My CFS experience: anyone with similar symptoms?

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cake
New Member


Date Joined Feb 2007
Total Posts : 4
   Posted 2/28/2007 9:51 PM (GMT -7)   
I'm 20 and male.

I've always been fit, active and healthy. In December '05 I was fitter than ever before. I was mountain biking about 150Km per week at high intensity (in addition to doing weights on the off days) and my resting heart rate was in the low 40s. At the time I probably wasn't eating quite enough (although my diet was good) and I lost a few kilos. I had recently been on a trip to Cairns (in the north of Australia) for about 3 days.

All of a sudden in the middle of December I felt extremely physically tired, moreso than ever before in my life. I suspected it could be a virus, although I had no other symptoms other than the fatigue. I also suspected perhaps I had been overdoing it.

After a few days of not doing much I felt a little better, but that's as good as it's been since. It seems to be getting progressively worse slowly.

My major symptom is the extreme physical fatigue which seems to be worst in (though not confined to) my legs. I don't particularly feel like I need to sleep more, although due to the profound physical fatigue I spend a lot more time lying down which inevitably leads to increased sleeping. I have low grade muscle aches and pains which I attribute to increased lactic acid production and build-up.

I also have irritable bowel type symptoms (including wheat, dairy, soy, coffee sensitivities) which I've had since October '04 and which have not changed since the onset of the fatigue. Again, this began suddenly and I cannot recall a precipitating event.

I have occasional bouts of orthostatic hypotension which I've had throughout my life.

I've been irritable and depressed which goes beyond simple frustration at the illness. My relationships (particularly with my parents) have subsequently become somewhat strained and i'm unsure if they'll ever recover to where they were previously.

I've had frequent tests, and other than an elevated IgE (attributed to an asymptomatic dust mite allergy - treatment of which has not improved symptoms of fatigue) there appears to be nothing physically wrong with me. I've tested negative for all of the common fatigue-inducing viruses (eg Epstein Barr) and also negative for parasites. I've never had swollen or sore lymph nodes, fevers or sore throats, and I don't seem to get sick very often although I have had 3 ear infections in the last year despite not having had one for at least 10 years previously. I sleep for at least 8 hours a night.

My weight has been relatively constant throughout this affliction, though I did put on a few kilos to see if I felt better but to no avail.

I've tried all the usual supplements/drugs/regimes eg antidepressants, magnesium supplements, zinc, high dose vitamins, elimination diets, licorice root powder, protein powders, glutamine and creatine powder, antihistamines and even Flagyl antibiotics (to eradicate a potentially undiagnosed parasitic infection).

Nothing has helped.

I don't consider myself to be one of the worst cases. I can still go out and participate in moderate exercise (eg walking - of which I do as much as I can within reason) although recovery from such physical activity is poor. Anything higher in intensity than walking causes significant muscle burning (eg lactic acid production) and usually increased fatigue for several days. Although as I mentioned, I am experiencing a disturbing downward trend in my condition.

Has anyone else had a similar type of fatigue? Can anyone suggest anything that has helped them?

Feel free to discuss/describe your particular experiences even if they aren't particularly similar to mine if you feel like it.

Thanks to anyone who bothers to read my wordy thread.
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pasara
Regular Member


Date Joined Apr 2006
Total Posts : 206
   Posted 3/1/2007 2:34 PM (GMT -7)   
Hi Cake and welcome to the forum. Your experience sounds pretty classic to me. Unfortunately.

The thing that came to my mind when reading your post is that you see yourself declining, but are still pushing it maybe a little? I would be careful. My problems came on after ain injury so their source is very different but the fatigue for me is debilitating. I was quite fit as you described, but now am unable to do any exercise at all, and am often bedridden. What I do know is that when I am feeling better I want to do stuff. It is not in my nature to sit around, but to be active, so it just comes naturally, not that I do it consciously. Boy does it tee off my husband, because he can see the crash coming ehen I can't, and yes, it almost always inevitably comes. I am getting better, more conscious of how I am using my energy, but it has taken a long time to get this through my thick head.

Point being, that if you are seeing yourself progressiively getting worse, start listening to that warning your body is so kindly giving you. Don't wait to have the all out crash I and many others have expereinced.

Think of a car battery. You can recharge it a few times, but there comes a point when you have drained it so many times that it no longer can hold the charge. It is then truly a dead battery, and you need to replace it. Well, you are not a car, and your "battery" cannot be bought at the local service station. Once your battery is dead, it is dead for a LONG time, and I don't mean a few days or weeks, I mean months and even years. This has been my experience.

What I have heard and found to be true for me is that if you are able do x amount of exercise only feeling a little tired afterward, then you should really be doing HALF that amount. In this way you get some activity in without using your reserves. You can't think of it like you normally would. Normally you would probalby exercise enough to make yourself at least a little tired, and that would be the signal that you are building up muscles and pushing yourself out right. But normal people quickly recover from that push, their rserves refill after a brief rest, the battery gets recharged. Doesn't wrok that way anymore though so you need to change your thinking. It is hard to understand and frustrating for naturally high energy people like us. It is especially hard becasue it's not like you see a benefit. Instead what you see is the results if you DONT do this, which can be really disasterous.

I hope you find out what is going on with you. You know a lot of people here make sure they get checked for lyme disease. I don't know how common that is in Australiia, but here it is not uncommon at all, and often goes undetected it seems. I would also keep looking into the allergy stuff, including food sensitivities, esp since you already mentioned IBS and some things which you have found relate to those symptoms.

Good luck, and I hope you keep posting and sharing here!
pasara
co-moderator CFS forum

"We don't see things as they are, we see them as we are."


- Anais Nin


O'Neil
New Member


Date Joined Mar 2007
Total Posts : 7
   Posted 3/24/2007 8:23 AM (GMT -7)   
Cake:

Your experience sounds similar to mine when I was your age (I'm 27 now). I was getting into terrific shape by lifting weights and running, but then my system crashed and I just couldn't do it anymore without fatigue and terrible breathing problems. I hope you can identify the cause of your problems sooner than I did mine. Fortunately, it's unlikely that we'll die from our problems, and in fact I wouldn't be surprised if chronic fatigue may in some cases even extend one's life, but it certainly does make life difficult to be operating with a quarter of the energy everyone else has.

I just typed out a long comment on Sparker's "Always tired too..." post that you should read. You should also read about Sparker and Orion's experience with adrenal therapies. It's now my belief that my problems are at root caused by adrenal insufficiency, and yours may be, too. If you can start working on rebuilding your glands before the condition progresses any further, maybe you can get your life back fairly quickly.

jaynesar
Regular Member


Date Joined Mar 2007
Total Posts : 24
   Posted 3/24/2007 1:35 PM (GMT -7)   
I really do feel for you, i've had alot of the same symptoms - although i've been quite a sickly person all my life which I note you haven't. I've been unable to exercise for a couple of months now. For the past few days i've been feeling relatively OK and I would really like to try and exercise again, even if its just 15minutes on my cross trainer at a slightly faster than walking pace! I am worried that if I go back to exercise i'll burn out again in a few weeks, but i'm desperate to give it a go so will post my response.

cake
New Member


Date Joined Feb 2007
Total Posts : 4
   Posted 3/24/2007 8:31 PM (GMT -7)   
O'Neil, I read your post in the "Always tired too..." thread. What you've described does sound familiar.

By licorice, do you mean licorice root powder? How much do you take and do you take it with anything in particular? I've tried taking licorice root powder in the mornings and didn't notice any improvement.

I've only recently had the random cortisol and DHEA blood test, but haven't yet seen the results. The doctors only tested for it because i specifically asked them about adrenal insufficiency. I can't believe in 15 or so months of tests, none of the doctors thought to test for it.

O'Neil
New Member


Date Joined Mar 2007
Total Posts : 7
   Posted 3/25/2007 6:05 AM (GMT -7)   
Although I have a lot of respect for the medical profession, I decided long ago that I would have to take control of my own healing process--of the chronic stuff anyway; I still go to the doctor for acute problems.  I'm not surprised that your doctor didn't test cortisol levels, because aside from the complete destruction of the adrenal glands found in Addison's, adrenal insufficiency is a controversial diagnosis.  After my own test (saliva x 4, not blood), I'm fairly convinced that adrenal insufficiency has caused my ill health, but I don't think I would be so confident if I hadn't exhausted all the other possibilities first. 
 
I take the Baschetti powder.  As far as effectiveness, it's certainly not as potent as Cortef, and I'm not hugely fond of it, but if you didn't notice any effect you might not have taken enough.  If you take enough, you should be able to notice something.  Even if the adrenals aren't your problem, you should be able to notice the effects of too much adrenal hormone (and these effects are not pleasant), because licorice at a high enough dose has definite physiological effects.
 
Still, I don't think that licorice is necessarily the most important supplement, and I don't think that supplements are the most important part of the healing process.  For many years after becoming sick I continued bad habits that I had developed when I was healthy, such as a poor sleep schedule, drinking, eating junk food, and working too many hours in stressful situations.  For me, removing certain foods such as wheat and milk has also been important, as well as lowering my carb intake in general.  If adrenal fatigue is your problem, half of the solution is removing whatever overworked your body in the first place (and the definition of "overwork" will vary widely depending on the innate strength of your glands).  The supplements are useful to speed the process up, but I don't think they are powerful enough to do the job on their own.
 
The exception is Cortef, which is by far the most potent pill in my treasure chest.  I mentioned in my other post that I haven't been taking it lately because of concerns about side effects.  Well, I may start it up again at very low doses (say 10 mg a day) just for the sake of my well-being now.  I still have to watch what I eat to avoid overstressing my digestion, but the support provided by Cortef is obvious and immediate.  Theoretically, licorice should provide the same support, but in my experience it has not been quite as effective (though I can tell it works).   
 
 

cake
New Member


Date Joined Feb 2007
Total Posts : 4
   Posted 3/25/2007 11:36 PM (GMT -7)   
What exactly is the Baschetti powder? I'm having trouble finding information about it. Is it just powdered licorice root or does it contain other ingredients? Also do you know what sort of licorice it is (eg Mediterranean, Chinese, etc)? I'm not sure, but it seems as if the Chinese variety may contain a higher percentage of Glycyrrhizin which I think is the active ingredient as far as CFS treatment is concerned.

I'm quite confident that what I have is adrenal related. Several weeks before the onset of my fatigue we'd just bought a new espresso machine and I was drinking on average probably about 3 or 4 very strong coffees each day. By the time we got the machine I was well and truly tolerant to caffeine as I'd been drinking coffee (one moderate strength per day) for years, so the coffee didn't have much effect on me or so I thought. I did find that I had been waking up earlier in the mornings for a while preceding the onset of my condition and since then I haven't been sleeping as well either.

In addition to the excessive exercise and probable inadequate food intake (including many dairy products which I now know irritate my digestive system) I think all of the coffee was probably a recipe for adrenal exhaustion.

After not drinking any coffee at all for about 9 months I needed help to get through my exams in october and november of last year. That's when I found that a cup of strong coffee had an incredible effect on me to a degree which i'd never experienced before. I found that one cup of coffee would make me feel incredibly happy (and i'd been depressed for the whole year) and would pretty much banish the fatigue usually for a whole day. Sometimes I'd even feel better the next day too. This makes sense I think, as I remember reading somewhere that caffeine can raise cortisol levels for upto 18 hours. So i began drinking coffee pretty much daily for about 4-5 weeks so I could study. At the end of that period when the exams were over and I stopped drinking the coffee, I found that my fatigue was much worse (after remaining virtually constant all year) and hasn't improved at all since.

Post Edited (cake) : 3/26/2007 3:11:23 AM (GMT-6)


O'Neil
New Member


Date Joined Mar 2007
Total Posts : 7
   Posted 3/26/2007 6:17 AM (GMT -7)   
Dr. Baschetti is an Italian who produces what I assume is a fairly potent licorice powder, though the Chinese variety may have more glycyrrhizin for all I know (and yeah, that's definitely the important part).  There's a good interview online with Dr. Baschetti where he talks about his own experiences with fatigue; you should be able to find it with the search term "baschetti licorice", but add "chronic fatigue syndrome" if you still have trouble.  Like I said, though, I'm less interested in the licorice now than I once was.  I know it works, but I'm trying to understand how it's superior to a hyrdrocortisone pill.  There are supposed to be side effects to hydrocortisone, but if the licorice also increases cortisol (or at least its bioavailability), presumably the potential side effects would be the same.  Do you have any thoughts on this?  I'm thinking maybe I should be less concerned about taking pure cortisol, since I know my body needs it.  I've looked at Jeffries' book, Safe Uses of Cortisol, but I'm reflexively cautious about these things, perhaps needlessly.
 
I had a similar experience with coffee in the semester preceding my crash.  My health had been declining (fatigue, breathing, sinuses, and digestion), but I could still get by and I felt much better when I drank coffee.  My consumption increased to six or seven cups a day, and I was also drinking alcohol fairly regularly, too--I kept a bottle of whiskey in my dorm room all the time.  Alcohol also increases cortisol levels, and it made me feel healthy again, though of course on a very temporary basis.  Only recently have I entirely given up alcohol.  I drank on St. Patrick's day after a couple months of abstention, but knew the next morning that I was just setting back my healing process.  This is a great shame, because I love beer (though I became a very moderate drinker after the age of 22), but when I understood the effect of alcohol on the adrenals I knew I had to give it up entirely until I make a complete recovery.    
  
Have you ever tried digestive enzymes?  I have a little, but wasn't too impressed with them, besides feeling that they were sort of a fad.  I've just started thinking more about them, though, not as a final solution, but as a way to reduce digestive stress and speed the healing process.  I've been looking at a brand called Enzymedica, because their products seem more potent than others, but I can't find any non-sales related information on the web.  Do you know anything about their stuff?
 
By the way, I should add how important I'm discovering bedtime to be for my health.  On my own, I will not usually go to bed until 2-3 am, and I will then sleep late and nap during the day.  But I know I function better if I can get to bed early (ideally by 10 but realistically pre-midnight).  This is the hardest lifestyle change for me, but I suspect one of the most important.  I few years back I was feeling much better than usual and I think it was because of an early bedtime connected with an exercise regime that made sure I was ready to sleep by 10 each night.

cake
New Member


Date Joined Feb 2007
Total Posts : 4
   Posted 3/26/2007 4:32 PM (GMT -7)   
Yes, I've heard about Dr Baschetti and I've read the interview. So far I've only been able to find one website selling his powder though, and it's not very explicit about its contents.

As for the side effects, I've read about all the usual ones such as increased blood pressure, sodium retention, potassium loss etc. However I don't think chronic use of licorice powder has been thoroughly researched. One study I found did mention that a fairly large daily intake decreased testosterone levels in young men by about 50% after a few weeks, but I'm fairly sure that was at dosages higher than prescribed by Dr Baschetti so I didn't read the article that closely. I'm not familiar with the exact biochemistry of how the licorice powder has its effect but in the absence of evidence to the contrary, I don't think there's any reason to assume that the side effects of indirectly increasing cortisol would necessarily be identical to supplementing with cortisol directly. But I'm not an expert... I haven't read much about the side effects of cortisol itself.

I have never tried digestive enzymes and I don't really feel particularly inspired to. I don't know anything about Enzymedica, sorry. Personally, I'm sceptical about how much benefit the enzymes will provide. Enzymes are just proteins, so i think the majority of them will be denatured and lose function when exposed to stomach acid. Besides, even if this is not the case, I think it should be sufficient to avoid offending foods. I've found that my intestinal health doesn't affect my fatigue anyway. As for speeding the healing process, I'm not sure I even believe this is something the body will gradually heal itself of even if kept free of stress. But hey, people say I'm too negative.

I think regular sleep patterns are important for good health generally so I try to maintain some semblance of routine. It is difficult though, as I find sleeping to be much more difficult since the onset of my fatigue. I used to be a very deep sleeper and could fall asleep even when I wasn't tired and sleep the whole night easily. These days if I'm not tired and I go to bed regardless, it can take me hours to get to sleep. I try to avoid sleeping during the day so I can sleep better at night and just go to bed when I feel like I can sleep. I think it's important to exercise a bit everyday if for no other reason than so I can sleep.

Post Edited (cake) : 3/26/2007 5:37:23 PM (GMT-6)


O'Neil
New Member


Date Joined Mar 2007
Total Posts : 7
   Posted 3/27/2007 10:22 AM (GMT -7)   
How pessimistic!  Only a couple of years of being sick and already you think recovery is impossible!  I can understand why you feel this way, especially because there are so many people with that ambiguous complex of symptoms called CFS/fibromyalgia/IBS who seem to remain sick their whole lives, but I don't think it's therefore necessary to conclude that your body is unable to recover.  Maybe you will be sick your entire life, but I doubt there's more evidence to take that position than evidence that someday you'll be healthy again.  On the other hand, you're posting on this forum, so I can see you haven't really given up hope--although maybe that hope is for a temporary remission of symptoms rather than real recovery.  My personal opinion is that if a person was healthy and becomes sick, then why shouldn't that process be reversible if the cause of the illness is removed?  The difficulty is identifying the cause.
 
After a little bit of research, I tried the enzymes.  It's only been a couple of days, but already I'm feeling better than normal.  I worked out hard this morning, which would usually have made me want to go home and take a nap, but I never had that desire.  Of course, I also took 10mg of cortisol this morning, which must have had an effect, too.  The reason I give some credit to the enzymes is because I have purposely been eating foods that gave me problems even after I started taking cortisol (mainly starches), and they seem to be okay now.  By the way, stomach acid will only destroy certain enzymes, such as the animal-based enzymes sold as pancreatin.  Different enzymes work at different pH levels, temperatures, etc. 
 
If bad digestion doesn't affect your fatigue, then there's no reason to try enzymes.  But if you have bad digestion (and any kind of food intolerance suggests this), then I can't see how energy levels wouldn't be affected.  By the way, I'm certainly not trying to pressure you to try them.  It's just that your history sounds similar to mine, and I think that I am finally making progress after being sick (and reading about being sick) for more years than I would want anyone else to be.      

presacanario
Regular Member


Date Joined Dec 2006
Total Posts : 47
   Posted 4/10/2007 3:32 PM (GMT -7)   

Trip to Austraila?  You might want to start resaearching on Rickettsia and or Lyme

www.marshallprotocol.com

Jadin protocol for rickettsia

have you been tested for CWD bacterie i.e. lyme, rickettsia, chlamydia pneumonia(TWAR)

For the time being, quit wasting your money on supplements as they will only drain your pocket book, maybe a multi and eat right until you get some testing done

take care

cake said...
I'm 20 and male.

I've always been fit, active and healthy. In December '05 I was fitter than ever before. I was mountain biking about 150Km per week at high intensity (in addition to doing weights on the off days) and my resting heart rate was in the low 40s. At the time I probably wasn't eating quite enough (although my diet was good) and I lost a few kilos. I had recently been on a trip to Cairns (in the north of Australia) for about 3 days.

All of a sudden in the middle of December I felt extremely physically tired, moreso than ever before in my life. I suspected it could be a virus, although I had no other symptoms other than the fatigue. I also suspected perhaps I had been overdoing it.

After a few days of not doing much I felt a little better, but that's as good as it's been since. It seems to be getting progressively worse slowly.

My major symptom is the extreme physical fatigue which seems to be worst in (though not confined to) my legs. I don't particularly feel like I need to sleep more, although due to the profound physical fatigue I spend a lot more time lying down which inevitably leads to increased sleeping. I have low grade muscle aches and pains which I attribute to increased lactic acid production and build-up.

I also have irritable bowel type symptoms (including wheat, dairy, soy, coffee sensitivities) which I've had since October '04 and which have not changed since the onset of the fatigue. Again, this began suddenly and I cannot recall a precipitating event.

I have occasional bouts of orthostatic hypotension which I've had throughout my life.

I've been irritable and depressed which goes beyond simple frustration at the illness. My relationships (particularly with my parents) have subsequently become somewhat strained and i'm unsure if they'll ever recover to where they were previously.

I've had frequent tests, and other than an elevated IgE (attributed to an asymptomatic dust mite allergy - treatment of which has not improved symptoms of fatigue) there appears to be nothing physically wrong with me. I've tested negative for all of the common fatigue-inducing viruses (eg Epstein Barr) and also negative for parasites. I've never had swollen or sore lymph nodes, fevers or sore throats, and I don't seem to get sick very often although I have had 3 ear infections in the last year despite not having had one for at least 10 years previously. I sleep for at least 8 hours a night.

My weight has been relatively constant throughout this affliction, though I did put on a few kilos to see if I felt better but to no avail.

I've tried all the usual supplements/drugs/regimes eg antidepressants, magnesium supplements, zinc, high dose vitamins, elimination diets, licorice root powder, protein powders, glutamine and creatine powder, antihistamines and even Flagyl antibiotics (to eradicate a potentially undiagnosed parasitic infection).

Nothing has helped.

I don't consider myself to be one of the worst cases. I can still go out and participate in moderate exercise (eg walking - of which I do as much as I can within reason) although recovery from such physical activity is poor. Anything higher in intensity than walking causes significant muscle burning (eg lactic acid production) and usually increased fatigue for several days. Although as I mentioned, I am experiencing a disturbing downward trend in my condition.

Has anyone else had a similar type of fatigue? Can anyone suggest anything that has helped them?

Feel free to discuss/describe your particular experiences even if they aren't particularly similar to mine if you feel like it.

Thanks to anyone who bothers to read my wordy thread.
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TexasJen
Veteran Member


Date Joined Dec 2006
Total Posts : 649
   Posted 5/20/2007 4:23 PM (GMT -7)   
cake, one thing in your post caught my eye: your elevated IgE levels that you say were attributed to a dust mite allergy.  Have you ever been tested for Crohn's Disease?  Most people tend to have gastro symptoms, but not all, and some people never have any symptoms at all while their small intestines are being wrecked.  Very odd disease, but more common than you might think.  Because Crohn's Disease interfere's with the small intestine's ability to absorb nutrients, the symptoms can get really bizarre and can include what you have already listed, depending on which nutrients are being blocked.  IgE is now being looked at as a culprit in this autoimmune disease, so that's why your mention of it got my attention.  If you haven't been tested for CD, perhaps it might be worth getting that blood drawn if for nothing else than to rule it out.
Living in the Republic of Texas minus a gallbladder, a couple of cervical discs, appendix, uterus, and 18" of colon; but living with my wonderful husband, 2 dogs, 1 cockatiel, and 2 gold fish. 


RR75
New Member


Date Joined Jan 2010
Total Posts : 2
   Posted 1/19/2010 4:45 AM (GMT -7)   
Cake, I hope you are still okay and reading these messages!! This will be brief as I'm affraid I don't have time but PLEASE LISTEN to my advice. My story is sooo similar to yours. Young healthy, fit, trip to Australia (Cairns et al), followed by sudden loss of energy thereafer followed by 5 years of deteriationg health et al (usual terrible CFS / ME symptoms), seeing hundreds of doctors, no answers, nothing specifically showing up in blood tests, finally the "it must be psycological" repose which we all know it isn't. ANYWAY after 6 years of desperation I found Dr C Jadin (via a post like mine) (she practises in South Africa and Europe). AND SHE HAS SORTED ME OUT - SERIOUSLY. You almost CERTAINLY have a Rickettsial infection (ie tick / Lyme), the problem is that our medical tests are not developed enought to pick up all these infections however they can be treated with heavy repetative courses of over the counter tetra-cycline antibiotics. If you can't actually she her get your doctor to follow her programme (this could be half the battle as doctors won't give antibiotics if they have negative blood tests! This is way so many of us don't get treated as the test come back negative, yet it is the cure.) Good luck and I really hope you follow up on this!  (PS I actually note someone mentions her in an earlier thread!) 

Paul UK
New Member


Date Joined Nov 2006
Total Posts : 9
   Posted 1/26/2010 9:27 AM (GMT -7)   
Interestingly my CFS was preceeded like yours  for some years by a worsening bowel disorder (looseness,cramps,bloating,mucus etc) which i just ignored as doctors diagnosed it as IBS. I eventually became very ill with severe physical and neurological symptoms of CFS, had to leave my job etc etc etc (you know the story!)  and it took me approx 10 years to recover completely. 
Looking back i have a suspicion my illness may have been caused by an undetected gluten allergy which damaged my gut resulting in malabsorption of vitamins/minerals etc resulting in my illness. I did not start to recover at all until i strictly adherred to a gluten free diet (and even then recovery was very slow indeed). I also supplemented with vits/mins especially magnesium and omega 3s.
If you suspect wheat etc is causing you a problem it might be worth a shot - hoever, believe me any halfhearted attempt will not work..
Good Luck, Paul 
 
 
 

clopez
New Member


Date Joined Mar 2006
Total Posts : 3
   Posted 2/4/2010 5:53 AM (GMT -7)   
I sympathize with you, however there is light at the end of the tunnel, I have found that Immunoprop and Immunoplus one capsule daily, (www.immunoprop.com), sublingual B12  and Lectrolyte or Recup helped me a lot. I was bedd ridden and now I am back at workturn

Arc O'Sante
New Member


Date Joined Oct 2008
Total Posts : 2
   Posted 8/24/2010 6:05 PM (GMT -7)   
Hello all,

I see that 'cake' posted years ago, but for the sake of those who are just plugging into this stream...I want to add a few bits of info from my experience.

Even though my fatigue appears to be caused by adrenal fatigue...we have the test to prove it...I have discovered that the adrenal failure is just the most recent symptom in the progression of Celiacs disease, an autoimmune disease brought on by wheat gluten allergy. Anyone who has a wheat gluten reaction, take it very seriously....because it will eventually lead to a broad spectrum of illnesses that don't have any 'obvious' connection to the digestion issue you're having. I didn't have any awful or repulsive bowel symptoms...so I thought everything was A-okay. But not so...I had adult acne, then hypothyroid and now hypoadrenia. This last one has been a crippler.

Like you, I was always physically fit, an avid hiker and dancer...couldn't keep me down. That all changed two years ago when my immune system took a major hit with carbon monoxide poisoning. Ugh, if you don't have a detector for that bad boy...get one...it's scentless and deadly. Anyway, the taxing of my system threw me into full blown adrenal fatigue...PJs all day, every day. It took two years to figure all this out. Now, there's an answer to the mystery, I can take control of the situation with diet and meds/supplements. Whew! I wish you all good health and joy.

thyroid and adrenal failure....why?....because 'celiacs disease' becomes an autoimmune disease....which means your immune system attacks its own organs...typically, the gut, then the endocrine system.

So I saw that the chronic symptoms that weren't very uncomfortable like acne and irregular bowels...were warning signs of what was going on in my upper intestine.

cbarrett56
New Member


Date Joined Sep 2010
Total Posts : 9
   Posted 9/3/2010 5:07 AM (GMT -7)   
try LDN for all of the above- brought me back fromthe dead. Low Dose Naltrexone
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