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TDLonly1
New Member


Date Joined Oct 2006
Total Posts : 11
   Posted 11/1/2006 4:26 AM (GMT -7)   
   Hi out there, i'm new at this so i'm a little lost... i've been diagnosed with cfs since 1992...i spend 6 months a year housebound because of it...
      If only,i could sleep one night and wake up rested...
      If only i could wake up refreshed and in no pain...
      If only i could have one day a week painfree...
      If only i could have a little bit of a life...
      If only i could feel normal...
      If only i could've accepted my illness from the beginning...
      If only i was the only one, no one else would have to feel like this...
      If only i could have an appetite, and eat normally...
      If only i didn't have to face this alone...
      If only i still had self-esteem...
      If only love and happiness were possible...
      If only this illness was treatable...
      If only we could all meet, feel great , smile and hug each other...Wouldn't that be neat!!!!
  
   I hope that someone out there feels good, and the rest of us, well, just try to grin, it's a hell of a lot more fun than crying...Take care and have as good a day as you can...

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 11/1/2006 6:01 PM (GMT -7)   
Welcome, TDLonly. I'm sorry you are suffering so uch from CFS. I think you will find a lot of support and understanding here. I think you described so well how a lot of us feel when dealing with this illness. Take care and I'm glad you joined.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain;

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/



kie
New Member


Date Joined Oct 2006
Total Posts : 17
   Posted 11/1/2006 8:40 PM (GMT -7)   
amen!

TDLonly1
New Member


Date Joined Oct 2006
Total Posts : 11
   Posted 11/1/2006 10:14 PM (GMT -7)   

   Hi, thanks for the nice words, they mean a lot when you're alone trying to cope... our illness takes everything that makes us human and leaves us frustration, depression and a lack of self-worth... it makes it hard to keep going sometimes... the lucky ones have a caring family or loved ones to give them strength, the rest of us have to try to cope alone... it's so hard when you don't have anyone to share with or even someone to talk to to try to take our minds off the way we feel constantly... i have a caregiver 25 hrs a week, the rest of the time it's me, my two dogs and two turtles... on the good days i eat one meal, the bad days i don't have the energy to cook or eat, and it's rare that i eat anything when my caregiver is here... i usually eat late at night just to put something in me... i'm in constant pain from the cfs, a good many bones were broken in a car accident and i have arthritis in the feet, the whole spine, and my neck is degenerated to the point that they won't touch it unless it affects major organs... and just to make things interesting i got bitten by a neighbours dog and got a chronic bone infection this summer... i didn't think i could feel worse, but the bone infection sure changed my mind for me... it's no use going to bed until i'm sure i can sleep, the pain makes it impossible to get comfortable, and i only sleep a few hrs a night, the pain keeps waking me up. i'm usually up by 5-6 am, i can't handle staying in bed... sounds like fun ,eh... they say that God doesn't send us more than we can handle, but i'm not sure sometimes... i came real close to giving up lately, that's why i'm looking for a little support and friendship... i'm getting depressed and i don't have a safety valve... i'll be housebound in a couple of weeks until april/may... i try to accept my fate, but it gets so frustrating sometimes... i try to smile, but it's getting hard... but, i'm too stubborn to give up, so i'm still trying... i grin as much as i can, it's way more fun than crying... if i can do it, so can all you out there... we have to keep trying... and when we can't, hopefully we can get online and find someone to give us a little boost... that's what friends do... thanks again for listening...


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 11/2/2006 8:12 AM (GMT -7)   
Wow, you have had a lot to try to cope with and I'm sorry you don't have much support outside of your caregiver. I'm glad you have your animals - I'm a strong believer that animals help us cope and can be so good for people emotionally.

If you are ever having trouble sleeping the chat room here is usually pretty active in the evening hours, so feel free to give it a try.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain;

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/



heatherbrownbear
New Member


Date Joined Jan 2007
Total Posts : 1
   Posted 1/31/2007 12:01 AM (GMT -7)   

Please please read You Can Heal Your Life by Louise Hay. It will change your life if you want it to.

Also read Heal Your Body by the same wonderful author for more in depth health solutions. Relief is waiting for you! My own life is now completely different and more than I could have dreamed of for myself.

Go ahead and check them out at Amazon. Read the reviews.

Many blessings, friend.

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