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Prudence
New Member


Date Joined Mar 2007
Total Posts : 3
   Posted 3/20/2007 12:46 PM (GMT -7)   
I have never been in a chat room before but i am going to the doctor today to see if he thinks i have CFS - i have never felt so helpless in all my life- am curious what prompted most of you to finally go for help ? is it mainly emotional?  I am afraid he will blow me off and send me to a psychiatrist... any thoughts on your experiences of when you finally knew it wasn't all in your head and went for help?  I have felt this way for a year and finally stopped thinking this is my fault.  I would love to talk to people who understand what it is like.. thank you!
 
Pru

pasara
Regular Member


Date Joined Apr 2006
Total Posts : 206
   Posted 3/20/2007 1:43 PM (GMT -7)   
Hi Prudence and welcome to the forum. It is nice to meet a new member, even a tired one lol. Don't worry about the doctor. Just go in and tell it like it is. If you can go with someone who serves as an advocate and second pair of eyes and ears for you, that would be helpful. It is hard when you feel doctors are blowing you off, or downplaying your very real problems. Keep a journal of your symptoms, write down your questions and what your doctor says at each visit. If you feel like your doctor is "blowing you off" ask him or her point blank if they have ever dealt with someone with CFS before. If the doctor is not familiar with it, or thinks it doesn't exist! then he or she is not the best person for you to see.

As far as knowing when to go for help, that you aren't imagining things, other members can maybe speak better to that. My problems began when I was hit by a car, so it was very clear for me. You didn't say what symptoms you are experiencing that make you believe you have CFS, but I guess I think that if those symptoms have gone on for some time and are significantly impacting your daily life, it is important to find out what is going on. there are many illnesses that have very similar symptoms to CFS, including thyroid problems, hypotension, lupus, lyme's, fibromyalgia, and depression, as well as others.

As far as seeing a psychiatrist, suggesting that as part of a whole bunch of other testing is not a bad thing, and actually it would show your doctor was being thorough. But make it someone of your choosing. I say this becasue CFS and depression do have several crossover symptoms, and since CFS is primarily diagnosed through process of elimination, then they will see that you are covering your bases. But, the tricky part is that people see through their own set of prisms, so chances are they'll declare you depressed just for showing up. On the other hand, CFS can bring on situational depression becasue it is a depressing illness to have. What I think is clear is that many doctors and psychiatrists don't see that the underlying illness is CFS, which brings on depression, not the other way round. Anyway, I know exactly how infuriating that can be when you KNOW there is something wrong with you, but no one can tell you what so they start saying you are just cuckoo. Just stick to your guns and be clear without getting too emotional if you can help it.


Let us know how it goes, and what the doctor says. Hopefully it will be the first step in finding out what is going on with you and healing.
pasara
co-moderator CFS forum


Prudence
New Member


Date Joined Mar 2007
Total Posts : 3
   Posted 3/20/2007 2:07 PM (GMT -7)   
Thank you pasara! I realize I was cryptic in my description - I think what concerns me is that I know what depression feels like and do feel like this is related, but for the last 14 months, I have NEVER had physical symptoms such as this. Along w/the unrelenting sleepiness, I ache if I am out for more than an hour, I get very exhausted, I cannot concentrate or focus AT ALL, my work has suffered because of it. I have no desire to leave my house which is TOTALLY unlike me even when depressed, and it's due to my physical exhaustion. I can't keep up w/daily chores . All I can do is barely make it to work, barely keep up and come home and collapse. I did have a bad case of burnout at a job just prior to this starting and think it's related, but I can't believe i still have these physical symptoms.

Thank you for your supportive note- i have prepared a written list of my symptoms to show my doctor and I think he will be surprised to see how much I have changed since he last saw me. I can barely get my hair brushed and clothes on in the morning! He will see me in my "natural state" today so hopefully it will jolt him into action ;-) It's pretty scary!

I will let you know the "verdict" - I am hopeful he will at least be able to give me some insight into the reasons this may be happening now - also, I am 44 so I though I dread to think it, I know it may have something to do w/my age as well. Maybe my resiliency from stress is not what it used to be.

Be well and thank you!
Pru
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