Fibromayalgia and Fatigue Centers

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

bebs
New Member


Date Joined Nov 2006
Total Posts : 14
   Posted 12/8/2006 12:18 PM (GMT -7)   
I have been reading the posts for a few weeks now but have never written anything until I saw the reply from lolaseattle.  I was looking for some information from someone that had been to the Fibromayalgia and Fatigue Center when I saw lola's. I am going to the one outside Seattle in Bellevue the first of January. I have not "officially" been diagnosed with either of these conditions but after going to several Dr's. and them not being able to find anything wrong with me  (except saying I have human parvo virus) I felt I needed to go another direction. I have been dealing with fatigue since 2003 but since 2005 it has become much more pronounced along with other symptoms- like daily if overexertion etc.  One step was acupuncture which I am not sure did anything and right now am going to a Naturalpath Dr.  Too early to say about that one.
There are a lot of these centers around the US - 14 of them- so I am surprised that others online haven't been to them.  They are expensive though but sometimes the cost doesn't matter anymore.  You begin to reach for anything after a while.  There are actually two centers in Seattle that I have found- one being at Harborview hospital connected with the University of WA but they have a 3-4 month waiting list because they only see patients twice a week half of the day!!  So when I found out I could get into this one quickly it worried me a little.  But if it has helped you lolaseattle I am not quite so leary. 
You try to be posititve with this condition but it sure is difficult. So if others have tried any of these clinics I would appreciate hearing. Bebs

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 12/9/2006 8:19 AM (GMT -7)   
Hi Bebs and welcome to the forum. I have been told that the human parvo virus can make you really sick. When I first developed lupus symptoms and they weren't sure what was wrong with me yet, the rheumatologist said it was possible that I had the human parvo virus which can cause a great deal of pain and fatigue. Is there anything the doctor is doing for your symptoms?

I'm glad you decided to post and I hope to hear more from you. Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/



bebs
New Member


Date Joined Nov 2006
Total Posts : 14
   Posted 12/9/2006 8:46 AM (GMT -7)   
Thanks for the welcome Hippimom2.  In reply to your question, No there isn't anything the Dr.s told me to do except get back into my exercise routine and build up to what I use to do.  So far I all I can do is  take walks under a mile and not every day and sometimes only a block or so and light floor exercises. I have  heard parvo virus can last up to over a year and so far it has been 16 months with some symptoms worsened- like lots of leg pain in lower legs.  But I have never found much about the human parvo virus in the searches I have done online- especially not lasting this long.  It just seems that a lot of my symtoms fall under either fibro. or chronic fatigue- the good thing I see is that a lot of bad things that I could have had, have been ruled out.  For that I am thankful.

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 12/9/2006 9:17 AM (GMT -7)   
A lot of times a virus can trigger CFS or fibro, so it is very possible that you have developed one of these illnesses.

I really hope the fibro and fatigue center is able to help you. I'd be very interested to hear what your experience was like and how helpful you thought it was. I'm sure a lot of people here would be interested. I've seen these centers mentioned in the fibro forum, but they really haven't been talked about on this forum since I've been a member, so it's a good thing to bring up.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/



lolaseattle
New Member


Date Joined Dec 2006
Total Posts : 3
   Posted Today 12:33 AM (GMT -7)   
Hi Bebs, and anyone else interested. . .

Please feel free to contact me at lucine_p@hotmail.com if you have any further questions about the FFC. I know it's a lot of money to put up, and I would have appreciated a chance to speak with other patients before making the investment to ease my doubts/concerns, so I would like to offer myself as a resource.

Best Wishes!
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 11:14 PM (GMT -7)
There are a total of 2,736,222 posts in 301,362 threads.
View Active Threads


Who's Online
This forum has 151452 registered members. Please welcome our newest member, sarajseri.
212 Guest(s), 5 Registered Member(s) are currently online.  Details
bluelyme, geop, Girlie, jrpsf, julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer