Do I have CFS?

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New Member

Date Joined May 2007
Total Posts : 1
   Posted 5/10/2007 6:49 AM (GMT -6)   
Hi everyone, I'm new and I have got some strange and debilitating symptoms which seem to be confusing everyone.  Here's my story - I am 33 and about 1 year ago I got Ross River Virus (mosquito borne virus) it was supposed to last only a few months but I have never been the same since.  Symptoms that I have had ever since are - severe dizziness (think I am going to pass out - this is accompanied with panic about passing out), headaches, sore throat, tiredness, general heat or fever in my body, vertigo (bad!) and sleep disturbance.  These last few weeks my symptoms have gone into overdrive - this has happened at a stressful and busy time in my life coincidentally.  Recently the symptoms have started to include confision, blurred vision, extreme muscle fatigue and even the feeling that I really don't have the strength or ability to stand up or even hold my glass.  I feel like my brain and my body are not connected.  I also noticed that this extreme fatigue and dizziness would follow an activity that may be quite stressful (exam, performance assessment etc).  I feel like I am going to collapse.  It has occured to me that my symptoms are worse as soon as I am under any stress - emotional or physical.
I have been unable to work for over 1 year and my degree which is 95% complete has come to a standstill.  Sometimes I feel confused (mentally) and like I am not in control of my body movements at all.  It is terrifying.  Of course no one seems to know what is wrong with me - oh except that I am "suffering from anxiety." (isn't that a ripper!) I have moments where I feel mentally clear and have enough energy to do a bit of house work or mediating in the garden etc but soon enough I have to lay down again.  Sometimes I am convinced I am dying.  My conditioned has worsened rapidly these last few weeks, perhaps due to stressful demands of my degree.  All has come to a grinding halt now as I can't even drive due to the dizziness.  They found my B12 to be low and injections are helping a little.
I am doing stuff for myself in the alternative therapies and this helps but man would I like to know for sure what I have.  Does this sound familiar to anyone here?  Any advice or directions....thanks and good health to you all.

Regular Member

Date Joined Jan 2004
Total Posts : 103
   Posted 5/10/2007 3:54 PM (GMT -6)   
Hello Pummy
Your symptoms need to have neurological evaluation including scans of your brain. A spinal tap would evaluate the fluids in your brain. Im surprised that they havent done further evaluation of your brain
wish you the best
Registered nurse Expert

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 5/11/2007 8:47 AM (GMT -6)   
Pummy, I'm really sorry about everything you have been through and that doctors haven't been able to figure out what is wrong. Don't you just love it when they can't figure out what is wrong, so they try to tell you that you are depressed or anxious?

It sounds like you definitely have something going on and the docs need to keep looking to help you figure it out. A lot of us with chronic illness have had to go through several doctors before finding the one who will finally help. I had to go through 3 doctors before I was finally diagnosed with lupus.

I agree with Ice Drop about the neuro eval to rule anything out there.

I wish I had more answers for you. Please feel free to ask any other questions and know that we are here for you if you need some support.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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New Member

Date Joined May 2007
Total Posts : 1
   Posted 5/17/2007 9:07 AM (GMT -6)   
Just a thought, about 3 years ago I had symptoms just like you have mentioned. I was very ill, and after getting allergy shots I could smell mold coming from my new bathroom. I could tell after a while the smell was under my bathtub and tore out a marble tile block. Turns out that the hand held shower sprayed a lot of water every time I used it, which after a year of this it turned to many molds one was aspergillus which I got very sick from. We live with many molds but, with extreme doses it can make you very ill. I ended up in the emergency room many times from very bad vertigo and other illneses. We had to have the room closed off and tore out. I do feel much better and haven't had many of the illnesses since. Is it possible to have someone go under your house ( anywhere the water pipes are) to check for leaks and rooting wood?

Ra Ra
New Member

Date Joined May 2007
Total Posts : 12
   Posted 6/1/2007 7:59 PM (GMT -6)   
It could be CFS. You might want to get checked for MS too. Hopefully you'll get some answers soon!

Regular Member

Date Joined Jan 2007
Total Posts : 30
   Posted 6/8/2007 11:32 PM (GMT -6)   
I have the same symptoms as you pummy, I get those scary brain not connected to body feelings. I also have alot more symptoms, I am reading up on Lyme. I was dx'ed with anxiety as well and even tried anti-depressants for about 8 months with no changes (except for worsening symptoms) So have you found anything out recently? I hope you can feel better soon!

New Member

Date Joined Jun 2007
Total Posts : 6
   Posted 6/16/2007 6:57 PM (GMT -6)   

I have CFS, and I have not ever had most of your symptoms.

I would suggest though you start taking PERFECT SOLUTIONS "Ultimate Viral DEFENSE". Find them on the net. and call them....and they will find you a local practitioner who carries this product.

Also get some good Colloidal Silver at the health food store.

These products kill off viruses.
Plus...The silver also kills off parasites, fungi, viruses and bacteria.

They should not interfere with any medical products you might also take,
but check with your physician if you are using any meds.

Drink lots of water to flush out what will die off.
If it is a parasite, it takes a longer time to treat so be consistent!

Best of luck to you!



If anyone does try any of the holistic products I am using, and finding success with, please, let me know if it also works for you.

CFS is bad enough, but LYME and the other viruses you are all talking about, sound to be far worse! I have gotten to a point where I have tried many, many things that did not work well, or at all, and a few that have worked well. There is no single cure to anything, but I do know that each of us has only one immune system. As the immune system gets weaker more and more symptoms occur. I have been so lucky to find products that are taking away many of the worst of my symptoms.

I am hopeful that someday I will be healed. My guess is I have already spent about $20,000 in vitamins and other products since 1984. Mmmmmm......


Post Edited (Sugarx2) : 6/23/2007 12:47:26 AM (GMT-6)

Veteran Member

Date Joined Feb 2007
Total Posts : 668
   Posted 6/20/2007 7:56 AM (GMT -6)   
It wouldn't hurt to pursue Lyme. See if you can get a SPECT scan of the brain. It is a good tool for detecting Lyme, CF, and Fibromyalgia.

I had mwny of the same symptoms and I am now being treated for Lyme.

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