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gogos
New Member


Date Joined Nov 2006
Total Posts : 4
   Posted 11/5/2006 1:25 AM (GMT -7)   
Hi everyone!
 
I'm like 99.9% sure this is what's going on with me.
 
I have been feeling like crap since March 2005.  I have never been to the doctor so much in my life.  I think he thinks I'm a freak.  I have an appointment Monday at 1:15..  this time I'm going to beg for help - I think my job may be on the line now.
 
My main symptoms are feeling tired ALL of the time, cramps that feel like a period, sore throat, aches aches and more aches, headaches and wanting to cry.  I have no patients with my kids and I really just want to lay in bed and be alone all of the time.
 
I think this all really started when I was pregnant.  I didn't really eat well, was sick and was dealing with a hyper 2 year old and working on my Dad's estate.  I think I dug myself into a real fix.
 
I spent most of the this summer working on depression issues at the hospital - which honestly, I don't think I really have debilitating problems.  My father passed two years ago, and of course, I cry whenever I think about him.  Likely because I know when I feel really sick, that he would be the only person in the world who would understand that I'm not faking this. I was diagonsed with mono last September...  I swear I feel like I have it again right now.
 
I catch pretty much every cold, flu, headache there is.  People don't take me seriously anymore.  I think my husband is getting tired of it.
 
Glad I found this place.. hopefully I will learn some more from your stories.
 
Sincerely,
 
Christine

TDLonly1
New Member


Date Joined Oct 2006
Total Posts : 11
   Posted 11/5/2006 2:52 AM (GMT -7)   
  Hi Christine, welcome to the gang. i'm new to this site,too, and like you i'm looking for compassion and understanding. i slept for 1.5 hrs and the pain's got me up since 3:30am. it's now 5:30 and i guess i'm the only one awake to say hi. it really hurts to hear that you're having family problems because of something you have no control over. i lost a good relationship when i got sick, and a couple more since. it's so hard when people don't understand, they think you're crazy or faking it for attention. and that especially hurts when it's a loved one who's supposed to love you through thick and thin. i'm a 53 yr old male(diagnosed since 1992) and the thing i want more than anything else is someone to love me and understand me. it's really hard living alone, with no one to talk to and share things with. but, when i see letters like yours, i feel that maybe i'm better off alone; 'cause i don't think anyone should have to put up with me and my illness, especially someone i'd love, because of the mood swings and the times you want to just crawl in bed and die, with no noise in the house. boy, reality checks are a ***** sometimes. in a perfect world, no one would ever have to feel as we do; but, unfortunately, we don't live in a perfect world. i wish i could send you a miracle... patience towards your kids, understanding from your husband and at least one day a week when you'd feel great. i'll work on it, because i'm all out of miracles today. i know it's hard, but try to smile.
                                                                                                                                Dale tongue

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 11/5/2006 5:34 AM (GMT -7)   
Welcome Christine. I'm sorry you have been having so many health problems. I am also very sorry to hear about your dad - it's so important to have someone who is supportive when you are going through a chronic illness.

A lot of your symptoms sound a lot like CFS, especially since you did have mono. That's how all of my health problems started. The other thing that is important for doctors to do is to check you for lymes disease if they haven't already. There's been a lot of info out lately about people who are misdiagnosed who actually have lymes disease. Once other illnesses are ruled out, it might be best for you to see an infectious disease doctor - they are the people who would most likely be able to diagnose and treat you. Also have they checked the numbers regarding your mono? There is something I read about called chronic mono - so that would be worth checking into.

I get frustrated when other people or doctors try to concvince us that all of our physical problems are a result of depression. Can't they realize that we feel down or depressed because we feel physically terrible, not the other way around.

I'm glad you joined us and I think you will find a lot of support here. Feel free to ask any questions or just vent if you are having a rough day. Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain;

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/



Orion82698
Regular Member


Date Joined Mar 2006
Total Posts : 423
   Posted 11/5/2006 7:02 AM (GMT -7)   
Welcome GoGo's.

I'm sorry to hear that you've been feeling bad, and that your Father passed away.

Since March of 2005, how has your stress levels been? You've seem to have been through ALOT in the past 2 years almost. How's your diet? Do you exercise? Are you on any vitamins, or supplements? How much do you sleep at night (when do you normally go to bed, when do you wake up?). Has there been a time in the past 2 years where you felt relieved by being away like a vacation?

Please look into Adrenal Fatigue. As I tell everyone on here, this still can be CFS. I do not doubt at all that CFS doesn't exist, however there are still things that can be ruled out and I'm sure your doctor hasn't done this one yet.

Check out some of the link in my signature, and read some of my posts in this forum.

Take care, and rest up!

-O-

Suffering from Adrenal Fatigue (confirmed by Saliva test)

Multivitamin
6000mg of Vitamin C daily
800mg of Vitamin E
1000mg of Vitamin B5
100mg of vitamin B6
Adrenal Extracts
DHEA (25mg)

Take the Adrenal Burnout Questionnaire Here

Dr. James Wilson's website  Here

Tired of doctors telling you it's in your head?  Welcome to the club, and Healingwell.com

 

 


Orion82698
Regular Member


Date Joined Mar 2006
Total Posts : 423
   Posted 11/5/2006 2:51 PM (GMT -7)   
I don't understand what begging for help doesn't have to do with a low adernal reserve..... eyes

Does it make me a "Bad person" because I didn't list Lyme?  I understand that Lyme has had a lot bad rap's, but let's try to work together here, and not be so negative against other opinions.  nono

Not everyone has Lyme, not everyone has CFS.  Hell, if the Doctors really knew what they were doing, we wouldn't even be talking.  As I said before, work together. 


Suffering from Adrenal Fatigue (confirmed by Saliva test)

Multivitamin
6000mg of Vitamin C daily
800mg of Vitamin E
1000mg of Vitamin B5
100mg of vitamin B6
Adrenal Extracts
DHEA (25mg)

Take the Adrenal Burnout Questionnaire Here

Dr. James Wilson's website  Here

Tired of doctors telling you it's in your head?  Welcome to the club, and Healingwell.com

 

 

Post Edited (Orion82698) : 11/5/2006 2:59:20 PM (GMT-7)


sparker
Regular Member


Date Joined Oct 2006
Total Posts : 114
   Posted 11/5/2006 3:21 PM (GMT -7)   
Christine, sorry to hear you're not feeling well. I know what you're feeling when you have to repeatedly go to the doctor only to have them look at you with the "you again" expression. If they ever shrug and give you the "no idea" reaction, don't give up and keep going - find a new doctor if your primary one won't continue to treat you.

As everyone here said, there are unfortunately multiple diseases this could be, so beg and demand your doctor to help.. it's your life and he's being paid - not to mention it's his job.

This is a good place to come and talk and get some support when you need some. Let us know how the appointment goes Monday.


sparker
Regular Member


Date Joined Oct 2006
Total Posts : 114
   Posted 11/5/2006 3:23 PM (GMT -7)   
violets said...
Christine stated...this time I'm going to beg for help...

Thanks hippimom for including lyme in your post...you are a good person. It is obvious you see the big picture.

We all want her to find out what is wrong as she is begging for help. Mono? Lyme?

Take care
Not even sure what this is supposed to mean or add.  confused

gogos
New Member


Date Joined Nov 2006
Total Posts : 4
   Posted 11/6/2006 2:44 AM (GMT -7)   
sparker said...

As everyone here said, there are unfortunately multiple diseases this could be, so beg and demand your doctor to help.. it's your life and he's being paid - not to mention it's his job.

It's funny that we all end up feeling like we are troubling our doctors.  It really is their jobs isn't it.  In Canada, having a shortage of doctors and an just an "OK" health system, you don't want to trouble them too much, and the appointments are sooooo short.  My doctor is really good at sending you to specialists, but really can't figure much out on his own.  I have been self diagnosing via internet and it makes hubby CRAZY.
 
I spoke to my boss yesterday and thank goodness she kinda went through the same thing of being ill and in limbo.  After years she found out she had LUPUS.  Sooooo, as far as work goes at least I have someone on my side :)
 
Two months ago I read an article in Today's Parent on Candidia..  I was so sure the symtoms were me.  I read some posts in the forum and it seems others have thought the same thing without success.
 
My problem is, not only do I feel the aches, crampy etc. etc., I seem to catch every single solitary flu or cold going.  I have to be honest..  I don't eat as well as I should, I don't exercise, and I really should take a vitamin..  It's whenever I take vitamins I end up with MAJOR stomach aches and the poops.  Since it's 4:45 when I'm posting.. that kinda answers the sleep question - but then I have a cold right now and I can't sleep :)
 
I really want to thank everyone for their help and advice.

beckie_4u
New Member


Date Joined Nov 2006
Total Posts : 4
   Posted 11/6/2006 7:53 AM (GMT -7)   
Hi Gogos,
I'm new here too and I am soooo glad I've found this forum. I bet it helps a lot of people!
my 2cents is this:
I would follow-thru on what the others have said so far. I would surely start at depression, you have gone through a LOT in the past few years, and we are more depressed than a lot of folks want to admit. To orion's suggestion I would add vitamin b12 and folic acid. At the Dr's office they can administer the liquid form of the b12 if not, I taje the the one that's placed under the tongue..the stomach is very hard on b12. Also would consider Sam-e in place of DHEA. DHEA is very good, but can trigger hairloss in some folks, because it affects the hormone levels. And exercise, yes exercise, the single, most no cost way to feeling better! We're not talking weight loss here, just simple moves that will have your blood flowing! How could I forget water! The word diet scares a lot of us, but just like the exercise, we're talking moderation here. Cut out the sugars where you can, look for stevia or other natural sweeteners. After just about 2 weeks, I felt better! And yes, I feel bad doing this long post since I'm so new, but I have suffered too, and lost about 5years of my life b4 I searched this same internet and found the help I needed!
PS..please stay in touch with your Dr, just in case it's something else. I am not a Dr and give this info just as suggestion and and as a testament to what has helped me. Good luck and God bless you and your family.

sparker
Regular Member


Date Joined Oct 2006
Total Posts : 114
   Posted 11/8/2006 11:43 AM (GMT -7)   
gogos said...
 
My problem is, not only do I feel the aches, crampy etc. etc., I seem to catch every single solitary flu or cold going.  I have to be honest..  I don't eat as well as I should, I don't exercise, and I really should take a vitamin..  It's whenever I take vitamins I end up with MAJOR stomach aches and the poops.  Since it's 4:45 when I'm posting.. that kinda answers the sleep question - but then I have a cold right now and I can't sleep :)
I won't counsel you on what you have since I don't know what I even have, but the one thing I've read in almost every book is you need to eat well and get proper rest.  So.. that I will suggest you work on first.
 
For the longest time I kept wanting to get better, wanting some "cure" but never really making the effort of eating well and modifying my lifestyle to eliminate the unnecessary stress and frustrations.  It wasn't until I did start eating better and getting on a regular sleep cycle that I saw some improvements.  Mind you, I'm a long ways from cured, but I did make steps - and I think steps in the right direction definitely improves spirits and feels like progress.
 
As far as vitamins and their side effects, yeah.. definitely have to work with the amounts to make sure you don't have the negatives.  When I started the Vit C I'm taking now, I went through 2 weeks of - uh - excess gas production.  eyes    Eventually it went away.  Also, I had major stomach aches when I took too many vitamins at once, or when I haven't eaten some substantial food.  Either way, at the very least, you could start with a standard multivitamin - especially if you don't eat well.
 
What time do you get in bed at and what time do you get up?  Are you always fighting insomnia?
11/06/2006 Status - Saliva test indicates adrenal fatigue. 

6000mg/Vitamin C     800mg/Vitamin E      50mg/DHEA
1000mg/Vitamin B5    100mg/vitamin B6    200mg/SAMe
 400mg/Magnesium     500mg/L-Tyrosine    100mg/CoQ10
 450mg/Licorice Root 500mg/DL-Phenyl.    ADRENergize


gogos
New Member


Date Joined Nov 2006
Total Posts : 4
   Posted 11/8/2006 2:05 PM (GMT -7)   
Man, how great are you for still showing such an interest.
 
The doctor ran some more blood tests on Monday.  He's checking for a kidney stone, but I doubt it's that.  He also said it's likely not Candidia as I don't have a discharge. Right now I have one heck of a cold which is making me more tired and sore all over. I can't stop coughing and it's affecting my sleep.
 
Sleep.. well, hit and miss.  I have a four year old that goes from 11 to 7..  so there's not much relaxation time.  He's only in part time school.  The girly is almost 2...    I did move some hours around so I work longer on weekends instead of nights.  That's really helping - but our finances are really starting to hurt.
 
I am really concentrating on eatting better.  I know how to eat better - I just get bogged down with house and kid stuff that I just honestly end up grabbing a handful of cookies and a glass of milk.
 
As far a vitamins go..  I really get confused.  Should I be doing mulitis and which brand is best?  I'm so nervouse to ask about vitamins as so many will chime in with those multilevel groups (eg. my mother-in-law with Maleluca) or die hard fanatics like Herbal Magic that end up costing a fortune.  Should I be going one by one - like start the C like you did?  What should I be looking for in a vitamin???
 
 

Post Edited (gogos) : 11/8/2006 2:10:51 PM (GMT-7)


gogos
New Member


Date Joined Nov 2006
Total Posts : 4
   Posted 11/8/2006 2:08 PM (GMT -7)   
beckie_4u said...
Hi Gogos,
I'm new here too and I am soooo glad I've found this forum. I bet it helps a lot of people!
my 2cents is this:
I would follow-thru on what the others have said so far. I would surely start at depression, you have gone through a LOT in the past few years, and we are more depressed than a lot of folks want to admit. To orion's suggestion I would add vitamin b12 and folic acid. At the Dr's office they can administer the liquid form of the b12 if not, I taje the the one that's placed under the tongue..the stomach is very hard on b12. Also would consider Sam-e in place of DHEA. DHEA is very good, but can trigger hairloss in some folks, because it affects the hormone levels. And exercise, yes exercise, the single, most no cost way to feeling better! We're not talking weight loss here, just simple moves that will have your blood flowing! How could I forget water! The word diet scares a lot of us, but just like the exercise, we're talking moderation here. Cut out the sugars where you can, look for stevia or other natural sweeteners. After just about 2 weeks, I felt better! And yes, I feel bad doing this long post since I'm so new, but I have suffered too, and lost about 5years of my life b4 I searched this same internet and found the help I needed!
PS..please stay in touch with your Dr, just in case it's something else. I am not a Dr and give this info just as suggestion and and as a testament to what has helped me. Good luck and God bless you and your family.
Sugar... man...  I think I eat way too much of the stuff.  If I have an addiction.. it's sugar.  If I'm away from it for too long I start to shake and can't concentrate. 
 
I know exercise is important... and I don't do it  eyes  ...  but I'm almost nervous to start even the smallest of regimes.  I find that when I do too much, even around the house with simple chores like laundry and some vacuuming, I lie in bed for the next couple of days with body aches.  I feel like such a complainer. 
 
Thank you so much for your insight.  I will look into everything you have suggested yeah

Post Edited (gogos) : 11/8/2006 2:13:39 PM (GMT-7)


Orion82698
Regular Member


Date Joined Mar 2006
Total Posts : 423
   Posted 11/8/2006 2:33 PM (GMT -7)   
Sound like you might have some hypoglycemia going on there.  Keep your eye on that.
 
1.  Cut out all sugar, caffine, white flour products.  You need to be eating whole grains, veggies, proteins, and complex carbs.  Drink water or green tea. 
 
2.  Exercise doesn't have to be hard.  When I got back into it, I started by walking, just 20 minutes.  I can now do 30 minute on an elliptical machine, at a decent resistance.  Do not over exhert yourself.  This will leave you feeling the way you feel. 
 
3.  You're not complaining :)
 
4.  Get yourself onto a good multivitamin, to give yourself the micronutrients your missing.  Also, taking extra vitamin C, and Fishoil for the Omega 3's would be great.


Suffering from Adrenal Fatigue (confirmed by Saliva test)

Multivitamin
6000mg of Vitamin C daily
800mg of Vitamin E
1000mg of Vitamin B5
100mg of vitamin B6
Adrenal Extracts
DHEA (25mg)

Take the Adrenal Burnout Questionnaire Here

Dr. James Wilson's website  Here

Tired of doctors telling you it's in your head?  Welcome to the club, and Healingwell.com

 

 


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 11/8/2006 3:23 PM (GMT -7)   
Gogos, I was thinking the same thing as Orion about the sugar thing and the way you feel if you go too long without it. It's worth looking into some blood sugar issues.

As far as catching colds, viruses, etc, a lot of these illnesses including CFS can lower our defenses and our immune systems.

I know how hard the exercise and healthy eating thing is. Before I got sick I was a fitness queen and ate extremely healthy, but since I have gotten sick, not a lot sounds good and unfortunately the things that sound good are the more fattening kinds lof things and I also ohysically crave sugar. I am slowly working up to some exercise again, but it is very hard. If you do have CFS you have to be careful about exercise because if you push yourself too hard you can make yourself worse. Orion had asome good ideas for you. You can even break it down more and start out with 10 minutes or do 10 minutes twice a day. I tell myself that anything is better than nothing. I can barely do 20 minutes walking, this is sad coming from someone who used to run a half marathon every year.

Beckie, I also wanted to welcome you. We are here for both of you. Don't ever think you are complaining. It is so hard to deal with chronic illness. We need to be able to vent to each other and it is nice to be here among other people who understand what we are going through.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/



Orion82698
Regular Member


Date Joined Mar 2006
Total Posts : 423
   Posted 11/8/2006 3:38 PM (GMT -7)   
HippiMom2 hit the nail on the head with exercise, and I should have stated this as well.
 
The point in exercising when you feel like this is not to lose weight, or compete by any means, but rather to increase oxygen in your body.  It also helps fight depression and stress with Serotonin and Norepinephrine (Chemicals in your brain) that can be increase when exercising.
 
As HM2 said, start out slow.  Do what you can do.  Even a completely healthy person shouldn't start out running 5 miles a day.  Work your way up to it.  You'll find with time, it will become easier for you, and you'll be in a routine. 
 
I remember when I use to have explosive energy.  I would do Martial arts, lift weights, and run.  If I didn't do these things, I felt like I was missing something in life. 
 
It's all about habbits.  There are good habbits, and there are bad habbits.  Don't confuse this with obsession.  Obsessing over anything can be bad, and lead to something you really don't want.  Back to habbits though... you need to get yourself into the habbit of eat healthy.  try to eat 5-6 meals a day, every 3 hours.  This will also help stablize your blood sugar levels. 
 
Your carbs can be....    Whole grain brown rice, 100% whole grain bread, rolled oats (not the sugar kind), Yams/sweet potatoes, Lentils/beans.  Carbs can also be found in fruits and veggies, however fruits have a lot of natural sugars that can still play with your insulin levels, so keep that in mind.  Pink Grap fruits are one of the best fruits you can eat, and Broccoli has the most micronutrients availble. 
 
Your Protein can be....  Fish, chicken, Red meat, eggs, and various protein powders that all include some benifits from the others (Whey, Casein, Soy, Egg). 
 
Your fats can be ....    Nuts, all natural Peanut butter and Almond butter, olive oil.  Heck, I even eat mayo sometimes. 
 
Remember that with Fat, there are 2 great types, one semi great, and one bad.
 
Trans fat is the one to avoid.  It cause bad cholesterol, and will lead to heart disease.  The FDA now mandates that all products show trans fat if it's in the product (yay for us :)   )
 
Saturated fat is the on semi great.  I say semi great because too much of it can be bad.  You need to keep a balance of this in your diet though.  It should be 1/3 of your fat intake daily.
 
Poly and Mono unsaturated fats are the great ones.  They help promote healthy LDL (Cholesterol).  Remember, only so much though. 
 
Wow... I ranted for too long.  :)


Suffering from Adrenal Fatigue (confirmed by Saliva test)

Multivitamin
6000mg of Vitamin C daily
800mg of Vitamin E
1000mg of Vitamin B5
100mg of vitamin B6
Adrenal Extracts
DHEA (25mg)

Take the Adrenal Burnout Questionnaire Here

Dr. James Wilson's website  Here

Tired of doctors telling you it's in your head?  Welcome to the club, and Healingwell.com

 

 


sparker
Regular Member


Date Joined Oct 2006
Total Posts : 114
   Posted 11/9/2006 2:44 PM (GMT -7)   
Sugar is the enemy for most of us. For me, I was using it more and more as I went along, in place of regular healthy food and as a midday snack. At the end, before I quit, I had bags of little candy bars in my desk and I would pound cans of Coke all day. The problem was, it was taking more and more to keep me going... I was riding the sugar and caffeine buzz - and I still felt tired. Not to mention, it wasn't doing much for my health.

Now, I don't drink pop (or soda based on where you live) and I don't eat candy. I drink water (gotta drink it - but it's so bland) all day or non-caffeine tea. It takes a while to break your system from its addiction/love of the sugar/caffeine - but you gotta put what you like into perspective with what you need to do to get on the road to making things better.

Like Orion said, try to get a healthy balanced diet going, and like hippimom said, start with the basics if you're going to exercise. I'm the WORST at exercising now, it's just nearly impossible to get me up and going now - so I hear ya on that.

As far as vitamins, I guess I'd start with a simple multivitamin since you're still unsure what's going on healthwise. I used to use Centrum, which you can get everywhere - it's a simple low dosage multivitamin. Perhaps someone else on here may know of a better all around multivitamin. I definitely wouldn't follow my regimen of supplements because I'm using the shotgun approach - which has implicit risks.
11/09/2006 Status - Saliva test indicates adrenal fatigue.
11/30/2006 First scheduled endocrinologist appointment.

6000mg/Vitamin C     800mg/Vitamin E      50mg/DHEA
1000mg/Vitamin B5    100mg/vitamin B6    200mg/SAMe
 400mg/Magnesium     500mg/L-Tyrosine    100mg/CoQ10
 450mg/Licorice Root 500mg/DL-Phenyl.    ADRENergize

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