Why is getting diagnosed with CFS important?

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New Member

Date Joined Mar 2007
Total Posts : 1
   Posted 3/26/2007 1:40 PM (GMT -6)   
I’ve been doing a lot of research and feel pretty sure that my fiancée has CFS. He is too but because there is no cure he doesn’t want to go to the doctor to get diagnosed. If I were in his position I would want to label the illness so that I could know exactly what I was up against but when I bring it up to him he asks me not to get so worried. Can you guys share with me some reasons for getting diagnosed so that I can share them with him? Thanks

New Member

Date Joined Mar 2007
Total Posts : 7
   Posted 3/26/2007 1:54 PM (GMT -6)   

My opinion is that in most cases the diagnosis is not helpful.  The trouble with the term Chronic Fatigue Syndrome, in my opinion, is that it is not specific enough.  There are probably many causes of the same complex of symptoms.  The important thing is to figure out what causes his symptoms: adrenal insufficiency, food allergies, poor digestion, an unresolved virus, etc.  In my case, this exploration took years, but I now understand that my fatigue and other symptoms are caused by low functioning adrenals glands.  Knowing this, I can make lifestyle changes and take supplements to help.  If your fiancé is diagnosed with CFS, he will still need to find out what caused it if he's going to make any real recovery.

This is only my opinion based on my own experience.  I found that most doctors were not helpful, so I was not interested in their diagnoses.  If you find a doctor who is experienced working with CFS, then the diagnosis may open the doors to recovery.  But you need to be very careful in finding that doctor, because many doctors will not take CFS seriously, and others may advocate unhelpful and expensive therapies.     

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 3/28/2007 11:24 AM (GMT -6)   
I pretty much agree with O'Neil. I think it's important, if possible, to try to figure out if there is a source to your fiance's fatigue. There don't seem to be a lot of docs that specialize in CFS, but if you can find one who does he/she may be able to help your fiance. It's also important that a doctor rule out other things that might be wrong with your fiance. It is a very frustrating illness and it can be hit and miss with treatments. What works with one person, might not work with another.

Let us know if you have any other questions. Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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