The energy increase and pain decrease is similar to what I experience on prednisone, but I also can get worn down and have bad days, especially if I have pushed myself too much or done too much. That's an interesting question about
fatigue - I think it means both tired like sleepy and also that your body feels exhausted and it's hard, if not impossible to do much. I have a similar experience when I exercise. Even light exercise takes a lot out of me and I usually need to rest.
I started on 10mg of prednisone but can't go below 7.5 mg without starting to feel awful. My goal was to be down to 5mg by this month, but it's not going to happen. I see my rheumy in Dec and will talk to him about
As far as ANA's go, I have heard differening opinions. Some doctors think the numbers have to be fairly high to indicate lupus, other docs say that a positive ANA is a positive ANA and that the numbers can fluctuate a lot. The first rheumy I saw completely disregarded my positive ANA becaus the numbers were fairly low, and he didn't take into account all of my symptoms. He said I had fibro. Fortunately the rheumy I see now sees the big picture of both my labs and my symptoms. It turns out I don't and probably never did have fibro.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily;
Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops
Clickable: LUPUS INFORMATION & LUPUS RESOURCES.
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