office. I never returned. :( some DRS are "jerks" and I have met several of them.

    

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