New news story about CFS - please take a look

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hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 11/3/2006 11:34 AM (GMT -7)   
Here's a news video from the nightly news that was on last night about CFS.  It's a brief report about CFS and that it is a very real illness and that the CDC is trying to educate doctors about it.  I hope the link will take you to the video - if not, let me know.  It was on MSN.
 
 
I checked the link and it worked.  You'll have to watch a quick advertisement first.


Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain;

 

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kie
New Member


Date Joined Oct 2006
Total Posts : 17
   Posted 11/3/2006 4:18 PM (GMT -7)   
well i'm glad real action is finally being taken to tell doctors that its not all in our heads!! its very discouraging when you go to a doctor, with real intense physical conditions, desperate for help, and they tell you to go see a psychiatrist because they can't find anything in ur clinical tests (though there are some abnormalitites) that show a solid known condition. and then you tell them what about chronic fatigue immune dysfunction syndrome and they say it doesn't exist!! if they could experience what we've experienced (and i wouldn't wish that on anyone) they'd know just how real it is.

TDLonly1
New Member


Date Joined Oct 2006
Total Posts : 11
   Posted 11/4/2006 11:00 AM (GMT -7)   
   Hi! there's also an article on my Roger's home page(under health) that talks about the cdc and cfs. they have a new site dedicated to cfs(for doctors & patients). the address is:" www.cdc.gov/cfs/." it's really a good site. it's 1:45 pm, i've been up since 5:30 and i haven't been able to take my supplements & ensure 'cause i don't think i could swallow it. i've had 1 pepsi(i had to force it). how am i supposed to get stronger like this. i've hardly the strength to stay sitting, the "fog's" extremely thick and the ears are just ringing a chorus. and this's with 30 mg dexedrine in me(a powerfull stimulant). if i could find a nice hole, i'd crawl in and stay there. what a fun way to spend my life. oh well, what can a fellah do... it's nice and sunny(but cold) and i'm stuck inside. it's so frustrating and lonely sometimes. ahhhhhhhhh!! thanks for listening.

Orion82698
Regular Member


Date Joined Mar 2006
Total Posts : 423
   Posted 11/4/2006 1:02 PM (GMT -7)   
HM2...
 
That's a great feed.  I just wish we could get it up to "60 Minutes", but this is a great start.  I only wish more Dr.'s took this seriously.

Suffering from Adrenal Fatigue (confirmed by Saliva test)

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hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 11/4/2006 1:34 PM (GMT -7)   
Yes, it's a start. I don't know how many people or doctors this reached, but I hope it starts to get more attention. You heard a lot about cfs in the late 1980's and into the 1990's, but not much now. There's a lot more out there about FMS and it seems that CFS has fallen through the cracks.

TD, I'm sorry you are having such a rough time.  I wish there was more docs could do for you.


Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain;

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/



TDLonly1
New Member


Date Joined Oct 2006
Total Posts : 11
   Posted 11/4/2006 2:03 PM (GMT -7)   
 you're right about cfs falling through the cracks. until 1995/96 there was a cfs support group in moncton(closest city). now there's only a support group for female fibromyelgia patients, conducted by a psycologist who specializes in fibro; but neither the group or the psycologist will have anything to do with cfs. i could tell you doc horror stories that would make you cry. the neat thing is the doctors believe in cfs, but i'm blacklisted because i'm a drug-addict; i'm a drug addict because i spent 4.5 years on hydromorphone awaiting back surgery for 5 compacted discs. the pain clinic doc told me it would take 1-2 years to wean me off the hydro(800 mg daily) plus probably two years on methadone. 7 months later, and 3 months after my operation, i quit cold turkey. that was 4 years ago, yet last dec i passed out backwards on my woodstove, ended up in the hospital with sprung ribs, torn muscles between ribs and lung, and burns. because i'm an addict, they refused to give me anything for pain. for 16 days i slept approx 1- 2 hrs per day sitting up in a chair. i finally got my doctor to listen to me in sept., after he ignored my complaints about pain and swelling in my hand because of a dog bite all summer. i ended up on an iv for 5 weeks with a chronic bone infection, and he feels bad. so he's actually listened to me the last two times i was in. he's put me on 150 mg arthrotec daily for pain. it's helped a lot, i can walk withought agonizing pain in my lower back. in this end of the world, to get a doctor to listen to me is something to rejoice. thanks for listening.
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