Hey sleepyheadgirl, sorry to hear you're feeling so bad. I can't tell you I know of any cures.. but I believe you're experiencing the same symptoms that I and Orion82698 are experiencing. We're feeling fatigued and tired all the time without the associated pain in the joints and other bodily aches that common CFS patients experience.
Personally, I've been experiencing my fatigue for a few years now and some days it's crippling and others I just manage to make it through the day. I experience the similar kind of pressure.. that seems to focus behind my eyes and in my forehead.
I've gone through the battery of various tests.. as has Orion. We haven't found cures or reasons yet for our illness, but having this forum definitely allows us some place to help others as well as feel like we're working together on finding the cause. I think a big part of it is finding a good physician that will take your cause and work with you to find a solution.
The only suggestions I can really pass along is to not over-exert yourself. spend your energies wisely and where needed. If possible, take naps to get some energy back. Eat healthy meals. Stay positive as much as possible.. and use this forum or email me or any others when you feel like you need some support or someone to talk to.
We're all willing to help each other in any way around here. If you have any questions or just need to vent.. post away.
Orion has posted his experiences in the thread called: Always tired:I've posted some of my history in a thread called: Always tired too.
hello i am from england and have recently been diagnosed, not by a specialist, but by a doctor who has lots of experience with m.e patients. his name was kieth hine, and it cost me one hundered and ninety pounds just to get told that i had m.e, but it was worth it. go to this website: http://www.measussex.org.uk/, keith hine is on the meet the experts page, and there should be a phone number somewhere on the site too, which is how i first found out about him.
i got put on an eighteen month waiting list for an nhs specilaist, so the chances of finding one are ridiculously slim, but there are gp's out there who have knowledge. i dont know what you mean by feeling tired for most of your adult life, but i was very unwell for years without knowing what the problem was until m.e was considered by my councellor, you dont have to have all the symptoms, m.e is a very erratic illness. i am twenty one now, it all started when i was about sixteen or seventeen.
ill check back to see if that was any help.
Clickable: LUPUS INFORMATION & LUPUS RESOURCES.
Well, I've never posted to one of these before, but....
I have been fighting Chronic Fatigue and Migraines for about...6 Years now. I am 25 and feel as if I'm 125. I've read several forums on several sites and am just 'tired' (no pun intended) of not knowing my future.
My 'doctor' is ignorant and has given up on me (about 2 years ago) because he said there is nothing to do for me. It took him 4 1/2 years to test me for Mono, which I had and I don't know how many blood tests I have taken...too many!
I do have the migraines which I think are associated with my hormones b/c I dont get them as often if I am not on a birth control. I am late to work every morning and live 2 minutes away. I CANNOT get up and my body just crashes every night in bed. I've tried going to bed at different times, waking up at different times, diets, naturals, anti-depressants, sooo many drugs and tests and bull****! Ugh. So...
I may try the DHEA which I saw on some of the posts here but I've tried everything. I feel like I've already lived my years and its my time to go. Now, after finding out I have CFS, Migraines, some heart condition that I never remember the name of (heart flutters), slight scoliosis and extreme dizziness. There are soo many other symptons but I dont wanna bore the ~bleep~ out of you! lol.
I'm just glad to find people going through the same thing. Now, I am having pains from my wrists up and people keep saying its probably Carpeltunnel (or whatever)...just one more thing.
Thanks for 'listening'
thank you all for your messages, it is nice to just know that someone else knows what its like to feel like this.
Firstly Mark, do you think i will still have to pay for the doc you recommended if my GP does a refferal? were you referred or did you just book a private appointment? I've got the names of 3 other consultants that have a special interest in CFS but i havn't found one that is a specialist despit searching the net for weeks!
SleepyKat, what is Mono? and what are DHEA's? this is all new stuff to me, feel like i've entered a parrallel universe!
SleepyKat also mentions 'too many other symptoms to mention' thats the other thing i have loads of annoying minor symptoms that on their own i wouldnt bother the doc with or even mention to anyone at all but i cant help wondering how many things are related to the CFS i possibly have and which things are just normal that other people have too, sounds like an odd statement but having only ever been me i dont know what things nromal people experience so i dont know if these minor things are something or not!
the other question i wanted to ask is does anyone else have very specific timings when they 'crash'? i call it my 'slump' when it happens and i can pretty much time it, i am ok-ish for the first few hours of the day then i slump at about 11.30 in the morning, i feel terrible for an hour or so, then i slump again about 3pm really badly, then come round after a hour or 2, then slump again about 7pm and thats me for the day then, i cant do anything after 7pm, i can manage maybe an hour on the pc then i go to bed. because of the timings i wondered if it was food related but as i feel no signs of IBS and have no tummy troubles really i guess thats unlikely.
anyway, thats enough ramblings from me for now, will look forward to hearing more of your stories and any similarities with my symptoms, sarah :o)