Hi Karl and welcome. Bee gave you some really good answers and I don't have much to add to it. I have both CFS and lupus and although I've had CFS much longer than lupus, I understand it less than I do lupus. I think CFS is hard to understand because there's not a lot out there about
CFS can be really hard to diagnose and like Bee said, it can be very frustrating going to doctors who can't figure out what os wrong, and often make you feel like all of your symptoms are in your head. If you do find a good doctor who understand s what is going on, they can be helpful in treatment of symptoms.
As far as symptoms go, mine have fluctuated a lot over the years. I have gone from very little energy and feeling the need to sleep a lot to having my symptoms go into remission for a few years.
You don't have to worry about
CFS being contagious. I have a feeling that a bad case of mono is what started my body on the downhill slide. I don't feel like I fully recovered from that and then a few years later I was diagnosed with CFS.
Regarding HIV, I would think that having HIV would be worse than having CFS. Even though the advances in treatment for HIV are great, there is still the potential for HIV to develop into AIDS and become fatal, whereas CFS is not considered an illness that is potentially fatal.
I hope this answers some of your questions. Let us know if you have anymore. Take care and I'm glad you joined us.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily;
Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops
Clickable: LUPUS INFORMATION & LUPUS RESOURCES.
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