Please read if you've had EBV/CMV

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Regular Member

Date Joined Mar 2006
Total Posts : 423
   Posted 5/22/2007 3:25 PM (GMT -6)   
I'm in the process now of doing research and I myself will be starting Valtrex for this on Sunday.  If you've been diagnosed with Mono (EBV) and or CMV in the past and it's lead to CFS or symptoms of this, please read this site.  Find a doctor who is willing to try you on this method that WAS approved by the FDA and showed no side effects, just pure results!!!!
"Twenty-five patients with CFS illness were treated orally for 6 months with pharmacokinetic doses of valacyclovir (valtrex) in a formulation to give continuous anti-EBV effective blood levels throughout the day. This is the first time such valacyclovir dosing was given. The trial was approved by the U.S. Food and Drug Administration. Patients were carefully monitored for safety by repeated appropriate blood tests. There were no adverse side effects. Sixteen patients with single virus EBV infection were benefitted, but 9 clinically similar CFS patients with EBV-HCMV co-infection were not benefitted. Valacyclovir (valtrex) in the laboratory is effective versus EBV, but it is NOT effective (active) versus HCMV. Therefore, the results strengthen the need for subset classification and appropriate subset-directed antiviral treatment for CFS illness. This, to our knowledge, is the first successful report of valacyclovir treatment for EBV infection."
"Eleven CFS patients with EBV-HCMV co-infections were appropriately treated according to their prior subset classification over an 18-month period with antiviral drug treatments. All patients were carefully monitored for safety every 4-6 weeks. Valacyclovir for EBV infection and ganciclovir for HCMV infection were used. There were no significant side effects in CFS patients. All 11 CFS patients in this study were significantly improved."

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 5/22/2007 7:49 PM (GMT -6)   
I'm excited for you that you are starting this and hope that you have the same results as the people in the study. Hopefully there will continue to be more studies with larger groups of people so that the results can continue to be validated. I'm eager to see how it goes for you.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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Co-Moderator: Lupus and CFS Forums

Regular Member

Date Joined Mar 2006
Total Posts : 51
   Posted 6/5/2007 2:46 AM (GMT -6)   
I've actually taken Valtrex before. It was only for a short period of time though. I noticed
a few changes with some symptoms and increased symptoms with others. But it was only
for a few weeks. Remember that not everything is safe just because the FDA approves it.
Good luck and I hope it works for you.....In fact please let me know if it does.


Regular Member

Date Joined Mar 2006
Total Posts : 423
   Posted 6/14/2007 8:16 PM (GMT -6)   
Well, it's been 2 weeks as of tomorrow, and nothing yet.  Not expecting it, but hoping :-)
I leave for Florida in 1 week.  It would be great if I have a little relief before then. 
I'll write back in 2 weeks with what's going on.
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