antibiotic therapy

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gloryroad
Regular Member


Date Joined Oct 2006
Total Posts : 193
   Posted 11/9/2006 6:27 PM (GMT -7)   
Is there anyone here that is being treated with long term antibiotic therapy for CFIDS?

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 11/10/2006 6:35 AM (GMT -7)   
I have heard of antibiotic therapy as a possible treatment for types or arthritis, but had never heard about it for CFS. I'd be interested to hear how it works for you. I have heard mixed results regarding arthritis.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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gloryroad
Regular Member


Date Joined Oct 2006
Total Posts : 193
   Posted 11/10/2006 2:32 PM (GMT -7)   
I've done a bunch of surfing on the internet and I exchanged email with this researcher - see web- link. He sent me his protocols. I have found a physician 5 hours away who treats auto-immune diseases with antibiotic treatments. I am currently seeing a TCM Acupuncturist and I do not want to try more than one thing at a time. I will make an appointment with the 5 hour away doc if I don't see results. I'm still being tested for auto-immune diseases.

http://www.immed.org/illness/fatigue_illness_research.html

gloryroad
Regular Member


Date Joined Oct 2006
Total Posts : 193
   Posted 11/10/2006 2:34 PM (GMT -7)   
PS: If you would like to see the protocol, email me privately and I'll send it as an attachment. pdmurray68@yahoo.com

spaztick
Veteran Member


Date Joined Oct 2006
Total Posts : 851
   Posted 11/17/2006 4:36 PM (GMT -7)   
Hello there all!
YES, I'm in B.C. Canada, and I've been using antibiotic therapy off/on since April 2006. My GP (primary) was off sick for nine months, and everytime I had to go to doctor (Rx refills), I'd see a different doctor.
In April, I saw a doctor who sent me to a lyme disease doctor who gave me Mephron and Zithromax for three weeks, based on his belief that I had lyme disease. The tests came back negative. He sent me back to my GP and advised my doctor to send me to GI specialist and Infectious Disease doctor. OH!! I forgot to say that I was dx'd with FMS in 1999 and then just LAST WEEK my doctor (now back from sick leave) said "I think you have chronic fatigue syndrome too."
...that was April 2006. Then I saw a locum at my doctor's office (fill-in doc) who said he specialized in genetics/autoimmunity, and said he thought I had an autoimmune disease and gave me Zithromax 250 mg daily for two months (this was BEFORE dx'd w/ CFS)...(problem with me is that I keep getting sicker and sicker)...the antibiotics improved my bowel function (I have IBS too) and my overall functionality!!
But it was downhill after that...the infectious disease doctor said the chronic low grade fevers are "just part of you" and sent me back to my doctor. I asked him if he believed in fibromyalgia, and he just shook his head. So then...as my "horizontal days" (bedridden) increased and my husband and I got more frustrated, we asked my doctor about the antibiotic therapy. He said he was ambivalent about it, but sure, give it a try. In Sept/06, he prescribed Zithromax 250 mg daily for three weeks. I got really really sick...more debilitated and bedridden. We (husband and I) thought it was "herxheimer" reaction (you get worse before getting better)...anyway, fast forward to PRESENT...sicker and sicker and getting very depressed, doctor gave Rx for Zithromax again.
But now I'm just taking 125 mg every other day. My doctor doesn't know the protocol so we've been googling along (some days I don't have the strength to fix the covers on the bed...forget trying to open a 7.8 lb laptop!!)...
So after battling fibromyalgia for six years, now I'm told I have CFS, too. I'm not surprised, but my doctor didn't say specifically what he is basing his dx on -- aside from the worsening chronic fatigue and the chronic 'high end' low-grade fevers (most days). It's very depressing watching the world pass you by when you're in bed day after day watching meaningless TV. I just hope others out there are doing better than ME and get improvement from antibiotic therapy!!
Take good care everyone, don't lose hope and let me know how you're doing! ...hugs, Carrie (sorry for the disjointed post...first time on computer in days and days)...

Tru
Regular Member


Date Joined Sep 2006
Total Posts : 116
   Posted 12/1/2006 7:54 PM (GMT -7)   
Ambient, what type of doctor are you seeing...she sounds like a very good doctor.
Tests finally proved that I'm suffering from Adrenal Fatigue and Type 2 Hypothyroidism (is defined as tissue resistance to thyroid hormones at the cellular level)

Daily I take:
Three Lac along with Oxygen Elements (twice daliy for Candida Yeast Overgrowth)
Multivitamin
500mg extra of Magnesium (key metabolic mineral for thyroid function)
200mcg extra of Chromium (key metabolic mineral for thyroid function)
200mcg extra of Selenium (key metabolic mineral and the key step to thyroid balance...it helps convert T4 to T3)
1000mg extra of Vitamin C
2 tablets 4 times daily of IsoCort


Oceanblueskygirl
Veteran Member


Date Joined May 2006
Total Posts : 673
   Posted 2/6/2007 1:04 PM (GMT -7)   
Carrie,
If you think there is a possibility your problems stem from Lyme disease I recommend you see Dr.Ernie Murakami in BC. He knows how to treat chronic Lyme disease.

~oceanblue

granny20
New Member


Date Joined Jan 2007
Total Posts : 4
   Posted 2/9/2007 8:08 PM (GMT -7)   
I don't want to get anyone out of heart. But they tried the antibiodic treatment with me and it did not work. But I have heard that with some people it does. So I hope that it works for you. good luck with your treatment.
granny

Diagnosis: SLE Lupus (1998); Scleroderma (2002); Fibro (1995); IBS 1998; CFS (1988); GERDS (2005); Spastic Colon (2005); Chronic Bronchitis; TMJ

Meds:  Xanax; Hydrocodone 10/500; Robaxin; Prednisone 10mg; Plaquinil 400mg; Sucralfate; Plavix; Lotrel; Cymbalta; Prilosec; Ambien

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